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Thread: psychiatric approach to chronic skin diseases

  1. #1
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    Default psychiatric approach to chronic skin diseases

    Hello group,

    In my opinion, the psychologic component of skin disorders are underestimated. I know rosacea is not only a skin disorder but also(or only) vascular.

    I urge you guys to pay attention to this issue as well in order to get a more rapid remission and to increase your quality of lives. Only my ideas...

    Finding an expert on chronic diseases might help.
    Why do we fall? So that we can learn to pick ourselves up again..

  2. #2
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    Hope you're holding up all right, man. ;)

    I'm off-and-on seeing a chronic disease specialist for my condition. He's very cool and has experience with people like us in similar situations, so he understands the limitations and the mindset of a chronic disease sufferer.

    I'd highly recommend finding a psych. with experience in chronic disease. Has helped me very much. I had to go through several doctors and one psychiatrist that I didn't jive with. The psychiatrist I'm seeing now was actually recommended to me by my GP doc. Funny, my GP diagnosed me with "Severe Hypochondria" because I was so bad at the time and desperate for help, and nothing was helping, so my clamoring for help made him think I was mental. I read the notes of the psych. grad students who sat in on my session with my first psychiatrist.
    Their notes read, something to the effect of, "Delusional? Continues to spray face with water...."

    No, not delusional, actually. You people just don't understand my condition.

    Well, my GP has come around now (after my visit to the ER). Keep searching. Don't give up on doctors. You really do have to weed them out. Just as you wouldn't buy a house from any smooth-talking realtor, you can't settle for the first doc you see. A burden, yes, but we have to understand how to help ourselves with the best we can find.

    Good luck!

    David
    35 year-old male
    Erythmatotelangiectatic rosacea & Ocular
    20 + laser treatments.
    Toleraine Soothing Light Facial Fluid for moisturizer. I don't use a special cleanser. Clonidine daily; klonopin sometimes.
    BEST and CURRENT TREATMENT I use: Low-Level Red Light Therapy LED array.
    Please feel free to PM me with your low-level red light therapy (LLRLT) questions. I'm happy to help if I can.

  3. #3
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    Their notes read, something to the effect of, "Delusional? Continues to spray face with water...."
    OMG! If thats wasn't so awful it would be hilarious. im sure we could put a thread together about all teh things we do to try and relieve or stop in its tracks, a rosacea flush, and how crazy that must make us seem to others.

    I have been known to disappear in the middle of conversations/meetings/pub outings and either reappear hours later or not at all. I also have a little water spray that i used to carry around with me. I've been known to turn peoples heating down, avoid food all day and just nibble on pumpkin seeds so as not to induce a food flush and use a mini fan in the midst of winter.

    Im sure a psychiatrist would have a field day.

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    Sally Ann,
    THANK YOU!!! Ahhhhhh, I do not feel crazy anymore!!!!!!!!!!!!!

    Yes, I too disappear from social gatherings, open windows in - 30 degree winter, mysteriously turn down heat or turn cooler the AC anywhere I get the chance (I used to "steal" the maintenance man's keys at my old job and stealthily sneak to the thermostat box and turn down the heat to a REASONABLE temperature......man that was nerve wracking, I had to do it constantly.....), stick ice packs under my clothes to keep cool at work, etc etc.

    I know for a fact people think I am nuts. THANK GOODNESS for you guys to confirm that we are not alone in these behaviours. It is especially hard when you also have neuropathic rosacea and your burning is invisible to others. THen they really think you are a hypochondriac.....

    To the original poster, Francois, thank you for reminding us that we should not diminish the profound psychological effects of having this disorder and seek help/counselling to help us cope. It is REALLY hard to find a good therapist though. A 'chronic disease specialist' is a great suggestion. I am lucky that my GP is actually so understanding of my rosacea and accepts everything I need to do to keep it under control.

    Shelley

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    I used to "steal" the maintenance man's keys at my old job and stealthily sneak to the thermostat box and turn down the heat to a REASONABLE temperature......man that was nerve wracking, I had to do it constantly.....),
    Shelley that has just made me snort with laughter! :mrgreen: Hate to break it to you but that just might be taking things to extremes

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    Quote Originally Posted by granola grrrl
    Sally Ann,
    THANK YOU!!! Ahhhhhh, I do not feel crazy anymore!!!!!!!!!!!!!

    Yes, I too disappear from social gatherings, open windows in - 30 degree winter, mysteriously turn down heat or turn cooler the AC anywhere I get the chance (I used to "steal" the maintenance man's keys at my old job and stealthily sneak to the thermostat box and turn down the heat to a REASONABLE temperature......man that was nerve wracking, I had to do it constantly.....), stick ice packs under my clothes to keep cool at work, etc etc.

    I know for a fact people think I am nuts. THANK GOODNESS for you guys to confirm that we are not alone in these behaviours. It is especially hard when you also have neuropathic rosacea and your burning is invisible to others. THen they really think you are a hypochondriac.....

    To the original poster, Francois, thank you for reminding us that we should not diminish the profound psychological effects of having this disorder and seek help/counselling to help us cope. It is REALLY hard to find a good therapist though. A 'chronic disease specialist' is a great suggestion. I am lucky that my GP is actually so understanding of my rosacea and accepts everything I need to do to keep it under control.

    Shelley

    There is a real physiological difference (physical) that makes us rosacea sufferers. Now, ove time you can reinfoce this and make it worse. I think that is what Francois is eluding to becuase of a conditioned response to known triggers. However, after reading Shelley's post, I think she needs serious help or use her stealth technique to make money.

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    In my defense.........it's not my fault the maintenance man left his keys out on my desk in the morning
    That is just waaaaaaaaaaaaayy too much tempatation for a rosacea sufferer to resist......keys/thermostat....keys/thermostat.....hmmmmm....

    Shelley 8)

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    PS. I probably flushed more trying not to get caught "red" handed.....

    I need help

    Shelley

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