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Thread: Think about how to help the group as a whole

  1. #1
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    Default Think about how to help the group as a whole

    Group,

    I have posted what could be a great permanent section on physician Q and A. However, there are no responses at all or help in setting it up or ideas. We did get two posts which I removed because they were way off topic.

    As a moderator and one who spends a lot of time helping others without expectation of anything in return, I was hoping to get constructive input on the thread called Physican Q and A. This could be an awesome section and then physicians would join the group and post when time allows.

    No one has answered. I have asked for input on this one section so that you all will have say in its format, you will make up most of the questions for the physicians and vote on them, and most will bring up excellent points that I would have never thought of to really round off the section; Please folks think about this section and add some constuctve threads to it. Thank you.

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    Default Sorry I was off topic but>>>>>>>>

    I was not quite sure what to say but I wanted to let you know that I was interested.

    Are you looking for some questions?

    also

    how do we submit these questions?

    Have a great day
    Glad to hear that you are feeling better

    Linda

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    Dito!!!!

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    I'd love to ask some questions! LOL as always!!!
    Signature bio:
    I was on accutane 30 years ago as a research patient; the problem returned in 2003. Now, I am on 20mg isotretinoin, once a day...improving.

  5. #5
    Junior Member Colleen's Avatar
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    Default physician Q&A

    It might be nice to try this section as a physician panel as is done at a conference. List the physicians and their qualifications - maybe even have a pic of each above their names. Then a question could either be asked of the entire panel or of a certain physician. It could be worded such as: Dr Blank - can you tell us ..... ? or Does anyone on the panel have experience with ....?

    All of the questions could go to the moderators first to be compiled to prevent repeats, combined with other similar questions, etc and then posted on the site for the physicians. That way everyone could see the questions asked and the reponses when they were made.

    Also, each physician may not be answering every question - or if it was a question for all physicians it could be answered and it would be like a round table response.

    Anyway - just a thought - hope it helps ~ Colleen

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    Default Re: physician Q&A

    Quote Originally Posted by Colleen
    It might be nice to try this section as a physician panel as is done at a conference. List the physicians and their qualifications - maybe even have a pic of each above their names. Then a question could either be asked of the entire panel or of a certain physician. It could be worded such as: Dr Blank - can you tell us ..... ? or Does anyone on the panel have experience with ....?

    All of the questions could go to the moderators first to be compiled to prevent repeats, combined with other similar questions, etc and then posted on the site for the physicians. That way everyone could see the questions asked and the reponses when they were made.

    Also, each physician may not be answering every question - or if it was a question for all physicians it could be answered and it would be like a round table response.

    Anyway - just a thought - hope it helps ~ Colleen

    Colleen,

    That is a great idea and really would be one of the better ways to get the presentation going and a lively, constructive debate and think tankk answers. Lets keep that at the top of the list of things to try to do. My only hesitation is based on 16 years of experience with doctors and recently with the RRF and Medical Advisory Chair -- to get one physician in on time after a busy day is difficult and the answers may not be the best (we all need thinking time). To get two physicians to come in after their busy days at the same time and place gets much harder. To get 4 physicians to come in would be a very very tall order. Nothing implied other than this is how their lifestyles work out. In my personal life, I can count on one hand the times that my father was ever on time for any family function. That is one of the biggest cons of being a physiician. Keep on working on this idea and lets see if we can make it work for special occassions.

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    Senior Member IowaDavid's Avatar
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    Can we just have a post/reply format (as like any other thread)? So that the doctors who do agree to be a part of it aren't constrained by time? Just a thought.


    David
    35 year-old male
    Erythmatotelangiectatic rosacea & Ocular
    20 + laser treatments.
    Toleraine Soothing Light Facial Fluid for moisturizer. I don't use a special cleanser. Clonidine daily; klonopin sometimes.
    BEST and CURRENT TREATMENT I use: Low-Level Red Light Therapy LED array.
    Please feel free to PM me with your low-level red light therapy (LLRLT) questions. I'm happy to help if I can.

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    Default

    Quote Originally Posted by IowaDavid
    Can we just have a post/reply format (as like any other thread)? So that the doctors who do agree to be a part of it aren't constrained by time? Just a thought.


    David

    David,

    That will be added to their own subforum if approved by Warren. This will be great once they join and pop in once in a while. So, yes I do evision this happening, but first a more formal approach for permanent answer placement. Responding to a post as a physician or specialist is not an easy thing to do in general and is indeed frowned upon. They need the time to organize their thoughts, present the information in a logical fashion, get rid of the medical jargon, make sure they dont forget anything, look over it again for contraindications so that they are not sued, and do this with each and every post. So, what you usually get is no physicians participatiing or a one to three sentence blanket coverage statement. That is why in the 7.5 years I have been hanging around we have never had a physician stay for any real amount of time....... Never. So, we as rosacea sufferers must change OUR tactics I believe and make it fit the PHYSICIANS comfort zone to reel them in. Those are my three cents.

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    Senior Member IowaDavid's Avatar
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    Is there any way for the mods/admins to post a disclaimer in this forum, so that physicians aren't held responsible for a given piece of advice?

    I don't understand the laws in this area of "medicine," but I would think we could work something out. Clearly, no one is diagnosing a person over the internet. This is just a free exchange of ideas. Regardless of the poster's profession, or higher education degree, I would think that it would be all right to simply post thoughts and suggestions.

    It would be helpful, I think, to have physicians post and interact with rosacea sufferers so that they might better understand our day-to-day life troubles. I'd be more than willing to absolve anyone--I already do; I _have_ to take responsibility for my condition as no trained doctors are knowledgeable enough to help me--of any sort of medical responsibility, especially over the internet and at a board that is concerend with expanding our ideas about this disease.

    I'm not saying we all should start swallowing Ivomec.

    But, forgive me if I am being naive as to the workings of the legal system.


    David
    35 year-old male
    Erythmatotelangiectatic rosacea & Ocular
    20 + laser treatments.
    Toleraine Soothing Light Facial Fluid for moisturizer. I don't use a special cleanser. Clonidine daily; klonopin sometimes.
    BEST and CURRENT TREATMENT I use: Low-Level Red Light Therapy LED array.
    Please feel free to PM me with your low-level red light therapy (LLRLT) questions. I'm happy to help if I can.

  10. #10
    Junior Member Colleen's Avatar
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    Thank you for your response - I wasn't necessarily thinking they all had to be there at once, just that they could each respond in their own time to the same question - or the question addressed specifically to them. The answers could come to the moderators and be posted all at once to give the appearance of everyone being there at once if desired (there could be a set amount of time between the questions and the posting of the answers - like 2 or 3 days - which would allow the readers to know when the answers would be posted, give the physicians a type of deadline - and if not all the physicians respond due to other commitments it could be noted that there was no response by Dr ....) That way we could respect the schedules of the physicians and yet still have the panel type discussion. The response/reply/debate could have the same delay and method. This would just involve setting up a temporary folder/whatever that the responses went to that was only accessible by the moderators where the physicians responses are held until the deadline and then the moderator could send them on the to the Q&A thread. ~ Colleen

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