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Thread: Rosacea and Irritable bowel syndrome

  1. #31
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    I suffer from IBS and look quiet pregnant ( haveing 4 children my stomach was different every time so can't to what stage)I really suffer from wind , have given up wheat which has helped but still suffer, is this all conected? I wish I knew

  2. #32
    Senior Member nat007's Avatar
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    Hi Peter,
    haha, yeh, I meant a fan of course, sorry. And I know exactely what you mean: I sneaked around the university classes to secretly put down the central heating or open windows behind close curtains! When your face is hot you just don't notice the real temperatures.
    I flush a lot, a real problem. Days on end sometimes and all very much increased after IPL once, 6 months ago.
    Do you have IPL plans or what is your regimen? I already use moxonidine, for 1,5 year now, 3 time a day 0,2 mg, sometimes even one more, so my bloodpressure is at it's lowest (but still safe) point now. It used to work magic but after the IPL everything just went 200% worse.
    Do your loved once understand the impact of this all by the way? Or do you even have kids maybe and how does that go with this condition?
    best wishes, Natalja

  3. #33
    Senior Member Peter's Avatar
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    Hello Natalja

    I am glad I am not the only one sneaking around turning radiators off and opening windows that blow everybody's papers off their desk I can walk round outside my workplace in winter wearing my summer short sleeve shirts and everybody goes Brrrrrrrrr and tell me I am crazy !!!

    Outside heat in the summer is not a problem for me but being stuck in a hot room inside still makes me feel uncomfortable but not as bad as years ago when I felt physically ill.

    I have never had IPL or any laser treatments but for 7 years have used a converted all red acne lamp which has helped me considerably. There is another link in the Forum if you want to read through it. Flushing was a problem for me as described above especially when I got nervous but for three years I controlled it with Dixarit (Clonidine) tablets and now I am considerably improved. I tried Moxonidine for a while but it made me feel tired and not right so I reverted back to Dixarit.

    My regime now is lamp 15 minutes daily. Dalacin T lotion (Clindamycin) in a very small area twice a day (as backup) after washing with Clinique regular (mild) soap for men. I use Clinique M shave gel for wet shaving (not necessary for you I hope ) and follow up with Aloe99 gel as an aftershave balm. That's all I use as I think the least you use the better although I appreciate a woman has to incorporate her makeup into her schedule.

    I am not married and do not have any children. My girlfriend struggles to understand rosacea despite my attempts to explain but she always says my skin looks perfect (just my skin ) and therefore thinks I imagine it all which is very frustrating. She feels the cold and we have constant arguements over the heating temperature. At night in the winter she has a hot water bottle, electric blanket, extra blankets her side plus sometimes 4 Labradors on the bed while I have nothing my side. I don't mind this but one of the Labs snores so loudly it keeps me awake - honest.

    Seriously my skin is good now and the problems with heat much improved. I believe providing you can find a treatment that helps you and controls the condition, over time it can go into remission and will stay in remission providing you keep up with your treatment regime. That's my opinion but probably others will disagree. In your case keep searching for a better treatment and find a good dermatologist with a proven track record with rosacea. Don't give up and I am sure your skin will eventually return to normal again although it could take a little while to get there

    With the IBS just see if relaxing more helps and also don't worry about IBS or rosacea because I am sure one day they will no longer be a problem. Worrying never helps anything so there is no need.

    This is a longer message than intended but there is a lot to cover. I might be leaving the group soon but if you have any other questions reply to this in the normal way but if you need to contact me again send me a private message and I will give you another e mail address. This applies to anybody else as well reading this if they think I can help.

    Good luck and hope you get success.

    Peter

  4. #34
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    Default i also have the pregnancy bloat

    hi

    i haven't been to any GI specialists but I did see Dr. joseph mercola in schaumburg, IL who is one of the best alternative doctors in the country and we did tons of tests and basically all he came up with is disbyosis...

    unhappy with that diagnosis i searched elsewhere. my new doctor did a comprehensive digestive PANEL AND FOUND TWO BACTERI IN MY GUT THAT SHOUDN'T BE THERE IN VERY LARGE AMOUNTS
    HE ALSO FOUND MANY MANY FOODS THAT I AM INTOLERANT TO WITH ANOTHER TEST
    SO NOW WE ARE KILING THE BAD BACTERIA AND HEALING THE GUT
    (SORRY DR. NASE, HE DOES BELIEVE IN LEAKY GUT) AND I AM AVOIDING THE FOODS

    SO ONLY TIME WILL TELL.

    DO YOU HAVE WATER RETENTION , TOO?

    FOUR MONTS PREGNANT.. I THINK I LOOK EIGHT , WITH TWINS!!!! HULL

  5. #35
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    Peter i just wonder if you made a decision not to have children? I only ask because i couldn't bare the thought of passing this condition onto any future kids through my genes and because of this i am 95% sure i won't have children.

  6. #36
    Senior Member Peter's Avatar
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    Hello

    I did reply to this question privately because I did not intend posting on this Forum again. Probably selfish of me because it could break the thread and stop others from following up. Not sure what the question had to do with IBS but obviously a concern for Sally Ann so could be the start for another subject for discussion. Anyway this is my last message and here it is below.

    Good luck everybody.

    Peter

    ------------------------------------------------------------------------------------
    Hi

    After yesterdays events I will not be replying to any links on the Forum.

    Out of courtesy Sally Ann I will answer your question. I have not made a decision not to have children in the future and I think it would be silly for anybody to decide this just because of rosacea.

    Rosacea has shown a tendancy in some cases to run in families but the same case can be put forward for many diseases. My sister has rosacea (under control and in remission) and her daughter at 32 has perfect skin and in my opinion will never develop rosacea.

    Best wishes

    Peter

  7. #37
    Senior Member nat007's Avatar
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    Default microscopic colitis

    Hi all,

    I've been diagnosed with microscopic (lymfocytical) colitis. 'Nothing too serious' according to the GI. She doesn't know of any interactions with rosacea. My rosacea is totally out of control at the moment. I just can't stop flushing and only have some lelief with coolpacks and a fan.
    I found this PubMed link, that worries me.
    Does anyone know:

    -Is microscopic colitis (form of inflammatory bowel disease) very different from ulcerative colitis, or do they mean the same with it?

    -I have IPL treatments planned but would that be useless eventually if I don't treat the colitis porperly? According to my GI there are no good medicins for it and you just need to life with it.

    -would there maybe be a natural way to treat the inflammation in the bowel?



    Best wishes, natalja
    1: J Clin Gastroenterol. 1990 Oct;12(5):513-5. Related Articles, Links

    Rosacea and ulcerative colitis: a possible association.

    Walton S, Sheth M, Wyatt EH.

    Department of Dermatology, Hull Royal Infirmary, Humberside, England.

    Although rosacea was formerly believed to be associated with gastrointestinal upsets, no one any longer finds a significant association between rosacea and the intestinal tract. We describe four patients with a combination of ulcerative colitis and rosacea. In all four, ulcerative colitis preceded the onset of severe papulopustular rosacea, and we therefore feel that the severity of rosacea could have been due to the associated bowel disorder. In one, the severity and poor initial response of rosacea to treatment was clearly related to the activity of the ulcerative colitis, and the rosacea improved only after proctocolectomy. While it is possible that this purported association is fortuitous, we report these cases in the hope that others may have seen this combination of diseases, to our knowledge previously unreported.

    Publication Types:
    · Case Reports

    PMID: 2146313 [PubMed - indexed for MEDLINE]

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