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Thread: Documenting LDN experience

  1. #41
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    Quote Originally Posted by Sineadrosy View Post
    Still taking 2.0 ml LDN. Also undergoinf worst flare thus far
    You need to start 75 micrograms of Clonidine daily (3 x 25 micrograms) plus amitriptyline or duloxetine

  2. #42
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    Quote Originally Posted by Momof View Post
    You need to start 75 micrograms of Clonidine daily (3 x 25 micrograms) plus amitriptyline or duloxetine
    I have to wait til December

  3. #43
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    Quote Originally Posted by Sineadrosy View Post
    I have to wait til December
    Could you go your gp? They really are better than the dermatologists- they look at the whole picture and think outside the box much more than the dermatologists.
    Propropnalol ( as well as clonidine)works well for flushing and the duloxetine or amitriptyline will stop the nerve pain.

  4. #44
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    Quote Originally Posted by Momof View Post
    Could you go your gp? They really are better than the dermatologists- they look at the whole picture and think outside the box much more than the dermatologists.
    Propropnalol ( as well as clonidine)works well for flushing and the duloxetine or amitriptyline will stop the nerve pain.
    I thunk LDN actually has taken care of the nerve pain. It's just the constant redness and painful flushes now I'll need to fund a new GP. Mine probably won't go against the derm

  5. #45
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    Quote Originally Posted by Sineadrosy View Post
    I thunk LDN actually has taken care of the nerve pain. It's just the constant redness and painful flushes now I'll need to fund a new GP. Mine probably won't go against the derm
    Well that is terrific news! Getting rid of nerve pain must be such a relief!
    SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA SINCE 2002.


    *Vit D3,Theratears Omega 3.



    *LDN since October 2018.

    *REN skincare range. TARTE cosmetics.

    *Tried Clonidine, Moxonidine & Atenolol (None being taken at present ).

    *Yearly IPL treatments until 2009.

    * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).



    History of Hyperthyroidism (Graves) Lichen Planus (oral)
    PROUD TO BE DIFFERENT






    .

  6. #46
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    Quote Originally Posted by Judworth View Post
    Well that is terrific news! Getting rid of nerve pain must be such a relief!
    Yeah it's good that has lessened. Although I would take nerve pain over redness and flushing any day

  7. #47
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    Quote Originally Posted by Sineadrosy View Post
    Yeah it's good that has lessened. Although I would take nerve pain over redness and flushing any day
    I differ there, my nerve pain and swelling was so bad that I was going out of my mind!

    Sorry that the reduction of nerve pain did not reduce your redness & flushing though.
    SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA SINCE 2002.


    *Vit D3,Theratears Omega 3.



    *LDN since October 2018.

    *REN skincare range. TARTE cosmetics.

    *Tried Clonidine, Moxonidine & Atenolol (None being taken at present ).

    *Yearly IPL treatments until 2009.

    * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).



    History of Hyperthyroidism (Graves) Lichen Planus (oral)
    PROUD TO BE DIFFERENT






    .

  8. #48
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    Quote Originally Posted by Judworth View Post
    I differ there, my nerve pain and swelling was so bad that I was going out of my mind!

    Sorry that the reduction of nerve pain did not reduce your redness & flushing though.
    Perhaps I am just forgettinf how bad the nervepain actually was lol I definitely cried from it at times. It was very painful. I'm so glad the LDN worked for you, I know you suffered for a long time x

  9. #49
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    Quote Originally Posted by Sineadrosy View Post
    Perhaps I am just forgettinf how bad the nervepain actually was lol I definitely cried from it at times. It was very painful. I'm so glad the LDN worked for you, I know you suffered for a long time x
    Aww! Bless you!

    Yes. over 2 yrs and no more nerve pain. The odd rosy-cheek if I have a glass of wine, but no more pain. Taking 2mg at present.
    SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA SINCE 2002.


    *Vit D3,Theratears Omega 3.



    *LDN since October 2018.

    *REN skincare range. TARTE cosmetics.

    *Tried Clonidine, Moxonidine & Atenolol (None being taken at present ).

    *Yearly IPL treatments until 2009.

    * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).



    History of Hyperthyroidism (Graves) Lichen Planus (oral)
    PROUD TO BE DIFFERENT






    .

  10. #50
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    LDN dose: 4ml

    What is there to tell. I'm currently sitting here with the right side of my face bright red, purple, swollen boring. When I breath the warm air burns my top lip. Back to square one.

    Have a feeling my BC pill is playing a role.

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