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Thread: Someone please help... type one flusher

  1. #1
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    Default Someone please help... type one flusher

    Hello everyone,
    I have been diagnosed with type one rosacea because of my facial flushing/blushing. I've had these flushes since going on accutane in 2016 (although I started blushing around 2015). No one in my family has rosacea. My skin burns when I flush/blush and my self esteem is really low because of it. I am a 27 year old female. I mainly flush on ears, cheeks, and nose. My triggers are emotions (being embarassed, anxious, surprised, upset, happy), being intimate, heat, and alcohol. Although at times I will get a flare for no reason at all. I really feel like my sympathetic nervous system is a big culprit in my flushing/blushing. I've been taking propranolol 40mgs a couple times a week for several years now. It's hit or miss with it helping. Sometimes it totally keeps me from blushing, and other times it doesn't help. I also have gotten 4 vbeams now. They didn't really do much for my flushing/blushing. I tend to get nightly nose flushes where inside my nose swells and my nose turns bright red and hot. These are things I have thought about trying and was wondering if anyone could help and give advice:

    1. Melanotan (these injections I have read have helped people with type 1 rosacea, helped thicken skin, and give a more even skin tone, can help people handle sun better)
    2. Nardil (This is an anti-depressant that I have read actually cures people from blushing, anyone have experience with it? I feel like it could help my overactive sympathetic nervous system issues, I also have developed pretty severe anxiety because of rosacea and maybe this could help with it too)
    3. LDN treatment
    4. hydroxychloroquine (anti-malaria drugs)

    Has anyone found anything to help the heat trigger of type 1? This is the trigger that bothers me the most. I can sometimes feel the heat from a candle across the room which can cause a flush.... please I need to find something to help my rosacea. It has taken over and is literally ruining my life. I can't live in pain like this forever. Literally will try anything to cure this at this point.

  2. #2
    Senior Member Brady Barrows's Avatar
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    Quote Originally Posted by sickofthis View Post
    Hello everyone,
    I have been diagnosed with type one rosacea because of my facial flushing/blushing. I've had these flushes since going on accutane in 2016 (although I started blushing around 2015). No one in my family has rosacea. My skin burns when I flush/blush and my self esteem is really low because of it. I am a 27 year old female. I mainly flush on ears, cheeks, and nose. My triggers are emotions (being embarassed, anxious, surprised, upset, happy), being intimate, heat, and alcohol. Although at times I will get a flare for no reason at all. I really feel like my sympathetic nervous system is a big culprit in my flushing/blushing. I've been taking propranolol 40mgs a couple times a week for several years now. It's hit or miss with it helping. Sometimes it totally keeps me from blushing, and other times it doesn't help. I also have gotten 4 vbeams now. They didn't really do much for my flushing/blushing. I tend to get nightly nose flushes where inside my nose swells and my nose turns bright red and hot. These are things I have thought about trying and was wondering if anyone could help and give advice:

    1. Melanotan (these injections I have read have helped people with type 1 rosacea, helped thicken skin, and give a more even skin tone, can help people handle sun better)
    2. Nardil (This is an anti-depressant that I have read actually cures people from blushing, anyone have experience with it? I feel like it could help my overactive sympathetic nervous system issues, I also have developed pretty severe anxiety because of rosacea and maybe this could help with it too)
    3. LDN treatment
    4. hydroxychloroquine (anti-malaria drugs)

    Has anyone found anything to help the heat trigger of type 1? This is the trigger that bothers me the most. I can sometimes feel the heat from a candle across the room which can cause a flush.... please I need to find something to help my rosacea. It has taken over and is literally ruining my life. I can't live in pain like this forever. Literally will try anything to cure this at this point.
    1. Melanotan was discussed in older threads here at RF and as mentioned to you before, doubt if you can reactivate any of those users of it. It was never popular here. So whatever you have been reading at Reddit or elsewhere are purely anecdotal. Do you have any links to clinical papers on Melanotan and rosacea?

    2. Nardil (Phenelzine) not discussed here at RF as far as I know nor on the list of anti-flushing treatments. Are you sources Reddit and other social media private groups? Do you have actual clinical papers that state it 'cures people from blushing' ?

    3. LDN has some recent reports here at RF and there a number of advocates. You might get a rise from someone who raves about it, particularly Flugs and Judworth.

    4. Hydroxychloroquine (Plaquenil) has a few advocates, Duff Man and Laser_cat. There are actual clinical papers that this treats rosacea.

    It appears from you list you have had multiple treatments for your issues. You posted that you used to take Accutane and I am assuming you are not taking it now? Correct?
    You may want to consider a 'less is more' approach rather than a 'more is better approach. I have felt the same way, that a more is better approach is the way to go, so I understand how you feel, but sometimes you just need to let your skin heal on its own for a few days and recover from all the treatments. Then a one treatment at a time approach.
    Brady Barrows
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  3. #3
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    Quote Originally Posted by Brady Barrows View Post
    1. Melanotan was discussed in older threads here at RF and as mentioned to you before, doubt if you can reactivate any of those users of it. It was never popular here. So whatever you have been reading at Reddit or elsewhere are purely anecdotal. Do you have any links to clinical papers on Melanotan and rosacea?

    2. Nardil (Phenelzine) not discussed here at RF as far as I know nor on the list of anti-flushing treatments. Are you sources Reddit and other social media private groups? Do you have actual clinical papers that state it 'cures people from blushing' ?

    3. LDN has some recent reports here at RF and there a number of advocates. You might get a rise from someone who raves about it, particularly Flugs and Judworth.

    4. Hydroxychloroquine (Plaquenil) has a few advocates, Duff Man and Laser_cat. There are actual clinical papers that this treats rosacea.

    It appears from you list you have had multiple treatments for your issues. You posted that you used to take Accutane and I am assuming you are not taking it now? Correct?
    You may want to consider a 'less is more' approach rather than a 'more is better approach. I have felt the same way, that a more is better approach is the way to go, so I understand how you feel, but sometimes you just need to let your skin heal on its own for a few days and recover from all the treatments. Then a one treatment at a time approach.

    Thanks so much for the response. Well from what I read from the posts on here about Melanotan it actually did seem to help people. People were just too scared to keep using it because it's not approved by the FDA. I am just curious if theres anyone recently whos experimented with the Melanotan. I have talked to several people on reddit who say they have not blushed since using Nardil. It is the only medication that ever worked for any of them. I don't have any studies, but I'm not really good at researching so there might be some out there. Doctors don't like to prescribe Nardil because there are certain things you cannot eat on it or you could have a really bad reaction. But from what I've read, it seems to be extremely beneficial for social anxiety/social blushing. I took accutane in 2016, so it's long out of my system. I currently only use Cera ve hydrating cleanser and cera ve daily moisturizing lotion twice a day on my face. And then a couple times a week I take propranolol 40mgs when in stressful situations. I am just trying to figure out what would be a good next treatment to try, since the vbeams didn't really help my painful flushing. :/

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