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Thread: Antibiotics

  1. #11
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    Quote Originally Posted by antwantsclear View Post
    This tea tree oil tooth paste has really helped me with mouth ulcers/burning:
    https://www.amazon.co.uk/Desert-Esse...NsaWNrPXRydWU=

    I find the probiotic, Symprove, helps me tolerate a little dairy every few days, together with Integrative Therapeutics Similase GFCF. I've never found a milk substitute that agrees with me either.

    The shaking is concerning - not sure a dermatologist is best placed to help with that symptom.

    What type of specialist are you waiting to see?

    Some people treat ocular rosacea with tea tree oil wipes.
    https://www.amazon.co.uk/Oust-Demode...1947197&sr=8-7
    I agree with antwantsclear. I think you really need to see a specialist. I'm sorry to hear that you're not getting the help you should be getting from the right places.

    I also don't think a dermatologist is the best person to be treating you. The tremors in the hands and feet need to be checked by a specialist.

    I can highly recommend Prof D'Cruz if you can travel to London. He sees patients privately as well as on the NHS and I think if you pay private then you don't need a referral from a GP. But I completely understand the cost of the treatment may be prohibitive. Alternatively is there any way you can get referred to him through your GP on the NHS?

    Do you get visible flushing on your hands and feet as well? If it's not visible perhaps also push to see a neurologist.

  2. #12
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    Quote Originally Posted by antwantsclear View Post
    This tea tree oil tooth paste has really helped me with mouth ulcers/burning:
    https://www.amazon.co.uk/Desert-Esse...NsaWNrPXRydWU=

    I find the probiotic, Symprove, helps me tolerate a little dairy every few days, together with Integrative Therapeutics Similase GFCF. I've never found a milk substitute that agrees with me either.

    The shaking is concerning - not sure a dermatologist is best placed to help with that symptom.

    What type of specialist are you waiting to see?

    Some people treat ocular rosacea with tea tree oil wipes.
    https://www.amazon.co.uk/Oust-Demode...1947197&sr=8-7
    Iím waiting to see a specialist in unexplained conditions neurologist apparently one of the best in the country. But no appointment as of yet. I use Optase tree wipes already. Iíve just tried vsl#3 and they really upset my guts. Which symprove ? Is there unflavoured ones ? Do you think Colostrum might help.

  3. #13
    Senior Member Mistica's Avatar
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    All auto immune came back negative. CT scan also negative.
    I had York tests done
    I am curious as to why your doctor ordered a CT scan for digestive complaints.
    What did he/she hope to see?

    A CT has limitations and if a doctor wants to see the inside of your digestive tract, it requires a camera.

    Did he fully appreciate your symptoms, which, as I understand them, are stomach and abdominal?
    Along with the burning mouth and extremities.

    What do you mean by
    I was making my own out bone broth out of ox tail or chicken but this often gives me bad guts
    ?
    Do you mean pain, diarrhea? Did it cause your skin, including limbs to buzz, tingle, flush?

    Also, is this all you eat?
    Iím eating meat as stomach not great with veg so stick to low fodmap veg and fruit.
    Where do you get your carbs, fats?


    I can't recommend a brand of anything as I live in a different country sorry.

    You can't test for true Allergies with IgG tests.
    Elimination of the foods for a period of time, followed by reintroducing them one at a time seems to be the standard way to test for intolerances.

    Regarding your burning mouth, have you tried opening a probiotic and placing the contents in your mouth and swishing them around with saliva and holding them there for 5 minutes or so before swallowing them?
    Previous Numerous IPL.
    Supplements: Niacinamide, Vit K2, low D3, Vit A. Moderate Dose Vit C, Iodine, Taurine, Magnesium. Very low dose B's. Low dose zinc (to correct deficiency).
    Skin Care: No Cleanser, ZZ cream mixed with Niacinamide gel 4% and LMW HA 2%, ethyl ascorbate 2%.

    Treating for gut dysbiosis.(This is helping).
    Previous GAPS diet. Have now introduced lots of fibre.
    Fermented Foods. Intermittent fasting -16-18 hours.
    Oral Colostrum. Helps reduce food reactions.

  4. #14
    Senior Member Mistica's Avatar
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    Iíve just tried vsl#3 and they really upset my guts
    If probiotics are displacing unfavourable bacteria, diarrhea and other complaints can be expected. This would settle down after a while.
    Previous Numerous IPL.
    Supplements: Niacinamide, Vit K2, low D3, Vit A. Moderate Dose Vit C, Iodine, Taurine, Magnesium. Very low dose B's. Low dose zinc (to correct deficiency).
    Skin Care: No Cleanser, ZZ cream mixed with Niacinamide gel 4% and LMW HA 2%, ethyl ascorbate 2%.

    Treating for gut dysbiosis.(This is helping).
    Previous GAPS diet. Have now introduced lots of fibre.
    Fermented Foods. Intermittent fasting -16-18 hours.
    Oral Colostrum. Helps reduce food reactions.

  5. #15
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    Quote Originally Posted by Mistica View Post
    I am curious as to why your doctor ordered a CT scan for digestive complaints.
    What did he/she hope to see?

    A CT has limitations and if a doctor wants to see the inside of your digestive tract, it requires a camera.

    Did he fully appreciate your symptoms, which, as I understand them, are stomach and abdominal?
    Along with the burning mouth and extremities.

    What do you mean by ?
    Do you mean pain, diarrhea? Did it cause your skin, including limbs to buzz, tingle, flush?

    Also, is this all you eat?

    Where do you get your carbs, fats?


    I can't recommend a brand of anything as I live in a different country sorry.

    You can't test for true Allergies with IgG tests.
    Elimination of the foods for a period of time, followed by reintroducing them one at a time seems to be the standard way to test for intolerances.

    Regarding your burning mouth, have you tried opening a probiotic and placing the contents in your mouth and swishing them around with saliva and holding them there for 5 minutes or so before swallowing them?
    I have had camera down and I was diagnosed with Gastritis and diverticular Disease.
    Ct scan because of burning and shaking as I have fractures spine and neck from a car crash so just checking to see if anything had moved. I’ve being doing elimination diet but half the things on the diet I can’t eat like spinach oranges sprouts.
    Things I can eat salad kale broccoli (but not much) carrots parsnips potato’s fruit grapes strawberries blueberries grapes tinned peaches.
    Can’t touch peppers tomatoes
    Can’t touch gratefruit oranges bananas
    Burning mouth I tried antifungal treatment.
    It’s very hard with the elimination diet as it’s how long after you get your symptom.
    ive Noticed a lot of my food is coming through undigested but they won’t treat test me for low stomach acid but anti acids they gave me for Gastritis made me really ill. They kinda just Sind me off now so don’t know what to do.

  6. #16
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    Quote Originally Posted by Rubydo1 View Post
    I have had camera down and I was diagnosed with Gastritis and diverticular Disease.
    Ct scan because of burning and shaking as I have fractures spine and neck from a car crash so just checking to see if anything had moved. Iíve being doing elimination diet but half the things on the diet I canít eat like spinach oranges sprouts.
    Things I can eat salad kale broccoli (but not much) carrots parsnips potatoís fruit grapes strawberries blueberries grapes tinned peaches.
    Canít touch peppers tomatoes
    Canít touch gratefruit oranges bananas
    Burning mouth I tried antifungal treatment.
    Itís very hard with the elimination diet as itís how long after you get your symptom.
    ive Noticed a lot of my food is coming through undigested but they wonít treat test me for low stomach acid but anti acids they gave me for Gastritis made me really ill. They kinda just Sind me off now so donít know what to do.
    Here is unflavoured symprove:
    https://www.amazon.co.uk/Symprove-Li...1963667&sr=8-7

    I seem to avoid most of the same foods as you, except I don't have strawberries and grapes. Potatoes are certainly the least bothersome for me of the heavy carbs - I don't have rice or wheat.

  7. #17
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    Quote Originally Posted by antwantsclear View Post
    Here is unflavoured symprove:
    https://www.amazon.co.uk/Symprove-Li...1963667&sr=8-7

    I seem to avoid most of the same foods as you, except I don't have strawberries and grapes. Potatoes are certainly the least bothersome for me of the heavy carbs - I don't have rice or wheat.
    Seem to be ok with oats and potatoes but not sweet potatoes. Iím fine with all meats but anything too fatty I struggle with.

  8. #18
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    How I was cured from Demodectic / Demodex Rosacea (Types 1 & 2 & nearing 3), Seborrhoeic Dermatitis and Eczema

    Got a smartphone? Then please post a non-revealing pic of your face/skin to www.imgur.com, instead of using walls of text to describe it to us. It may be the best thing you've ever done!

  9. #19
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    Quote Originally Posted by RedRecluse View Post
    Iíve watched his videos before. Which one you looking at ?

  10. #20
    Senior Member Brady Barrows's Avatar
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    Quote Originally Posted by Rubydo1 View Post
    Iíve had my follow up at my dermatologist and he has again suggested Doxycycline 100mg for my eyes and skin.
    When I said I want to avoid antibiotics he said ďThat it was considered mainstream and accepted medication for RosaceaĒ
    .
    Your dermatologist is quite right, for over fifty years, prescribing doxycycline, a form of tetracycline, has been the mainstream accepted medication for rosacea. However, your doctor simply isn't keeping up. Note this paper published in 2012:

    "it now seems clear that the role of antibiotics in patients with rosacea depends upon their anti-inflammatory rather than their antimicrobial properties." Source. Thus the emergence of Oracea (or Efracea in UK) or low dose doxycycline. Short term antibiotics for rosacea using LOW DOSE doxycycline is the new gold standard. Recent literature suggests that minocycline is just as effective as doxycycline. There are other reports using Rifaximin or azithromycin. However, many are concerned with the long term risks or the short term side effects and risks of taking antibiotics for rosacea. 100 mg of doxycycline is not low dose. 40 mg/day is considered low dose. If one has a bad case of rosacea, whether ocular or not, taking short term doxycycline may help clear up the issue. You, however, as the patient can decide whether to accept your dermatologist's recommended treatment or not.

    Many rosaceans are accepting probiotics for rosacea which is now an accepted medical treatment for rosacea.
    Brady Barrows
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