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Thread: Antibiotics

  1. #1
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    Default Antibiotics

    I’ve had my follow up at my dermatologist and he has again suggested Doxycycline 100mg for my eyes and skin.
    When I said I want to avoid antibiotics he said “That it was considered mainstream and accepted medication for Rosacea”

    I don’t know what to do as I’ve never actually tried antibiotics for Rosacea but I am scared coz my eyes have been swollen for about a year and a half. Does antibiotics take the burning and sensitivity away. I can’t use the zz cream and my skin is getting worse.
    Has anyone had success at remission with antibiotics if so which ones at what dose?
    I’m so scared they are going to make me sicker if I try them.
    I’m trying to get a prescription for oral ivermectin but they are making me out to be mad for wanting to try it.

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    Quote Originally Posted by Rubydo1 View Post
    I’ve had my follow up at my dermatologist and he has again suggested Doxycycline 100mg for my eyes and skin.
    When I said I want to avoid antibiotics he said “That it was considered mainstream and accepted medication for Rosacea”

    I don’t know what to do as I’ve never actually tried antibiotics for Rosacea but I am scared coz my eyes have been swollen for about a year and a half. Does antibiotics take the burning and sensitivity away. I can’t use the zz cream and my skin is getting worse.
    Has anyone had success at remission with antibiotics if so which ones at what dose?
    I’m so scared they are going to make me sicker if I try them.
    I’m trying to get a prescription for oral ivermectin but they are making me out to be mad for wanting to try it.
    Tell me again what all your symptoms are.

  3. #3
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    Quote Originally Posted by Momof View Post
    Tell me again what all your symptoms are.
    Burning in my stomach mouth and lips hands and feet with slight tremors .
    Eye lids constantly semi swollen swell up even more at night. Eyes very dry
    Skin struggles with even soap as skin reacts and is very dry. Rosacea and SD

  4. #4
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    I was on doxycycline and then minocycline for about 12 months a few years ago. It helped get my P&Ps under control (in combination with topical Metronidazole) but the biggest difference was on my eyes - doxy really works for ocular rosacea.

    As with any medicine, you need to weigh up and pros and cons of taking it. There are side effects and in my (non-doctor) opinion, I think it should only be used as a short term treatment to bring things under control

    EDIT: I should have noted, the effect on your ocular rosacea wears off once you come off the antibiotics. In my case my eyes probably started going downhill again about 3 months after I stopped taking the antibiotics.

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    Quote Originally Posted by Rubydo1 View Post
    Iíve had my follow up at my dermatologist and he has again suggested Doxycycline 100mg for my eyes and skin.
    When I said I want to avoid antibiotics he said ďThat it was considered mainstream and accepted medication for RosaceaĒ

    I donít know what to do as Iíve never actually tried antibiotics for Rosacea but I am scared coz my eyes have been swollen for about a year and a half. Does antibiotics take the burning and sensitivity away. I canít use the zz cream and my skin is getting worse.
    Has anyone had success at remission with antibiotics if so which ones at what dose?
    Iím so scared they are going to make me sicker if I try them.
    Iím trying to get a prescription for oral ivermectin but they are making me out to be mad for wanting to try it.
    Unless you want to be on antibiotics for the rest of your life, please find a different dermatologist. Terrible advice; typical treatment of the symptom and not the cause.
    How I was cured from Demodectic / Demodex Rosacea (Types 1 & 2 & nearing 3), Seborrhoeic Dermatitis and Eczema

    Got a smartphone? Then please post a non-revealing pic of your face/skin to www.imgur.com, instead of using walls of text to describe it to us. It may be the best thing you've ever done!

  6. #6
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    Quote Originally Posted by Rubydo1 View Post
    Burning in my stomach mouth and lips hands and feet with slight tremors .
    Eye lids constantly semi swollen swell up even more at night. Eyes very dry
    Skin struggles with even soap as skin reacts and is very dry. Rosacea and SD
    Your other symptoms, particularly the tremors, sound concerning.
    What types of investigations are you going to have to determine the cause?
    Derms don't understand much about internal medicine.
    You need to find a specialist who can run appropriate testing, at least to rule out autoimmunity and other diseases which require specialist treatment.

    You still have to address your dietary issues, no matter what.

    Why wash your face with soap? Just rinse it gently with tepid water. I never use cleanser on my face and even when I wash my hair, which is daily, I manage to just tip my head back a bit in the shower and most of the soap water runs away from my face.
    I should note, I don't wear makeup, so cleansers aren't necessary. Can you live without make up for a while? (assuming you wear it, which you may not).

    I wouldn't be taking doxy or any other antibiotic at this stage.
    Doxy is notorious for turning classic rosaceans into flushers.

    By the way, oral ivermectin has the potential to cause neurotoxicity. I had an adverse reaction to it, as well as metronizadole.(Drug from hell). Given you already have tremors, I would strongly caution you to avoid such drugs.
    I know people here are obsessed with demodex, but your symptoms are not reflective of a demodex issue and if you take ivermectin or any other drug out of desperation (and I have been there), you are putting yourself at risk for developing additional issues.

    Can you tolerate colostrum or whey, glutamine etc?
    What about home made jelly? I am just tossing around ideas to get some nutrition into you whilst giving the gut a rest. You'd need some carbs with protein sources though, otherwise you could start flushing.
    Last edited by Mistica; 17th February 2020 at 08:58 AM.
    Previous Numerous IPL.
    Supplements: Niacinamide, Vit K2, low D3, Moderate Dose Vit C, Iodine, Taurine, Magnesium. Very low dose B's. Low dose zinc (to correct deficiency).
    Skin Care: No Cleanser, ZZ cream mixed with Niacinamide gel 4% and LMW HA.

    Treating for gut dysbiosis under specialist care. (This is helping).
    Previous GAPS diet. Testing tolerance of resistant starch.
    Fermented Foods. 2 to 3 days per week, Intermittent fasting -16-18 hours.

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    Quote Originally Posted by Mistica View Post
    Your other symptoms, particularly the tremors, sound concerning.
    What types of investigations are you going to have to determine the cause?
    Derms don't understand much about internal medicine.
    You need to find a specialist who can run appropriate testing, at least to rule out autoimmunity and other diseases which require specialist treatment.

    You still have to address your dietary issues, no matter what.

    Why wash your face with soap? Just rinse it gently with tepid water. I never use cleanser on my face and even when I wash my hair, which is daily, I manage to just tip my head back a bit in the shower and most of the soap water runs away from my face.
    I should note, I don't wear makeup, so cleansers aren't necessary. Can you live without make up for a while? (assuming you wear it, which you may not).

    I wouldn't be taking doxy or any other antibiotic at this stage.
    Doxy is notorious for turning classic rosaceans into flushers.

    By the way, oral ivermectin has the potential to cause neurotoxicity. I had an adverse reaction to it, as well as metronizadole.(Drug from hell). Given you already have tremors, I would strongly caution you to avoid such drugs.
    I know people here are obsessed with demodex, but your symptoms are not reflective of a demodex issue and if you take ivermectin or any other drug out of desperation (and I have been there), you are putting yourself at risk for developing additional issues.

    Can you tolerate colostrum or whey, glutamine etc?
    What about home made jelly? I am just tossing around ideas to get some nutrition into you whilst giving the gut a rest. You'd need some carbs with protein sources though, otherwise you could start flushing.
    All auto immune came back negative. CT scan also negative.
    I had York tests done. I donít know how accurate these are but milk yeast and egg white sensitivityís came back.
    Iím not lactose intolerant or Gluten.
    Iím eating meat as stomach not great with veg so stick to low fodmap veg and fruit.
    Iím taking Zinc D3 and B COMPLEX
    I was taking a probiotic but Iím not sure they help.
    Itís my eyes Iím concerned about.
    I was making my own out bone broth out of ox tail or chicken but this often gives me bad guts.
    Which colostrum do you suggest? And can you take it if sensitive to milk ? Iím not sure if York Test Results can be trusted.

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    Quote Originally Posted by Rubydo1 View Post
    Burning in my stomach mouth and lips hands and feet with slight tremors .
    Eye lids constantly semi swollen swell up even more at night. Eyes very dry
    Skin struggles with even soap as skin reacts and is very dry. Rosacea and SD
    The burning of the hands and feet does sound like erythromelalgia - they are classic symptoms. As I suggested to you before, I would get a referral to Prof Denton at the Royal Free who is the UK expert in this condition.

    https://www.nhs.uk/conditions/erythromelalgia/

    I don't think you have to treat only for demodex mites, or exclude their treatment, they are simply an obvious part of treatment as 95% of adults have them and they are involved in the flushing process according to the latest research (Prof Powell, Dublin).

    If you don't want to travel to London you can find an erythromelalgia expert locally here:
    https://erythromelalgia.org/

    See 'Physician Directory' under Support.

    Allergy tests are not very accurate according to leading allergy experts - they give false positives and negatives. I would test yourself whether removing wheat, for example, helps you.

    I use the Efracea, which is very low dose Doxycyline 40mg - it's supposed to be below the dose of antibiotic to give an anti-inflammatory effect. I'd recommend this. But hydroxychloroquine etc can be more helpful. I wouldn't accept the 100mg doxycyline if you want to avoid the antibiotic effect. I agree doxycycline can be pretty helpful for rosacea of the eyes.
    Last edited by antwantsclear; 17th February 2020 at 01:37 PM.

  9. #9
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    Quote Originally Posted by antwantsclear View Post
    The burning of the hands and feet does sound like erythromelalgia - they are classic symptoms. As I suggested to you before, I would get a referral to Prof Denton at the Royal Free who is the UK expert in this condition.

    https://www.nhs.uk/conditions/erythromelalgia/

    I don't think you have to treat only for demodex mites, or exclude their treatment, they are simply an obvious part of treatment as 95% of adults have them and they are involved in the flushing process according to the latest research (Prof Powell, Dublin).

    If you don't want to travel to London you can find an erythromelalgia expert locally here:
    https://erythromelalgia.org/

    See 'Physician Directory' under Support.

    Allergy tests are not very accurate according to leading allergy experts - they give false positives and negatives. I would test yourself whether removing wheat, for example, helps you.
    I have cut dairy and wheat and sugar and yeas. Milk substitutes give me a sore throat so I’m struggling calcium wise. I’m thinking of reintroducing yoghurt. When I said to York Labs that I wasn’t lactose intolerant they said it was the protein in milk. But I really can’t find a dairy substitute that agrees with me.
    I’m waiting to see a specialist but it’s taking months. I’m at the dental hospital tomorrow for my burning mouth. I literally feel like a burns victim inside and out it a stupid situation.
    But my lips are shedding like mad.
    So how do you treat ocular Rosacea without antibiotics?
    Last edited by Rubydo1; 17th February 2020 at 01:41 PM.

  10. #10
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    Quote Originally Posted by Rubydo1 View Post
    I have cut dairy and wheat and sugar and yeas. Milk substitutes give me a sore throat so I’m struggling calcium wise. I’m thinking of reintroducing yoghurt. When I said to York Labs that I wasn’t lactose intolerant they said it was the protein in milk. But I really can’t find a dairy substitute that agrees with me.
    I’m waiting to see a specialist but it’s taking months. I’m at the dental hospital tomorrow for my burning mouth.
    This tea tree oil tooth paste has really helped me with mouth ulcers/burning:
    https://www.amazon.co.uk/Desert-Esse...NsaWNrPXRydWU=

    I find the probiotic, Symprove, helps me tolerate a little dairy every few days, together with Integrative Therapeutics Similase GFCF. I've never found a milk substitute that agrees with me either.

    The shaking is concerning - not sure a dermatologist is best placed to help with that symptom.

    What type of specialist are you waiting to see?

    Some people treat ocular rosacea with tea tree oil wipes.
    https://www.amazon.co.uk/Oust-Demode...1947197&sr=8-7
    Last edited by antwantsclear; 17th February 2020 at 01:50 PM.

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