Protopic magical for swelling

[Momof]

Just looking for advice on the best way to treat edema ( fluid build up). Pure neurogenic rosacea-absolutely no p&ps, no real flushing any more and nerve pain under control most of the time.
The edema is really bothering me though-my blood vessels must be leaking plasma etc all the time.
Has anybody here tried anti-inflammatories like Voltaren etc? Or anything else that works for swelling?
All advice welcome. I tried Protopic for a short time but it didn?t agree with my sensitive skin

[laser_cat]

Just looking for advice on the best way to treat edema ( fluid build up). Pure neurogenic rosacea-absolutely no p&ps, no real flushing any more and nerve pain under control most of the time.
The edema is really bothering me though-my blood vessels must be leaking plasma etc all the time.
Has anybody here tried anti-inflammatories like Voltaren etc? Or anything else that works for swelling?
All advice welcome. I tried Protopic for a short time but it didn?t agree with my sensitive skin

that's too bad about protopic - I just got elidel to try. Was told elidel was gentler by a doc. But ... probably won't agree with me either. I'm going to try applying to my jawline where al lot of the lymph nodes are

I'm on full dose doxy 100 mg BID now and it helps with my swelling (and flushing). My doc has gone back and forth with me on accutane - saying he thinks it can help but it might make me worse. He would only do a slow titration 10 mg / wk or so with me. He said that nsaid's, antibiotics, and accutane are the treatments for lymph buildup and sometimes he recommends lymph massage and custom face mask to wear overnight. Odd things I've found to help me (swelling) are clonazepam and benadryl.

Voltaren burned my skin just fyi

[Momof]

that's too bad about protopic - I just got elidel to try. Was told elidel was gentler by a doc. But ... probably won't agree with me either. I'm going to try applying to my jawline where al lot of the lymph nodes are

I'm on full dose doxy 100 mg BID now and it helps with my swelling (and flushing). My doc has gone back and forth with me on accutane - saying he thinks it can help but it might make me worse. He would only do a slow titration 10 mg / wk or so with me. He said that nsaid's, antibiotics, and accutane are the treatments for lymph buildup and sometimes he recommends lymph massage and custom face mask to wear overnight. Odd things I've found to help me (swelling) are clonazepam and benadryl.

Voltaren burned my skin just fyi

Thank you so much for that lasercat. Maybe I should continue with NSAIDs and see how it goes. I tried 100mg doxy 2 years ago and I don?t think it helped but maybe swelling wasn?t as big an issue for me then. It is difficult to remember!

[owldog]

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[Johndlwdbm]

Just looking for advice on the best way to treat edema ( fluid build up). Pure neurogenic rosacea-absolutely no p&ps, no real flushing any more and nerve pain under control most of the time.
The edema is really bothering me though-my blood vessels must be leaking plasma etc all the time.
Has anybody here tried anti-inflammatories like Voltaren etc? Or anything else that works for swelling?
All advice welcome. I tried Protopic for a short time but it didn?t agree with my sensitive skin

Have you ever tried accutane? I started at the beginning of November taking 5 mg twice a week, Monday and Friday, so total of 10mg a week. It has definitely started helping the swelling of my nose.
I never had any pustules or papules just flushing and swelling from the first day this started. In the morning before I could actually feel fluid under my skin if I gently press my nose in the morning. Classic edema. If it keeps helping I will go down to 5mg once a week. No side effects yet, only very, very slightly dry lips. No increase in redness or flushing.

[Momof]

Have you ever tried accutane? I started at the beginning of November taking 5 mg twice a week, Monday and Friday, so total of 10mg a week. It has definitely started helping the swelling of my nose.
I never had any pustules or papules just flushing and swelling from the first day this started. In the morning before I could actually feel fluid under my skin if I gently press my nose in the morning. Classic edema. If it keeps helping I will go down to 5mg once a week. No side effects yet, only very, very slightly dry lips. No increase in redness or flushing.

No I haven?t tried accutane but I think I will try a low dose. I am determined to get rid of the edema and I know it?s just a case of hitting on the right drug. I?m hoping to see a neurologist soon and would like to hear his thoughts on the swelling. This all started with nerve pain for me from vbeam treatment.