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Thread: Severe die off from zz after first use?

  1. #31
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    Quote Originally Posted by Rubydo1 View Post
    But you don’t get the spots or eye problems?
    My skin is compromised all over my body at the moment due to illness that I’m still trying to get to the bottom of.
    For me the spots are the easiest part of rosacea to treat really, with zinc (15mg per day), zhongzhou and diet. I had some tests done which show I have very low levels of inflammation in my body, which is probably because of the various treatments I use to keep the spots away! Once you have vascular damage, flushing is harder to control, but you can control it.

    What kind of skin symptoms are you getting on the rest of your body?

    What is would you typically eat for breakfast, lunch, dinner, snacks in a day?

    Symprove is so helpful if you're able to try it - should help with systemic issues across your body. You can buy a single bottle on Amazon, though not cheap. I take this before every main meal.

  2. #32
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    Quote Originally Posted by antwantsclear View Post
    For me the spots are the easiest part of rosacea to treat really, with zinc (15mg per day), zhongzhou and diet. I had some tests done which show I have very low levels of inflammation in my body, which is probably because of the various treatments I use to keep the spots away! Once you have vascular damage, flushing is harder to control, but you can control it.

    What kind of skin symptoms are you getting on the rest of your body?

    What is would you typically eat for breakfast, lunch, dinner, snacks in a day?

    Symprove is so helpful if you're able to try it - should help with systemic issues across your body. You can buy a single bottle on Amazon, though not cheap. I take this before every main meal.
    Right I have a multivitamin but thinking of going for individual vitamins.

    So you take a zinc tablet 15mg .

    My skin reacts to everything and is incredibly dry . I have rashes if I go out in the sun . Loose movements flushing in feet and hands and feet. Constantly sweating in my face. Constant tremors and shakes in hands and legs even tongue. Burning mouth and lips. Constant exfoliative cheilitis of lips. Burning nerve pain in fingers.

    Typical diet

    Breakfast
    porridge made with water with blueberries or oatabix

    Dinner
    brown rice turkey and veg or salmon and veg

    Tea
    roast chicken and veg (no gravy or sauce) or shepherds pie (no onions or garlic or gravy)
    Drinks mostly water or coconut water
    Milk substitute coconut milk
    No sugar
    No bread apart from occasional wrap
    No dairy
    Lowfodmaps diet

  3. #33
    Senior Member Brady Barrows's Avatar
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    Quote Originally Posted by Rubydo1 View Post
    My skin reacts to everything and is incredibly dry . I have rashes if I go out in the sun . Loose movements flushing in feet and hands and feet. Constantly sweating in my face. Constant tremors and shakes in hands and legs even tongue. Burning mouth and lips. Constant exfoliative cheilitis of lips. Burning nerve pain in fingers.
    Ruby,
    I apologize if you have mentioned this before and I missed it, but have you ruled out Erythromelalgia?
    Brady Barrows
    Blog - Join the RRDi



  4. #34
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    Quote Originally Posted by Brady Barrows View Post
    Ruby,
    I apologize if you have mentioned this before and I missed it, but have you ruled out Erythromelalgia?
    FCC96B57-3137-405E-B2AB-9EB47EB05716.jpg

    That’s my feet

    It has been mentioned to me so I took a picture and showed it the doctor and they said raynards.

    I’ve just looked at pics on internet. ( not a good idea ) lol

  5. #35
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    Quote Originally Posted by mirradodga View Post
    Honest opinion everyone, Do you think that ZZ cream can shrink/lessen the appearance of open pores ?

    Thanks
    MD
    Honest opinion from me is I simply do not know definitively. But I do think it helping my skin so much. I think my case of rosacea might be a little more related to internal issues. Specifically my gut health. My stomach health is very poor. I also admittedly do not eat particularly well. I am going to make an appointment with my GP in order to be referred to gastroenterologist Monday morning.

    I'm sure you've read my updates. My face is so soft and smooth from using ZZ cream. All flakiness and dryness gone. And to be honest with you that alone is worth using it. All traces of Seb derm are gone and I havent seen any P&Ps in weeks now. With the exception of the rare little superficial white head on my nose area. Which I attributed to more "die off". But seriously I can't stress enough how minor they are. Zz cream is doing wonders for my face. I apologise for ranting a bit here but here's my point..

    I think ZZ cream would havs healed my face much more dramatically at this point if I didn't have these internal issues. I think severe issues with my stomach maybe even immune system is causing my inflammation. I also have KP all over my arms and back. Makes me wonder if I'm not having some KP on my face with rosacea? Who knows. I don't get paid ridiculous amounts of money to figure this out. My dermatologist is useless. So all we can do as rosacea sufferers is patient and give a product an honest go. I won't honestly know what ZZ cream can do for my untill 90 days. So I take the vast improvement as a sign of better things to come. And if I had to bet I'd bet that my pores and redness will be reduced even more after 12 weeks is up.

  6. #36
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    Quote Originally Posted by Mothinrust View Post
    Honest opinion from me is I simply do not know definitively. But I do think it helping my skin so much. I think my case of rosacea might be a little more related to internal issues. Specifically my gut health. My stomach health is very poor. I also admittedly do not eat particularly well. I am going to make an appointment with my GP in order to be referred to gastroenterologist Monday morning.

    I'm sure you've read my updates. My face is so soft and smooth from using ZZ cream. All flakiness and dryness gone. And to be honest with you that alone is worth using it. All traces of Seb derm are gone and I havent seen any P&Ps in weeks now. With the exception of the rare little superficial white head on my nose area. Which I attributed to more "die off". But seriously I can't stress enough how minor they are. Zz cream is doing wonders for my face. I apologise for ranting a bit here but here's my point..

    I think ZZ cream would havs healed my face much more dramatically at this point if I didn't have these internal issues. I think severe issues with my stomach maybe even immune system is causing my inflammation. I also have KP all over my arms and back. Makes me wonder if I'm not having some KP on my face with rosacea? Who knows. I don't get paid ridiculous amounts of money to figure this out. My dermatologist is useless. So all we can do as rosacea sufferers is patient and give a product an honest go. I won't honestly know what ZZ cream can do for my untill 90 days. So I take the vast improvement as a sign of better things to come. And if I had to bet I'd bet that my pores and redness will be reduced even more after 12 weeks is up.
    Glad it working for you. Interestingly I too have KP on arms and legs.
    Plus I think that’s what my constantly shedding lips is I’m producing too much keratin.
    Because each day my lips shed but there’s new skin underneath. I’ve had this as long as I can remember.

    And yes Derms are useless. Unless they have rosacea themselves they have no idea.
    I had one Doc said “my nose was a bit red once and I gave up dairy and it went away.” Try giving dairy up.
    I haven’t had dairy for a year I still have rosacea. And the derm at the hospital said “I don’t know what you have, try washing your face with shampoo every day”. When it burns that much you struggling with tap water you just want to cry when you have waited months to hear a so called Derm doc who is being paid 60,000 a year who barely even looks at you give you advice like that.
    It’s definitely down to us to share our own experiences and research as we are definitely on our own with this disease there is no new developments or treatment being done. It’s been the same treatments for years. Same with SD.
    So yes what ever face washes,moisturisers,creams, supplements that help it’s up to us to share.
    There is so much on social media and the web aimed at rosacea suffers that doesn’t work and just wastes your money.
    Last edited by Rubydo1; 19th January 2020 at 03:48 PM.

  7. #37
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    Quote Originally Posted by Rubydo1 View Post
    Glad it working for you. Interestingly I too have KP on arms and legs.
    Plus I think that’s what my constantly shedding lips is I’m producing too much keratin.
    Because each day my lips shed but there’s new skin underneath. I’ve had this as long as I can remember.

    And yes Derms are useless. Unless they have rosacea themselves they have no idea.
    I had one Doc said “my nose was a bit one and I gave up dairy and it went away.” Try giving dairy up.
    I haven’t had dairy for a year I still have rosacea. And the derm at the hospital said “I don’t know what you have, try washing your face with shampoo every day”. When it burns that much you struggling with tap water you just want to cry when you have waited months to hear a so called Derm doc who is being paid 60,000 a year who barely even looks at you give you advice like that.
    It’s definitely down to us to share our own experiences and research as we are definitely on our own with this disease there is no new developments or treatment being done. It’s been the same treatments for years. Same with SD.
    So yes what ever face washes,moisturisers,creams, supplements that help it’s up to us to share.
    There is so much on social media and the web aimed at rosacea suffers that doesn’t work and just wastes your money.
    I think you should get a referral to Professor Chris Denton at the Royal Free Hospital in London who specialises in Raynauds and Erythromelalgia. He is the UK expert on this, and will do all sorts of tests to help you find some relief. He is especially familiar with Raynauds and erythromelalgia of the feet and systemic flushing across the body.

  8. #38
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    Quote Originally Posted by Rubydo1 View Post
    Right I have a multivitamin but thinking of going for individual vitamins.

    So you take a zinc tablet 15mg .

    My skin reacts to everything and is incredibly dry . I have rashes if I go out in the sun . Loose movements flushing in feet and hands and feet. Constantly sweating in my face. Constant tremors and shakes in hands and legs even tongue. Burning mouth and lips. Constant exfoliative cheilitis of lips. Burning nerve pain in fingers.

    Typical diet

    Breakfast
    porridge made with water with blueberries or oatabix

    Dinner
    brown rice turkey and veg or salmon and veg

    Tea
    roast chicken and veg (no gravy or sauce) or shepherds pie (no onions or garlic or gravy)
    Drinks mostly water or coconut water
    Milk substitute coconut milk
    No sugar
    No bread apart from occasional wrap
    No dairy
    Lowfodmaps diet
    I think it looks a fairly helpful diet except the rice - I would try swapping this with roast potatoes (with oil not butter) or boiled potatoes for 5 days and see if this helps. Rice is very inflammatory for me - potatoes aren't perfect but they are 80% better.

    You should only have to wait 2 months or so to see Prof Denton - you need to be specifically booked into his 'Scleroderma' clinic.

  9. #39
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    Quote Originally Posted by antwantsclear View Post
    I think it looks a fairly helpful diet except the rice - I would try swapping this with roast potatoes (with oil not butter) or boiled potatoes for 5 days and see if this helps. Rice is very inflammatory for me - potatoes aren't perfect but they are 80% better.

    You should only have to wait 2 months or so to see Prof Denton - you need to be specifically booked into his 'Scleroderma' clinic.

    Thanks, I doubt I can get to a London. Will have to try and find some closer. I’m skint at the moment.
    But what exactly does it come under medically ? I’m seeing an immunologist in June.

  10. #40
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    I think what they meant was it sounds like it could be some of the symptoms of a disease called Scleroderma. You need to get a doctor to check for this to make sure. We are guessing and it could be something else entirely. I had Raynaud's Syndrome/Disease and demodex but never had Scleroderma. For Raynaud's Syndrome its best to wear a hat and mittens or gloves and warm socks when going out in cold weather.

    My Raynaud's syndrome was caused by Guillain-Barré syndrome. Guillain-Barré syndrome is an autoimmune reaction where the body starts damaging its own nerve's myelin layer causing nerve damage. For me it was triggered by taking the antibiotic minocin (minocyclin) for my misdiagnosed "acne". Eventually the Raynaud's Syndrome/Disease seems to have gone away as my nerve's myelin coating healed. I already had demodex for years before all of this happened.

    There are a number of variations of Scleroderma. But the problems with your toes or fingers turning white could be either just Raynaud's Syndrome/Disease or could be caused by Scleroderma. Some forms of Scleroderma can cause gastrointestinal problems like gas, bloating, cramps, diarrhea or constipation. Some types of Scleroderma only cause skin problems but other may affect your connective tissue like ligaments, tendon, etc.

    Scleroderma results from an overproduction and accumulation of collagen in body tissues. Collagen is a fibrous type of protein that makes up your body's connective tissues, including your skin.

    Doctors don't know exactly what causes the abnormal collagen production to begin, but the body's immune system appears to play a role. Most likely, scleroderma is caused by a combination of factors, including immune system problems, genetics and environmental triggers.

    Demodex can get overpopulated when the immune system is down. Might be related or might not be.


    Good article on symptoms is here:
    https://www.mayoclinic.org/diseases-...s/syc-20351952

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