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Thread: Willing to try anything

  1. #11
    Senior Member Tom Busby's Avatar
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    I make these products, among others.

    Aqu*V*ve Hyaluronic Lotion, with climbazole.
    Label information: Distilled water, Caprylic/capric triglycerides, Niacinamide & dl-Panthenol (proVitamins), Olive squalane oil, Glycerin, Cetearyl alcohol 30/70 NF (thickener), Sodium hyaluronate, HMW, & Ceramide complex (skin texture improvement), Cholecalciferol, Tocophersolan, & Retinyl palmitate (Vitamins D, E & A), Piroctone olamine (anti-demodectic), Microcrystalline wax, Climbazole (antifungal), Ceteareth 20 & Glyceryl stearate (emulsifiers), OptiMSM, Isopropanol, Glyceryl caprylate, Phenoxyethanol, Benzoic acid, & Dehydroacetic acid (preservatives).

    Aqu*V*ve Hyaluronic Shampoo, Conditioner, and Shower Scrub, with climbazole.
    Label information: Distilled water, Decyl glucoside, Coco-betaine, Sodium cocoamphoacete, & Sodium lauryol sarcosinate, (surfactants), Niacinamide & dl-Panthenol (proVitamins), Glycerin, Olive squalane oil, Acrylates C10-30 crosspolymer, Sodium hyaluronate, HMW, & Ceramide complex, (skin texture improvement), Piroctone olamine (anti-demodectic), Climbazole (antifungal), Cholecalciferol, Tocophersolan & Retinyl Palmitate (Vitamins D, E, & A), PEG-8 dimethicone (hair conditioner), Sodium carbomer, Citric acid, Di-PPG-2 myreth-10 adipate (solubilizer), OptiMSM, Isopropanol, Glyceryl Caprylate, Methylene blue, Phenoxyethanol, Benzoic acid, & Dehydroacetic acid (preservatives).

    My products are unique, which is why I make them and use them myself. I can provide you with more information if you send me an email, to busbylaw@cox.net

  2. #12
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    Quote Originally Posted by Tom Busby View Post
    I make these products, among others.

    Aqu*V*ve Hyaluronic Lotion, with climbazole.
    Label information: Distilled water, Caprylic/capric triglycerides, Niacinamide & dl-Panthenol (proVitamins), Olive squalane oil, Glycerin, Cetearyl alcohol 30/70 NF (thickener), Sodium hyaluronate, HMW, & Ceramide complex (skin texture improvement), Cholecalciferol, Tocophersolan, & Retinyl palmitate (Vitamins D, E & A), Piroctone olamine (anti-demodectic), Microcrystalline wax, Climbazole (antifungal), Ceteareth 20 & Glyceryl stearate (emulsifiers), OptiMSM, Isopropanol, Glyceryl caprylate, Phenoxyethanol, Benzoic acid, & Dehydroacetic acid (preservatives).

    Aqu*V*ve Hyaluronic Shampoo, Conditioner, and Shower Scrub, with climbazole.
    Label information: Distilled water, Decyl glucoside, Coco-betaine, Sodium cocoamphoacete, & Sodium lauryol sarcosinate, (surfactants), Niacinamide & dl-Panthenol (proVitamins), Glycerin, Olive squalane oil, Acrylates C10-30 crosspolymer, Sodium hyaluronate, HMW, & Ceramide complex, (skin texture improvement), Piroctone olamine (anti-demodectic), Climbazole (antifungal), Cholecalciferol, Tocophersolan & Retinyl Palmitate (Vitamins D, E, & A), PEG-8 dimethicone (hair conditioner), Sodium carbomer, Citric acid, Di-PPG-2 myreth-10 adipate (solubilizer), OptiMSM, Isopropanol, Glyceryl Caprylate, Methylene blue, Phenoxyethanol, Benzoic acid, & Dehydroacetic acid (preservatives).

    My products are unique, which is why I make them and use them myself. I can provide you with more information if you send me an email, to busbylaw@cox.net
    Hi how can we buy them I pm my email

  3. #13
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    Quote Originally Posted by Chai View Post
    Other than the Type 2 symptoms I had at the beginning, everything is probably worse than it was 2 years ago. Well. Maybe at baseline it’s better but the problem is I’m rarely at baseline. I’m flushing and/or in pain for large portions of the day.

    So I have time coming up where I will be off work and would be willing to try anything. I’m sick of being controlled by this- what I eat, drink, lack of exercise, socializing, etc. is all affected and if I can’t get some kind of handle on it I might just be at the point I quit working (a job I used to love).

    So throw your weirdest or most drastic ideas at me to investigate... I have tried all the standard medications.
    If you're willing to try anything and have an open mind, I would throw traditional Chinese medicine into the potential pile of options. A reputable practitioner should be able to achieve good results / improvement if you are willing to commit to taking regular herbal supplements. I've done quite a bit of research into this lately - if you're interested, PM me and I can share what I've found.

  4. #14
    Senior Member laser_cat's Avatar
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    Just want to update this - Saw my derm who said accutane probably could not help with neurally-mediated processes. It is great for swelling on the face if it presents by itself, but it likely won't even be able to target the swelling part of things if it comes from a neurally-mediated process. (Think there was a miscommunication in our messaging where I thought he had thought it was something to consider.)

    Something maybe nutty is capsaicin nasal spray. I'm trying it and it's early days but it definitely helps at least partially. The initial burning for me is ~1 min and it does not cause flushing for me (topical form will). Goal is to desensitize the trigeminal pathway. Some reports saying nasal capsaicin can help migraine, cluster headache, neurogenic / non allergic rhinitis, congestion. My flushing/burning onset happened after a series of migraines

    anyway thought i'd pass that along about accutane since i had mentioned it earlier

  5. #15
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    Quote Originally Posted by laser_cat View Post
    Just want to update this - Saw my derm who said accutane probably could not help with neurally-mediated processes. It is great for swelling on the face if it presents by itself, but it likely won't even be able to target the swelling part of things if it comes from a neurally-mediated process. (Think there was a miscommunication in our messaging where I thought he had thought it was something to consider.)

    Something maybe nutty is capsaicin nasal spray. I'm trying it and it's early days but it definitely helps at least partially. The initial burning for me is ~1 min and it does not cause flushing for me (topical form will). Goal is to desensitize the trigeminal pathway. Some reports saying nasal capsaicin can help migraine, cluster headache, neurogenic / non allergic rhinitis, congestion. My flushing/burning onset happened after a series of migraines

    anyway thought i'd pass that along about accutane since i had mentioned it earlier
    Thanks for this feedback. Any luck with the nasal spray?

    I tried several things at once and saw improvement but today I woke up fine and then just turned bright red and all of the things I have been doing don’t seem to be very effective. It’s so frustrating to feel like you are making progress and figuring out a way to live with this and then to have it all go to hell again. I really think mine is hormonal in part-I think I’m going to go back to my gynecologist and see if she has suggestions...

  6. #16
    Senior Member laser_cat's Avatar
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    Quote Originally Posted by Chai View Post
    Thanks for this feedback. Any luck with the nasal spray?

    I tried several things at once and saw improvement but today I woke up fine and then just turned bright red and all of the things I have been doing don’t seem to be very effective. It’s so frustrating to feel like you are making progress and figuring out a way to live with this and then to have it all go to hell again. I really think mine is hormonal in part-I think I’m going to go back to my gynecologist and see if she has suggestions...
    I stopped the nasal spray for now, not for any real reason, just ran out. I think my symptoms are best handled with (something like) botox, cymbalta, low dose propranolol, mexiletine. (Note I was on all of these during nasal capsaicin) If you're like me you're best when hormones are lowest + constant - I tried nuvaring with very small positive result in the past. Lupron (to induce menopause) was suggested by obgyn and again by derm but I was told comes with the risk of hot flashes (and I'd need to add low dose hormones back in for bone health). Other than low dose birth control and lupron, obgyn couldn't exploit hormonal patterns for me in anyway.

  7. #17
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    Quote Originally Posted by laser_cat View Post
    I stopped the nasal spray for now, not for any real reason, just ran out. I think my symptoms are best handled with (something like) botox, cymbalta, low dose propranolol, mexiletine. (Note I was on all of these during nasal capsaicin) If you're like me you're best when hormones are lowest + constant - I tried nuvaring with very small positive result in the past. Lupron (to induce menopause) was suggested by obgyn and again by derm but I was told comes with the risk of hot flashes (and I'd need to add low dose hormones back in for bone health). Other than low dose birth control and lupron, obgyn couldn't exploit hormonal patterns for me in anyway.
    Did the nasal spray help in any way. Clearly not a game changer if you aren’t getting more.

    I think Botox helps me some. I’m going again next week for that. Yes, I’m best at the start of my cycle when all hormones are low but not sure how get to that point.

  8. #18
    Senior Member laser_cat's Avatar
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    Quote Originally Posted by Chai View Post
    Did the nasal spray help in any way. Clearly not a game changer if you aren’t getting more.

    I think Botox helps me some. I’m going again next week for that. Yes, I’m best at the start of my cycle when all hormones are low but not sure how get to that point.
    Nasal helped most in the beginning and then effectiveness waned quite a bit

    hopefully another botox round will help you. I notice increasing benefit (baby steps) w/ each round of injections until things plateau after ~4 consecutive injection rounds. (I missed a round of injections last yr, and it took many months to get back to where I was)

  9. #19
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    My experience with nasal sprays is that they can damage the vessels in the nose - i.e. they reduce the elastacity of the nasal blood vessels, with use over time. Which can lead to rosacea or the worsening of rosacea. The manipulation of the nasal blood vessels is actually part of the function of these nasal sprays, but then they are only intended for short term use usually, whereas with rosacea we need things that can be used over time.

  10. #20
    Senior Member Brady Barrows's Avatar
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    Have you tried the ZZ Cream?
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