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Thread: Successfully treating my seb derm after 18 years of failure

  1. #1
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    Default Successfully treating my seb derm after 18 years of failure

    I've had Seborrheic Dermatitis for about 18 years now, ever since I took Accutane. Accutane also gave me: Rosacea, hairloss, folliculitis, GERD, stomach ulcers, halitosis, dry eyes, eye floaters, and probably more that I'm forgetting... oh yeah, and brain fog.

    All these problems suck but the seb derm never fails to frustrate me. I try to remove a flake off my face and end up creating 10 more in its place. I can get my face looking clear of flakes and then 2 hours later have a bunch return just from the movement of facial expressions. Ugh.

    I've tried a million things, including putting coconut oil on my face, which just feeds malassezia so I don't know what my thinking was there.

    Anyway, my seb derm started to get a whole lot worse the past two years and was driving me nuts. I never used to get that much on my forehead (mainly nose and cheeks) but it seemed to have spread badly all of a sudden after about 16 years of predictability.

    I've always known that diet has a big effect on it but the only way I knew to clear it was to eat like a prisoner of war and consume only rice and water. Out of the hundreds of ingredients in the foods I ate, I had no idea what was causing problems. But if food is really tied to seb derm for me, and my skin was getting far worse, this was an opportunity to finally figure out what was behind this.

    About 2 years ago, when the problems slowly started to get worse, coincided with when I decided to try and lose a lot of weight by eating a high protein diet. Being from Canada, I loved Tim Hortons and found myself eating from there twice a day, consuming chicken bacon ranch wraps and bacon and egg wraps with chipotle sauce. I'd also drink a giant can of Redbull at every lunch. Looking back, I started to realize that the bacon, eggs, chipotle and cheddar either contain a lot of histidine, histamine, or act as a histamine liberator. All the caffeine in the Redbull is a problem too - caffeine blocks the Diamine Oxidase (DAO) enzyme which is responsible for breaking down histamine in your gut. Eating tons of histamine or histamine liberators + something that blocks DAO = very bad.

    I seem to have excess histamine in my system and believe that I may have Mast Cell Activation Syndrome which is basically lots of things can trigger my mast cells to release histamine and a bunch of other inflammatory stuff. But I've also long believed I have SIBO. SIBO is heavily tied to excess histamine as there are many gut bacteria that can convert histidine in foods into histamine.

    So I decided to try a lower histamine diet and bought an OTC antihistamine (Reactine) and not only has it dramatically reduced my seb derm but also every other side effect from Accutane I listed above (with the possible exception of hair loss, but we'll see because mast cells not only release histamine, but prostaglandin d2, which is a major part of balding).

    I've now ordered a mast cell stabilizer from Japan and a DAO supplement and will see if that helps things even more. I've also ordered a zinc pyrithione soap to try on my face since I read a study that found people with seb derm had over twice as much histamine in their skin compared to regular people and that zinc pyrithione brought the histamine down to the proper level: https://www.ncbi.nlm.nih.gov/pubmed/21336476

    Anyway, histamine could be another angle to be aware of if you find food has an affect on your seb derm. Or if your seb derm improves in a different climate, that might be because your total amount of histamine in your body has lessened from less allergens in your environment.

  2. #2
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    what is the mast cell stabilizer you have ordered ? im in a similar situation to you - i suspect a few years ago i caught something that gave me SIBO and damaged my guts ...

    i then developed bad seb derm , random flushing , redness etc

    ive hopefully got rid of the SIBO through antibiotics - rifaxamin and neomycin ( 3 courses so far ) and now dont have any seb derm at all , but i now flush every time i eat cooked food , especially at night . this to me obviously points towards a stomach problem and im due to see a specialist soon .

    i want to try sodium cromolyn as a mast cell stabilizer as it is used to stop flushing from food but its extremely expensive and i dont think my useless doctor would prescribe it ...

    is what you ordered a herbal remedy or a recognised medicine ?

  3. #3
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    Quote Originally Posted by boris View Post
    what is the mast cell stabilizer you have ordered ? im in a similar situation to you - i suspect a few years ago i caught something that gave me SIBO and damaged my guts ...

    i then developed bad seb derm , random flushing , redness etc

    ive hopefully got rid of the SIBO through antibiotics - rifaxamin and neomycin ( 3 courses so far ) and now dont have any seb derm at all , but i now flush every time i eat cooked food , especially at night . this to me obviously points towards a stomach problem and im due to see a specialist soon .

    i want to try sodium cromolyn as a mast cell stabilizer as it is used to stop flushing from food but its extremely expensive and i dont think my useless doctor would prescribe it ...

    is what you ordered a herbal remedy or a recognised medicine ?
    The mast cell stabilizer I ordered was oral Ketotifen. It seems to get better reviews than Cromolyn. I think Cromolyn works only in the gut whereas Ketotifen works everywhere. Ketotifen is prescription only in Canada but not in Japan.

    I would actually use natural mast cell stabilizers like quercetin, rutin, luteolin, vitamin c, etc. but I'm afraid I may be allergic to the phenols they contain. Quercetin is actually better than Cromolyn apparently: https://www.ncbi.nlm.nih.gov/pubmed/22470478 so you could just pop by a grocery store or pharmacy and pick some up cheap to try.

    But if your flushing is from the histamine you're eating you might benefit more from a DAO supplement than a mast cell stabilizer. You might not have much of a mast cell problem if your flushing is from histamine related foods. What are you eating that makes you flush?

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    im already taking quercetin and using a DAO supplement , along with digestive enzymes , at every meal but they dont really seem to have much effect .

    for me its not what i eat its how much - and if its warm or not !

    for instance if i eat anything warm and larger than the size of a tennis ball i will flush on my face and it will last for a few hours so i only tend to eat cooked food when im at home at night and nobody can see me ...

    usually im ok with cold foods ie a salad or a sandwich doesnt cause much of a problem

    ive noticed that certain food and drink causes certain types of flush - coffee in a morninig causes a red patch on my forehead brtween my eyebrows for instance !

    other foods cause flushing on just one cheek , or flushing around my chin and neck...

    ive trien going gluten , dairy and wheat free for about 6 months now and the only difference its made is to my wallet as stuff is so damn expensive

    also , taking antihistamines does nothing to help or stop this for me .

    i will look into what youve ordered , thanks
    Last edited by boris; 15th July 2019 at 05:52 AM.

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    ive just realised im actually taking this myself !

    its called asthafen and i actually started taking it to clear up my blocked nose - it works for that but does nothing for food related flushing ...

    ive been using it for about 6 months now - get it from united pharmacies and its fairly cheap and they post it in a way that means you dont pay import charges - may be cheaper than the japanese stuff ?

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    I'm not sure if that is the same but I started taking Buscopan (Butylscopolaminiumbromid) as it really helped me with my stomach months ago. And now my seb derm is worse I will be on that quite some time and see if it makes a difference. As well ACV.

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    Quote Originally Posted by boris View Post
    ive just realised im actually taking this myself !

    its called asthafen and i actually started taking it to clear up my blocked nose - it works for that but does nothing for food related flushing ...

    ive been using it for about 6 months now - get it from united pharmacies and its fairly cheap and they post it in a way that means you dont pay import charges - may be cheaper than the japanese stuff ?
    The Japanese stuff I ordered is pretty cheap - $19.

    What kind of hot meals are you eating in the evening? Maybe it's the heat and size of the meal but you never know, could also be an ingredient that's causing problems.

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    Quote Originally Posted by opare View Post
    I'm not sure if that is the same but I started taking Buscopan (Butylscopolaminiumbromid) as it really helped me with my stomach months ago. And now my seb derm is worse I will be on that quite some time and see if it makes a difference. As well ACV.
    That's an antispasmodic, not an antihistamine. If you have SIBO for example, that could easily make things worse as antispasmodics slow down motility for a period of time. The number one factor behind developing SIBO is poor motility. Dr. Mark Pimentel, the leading researcher in SIBO, says the only real way to get rid of SIBO is through fixing motility. A lot of people take antibiotics but that's not addressing the underlying cause and is mostly to speed up the treatment process, it's not often a cure.

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    Quote Originally Posted by xcvq View Post
    That's an antispasmodic, not an antihistamine. If you have SIBO for example, that could easily make things worse as antispasmodics slow down motility for a period of time. The number one factor behind developing SIBO is poor motility. Dr. Mark Pimentel, the leading researcher in SIBO, says the only real way to get rid of SIBO is through fixing motility. A lot of people take antibiotics but that's not addressing the underlying cause and is mostly to speed up the treatment process, it's not often a cure.
    agreed

  10. #10
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    Quote Originally Posted by xcvq View Post
    That's an antispasmodic, not an antihistamine. If you have SIBO for example, that could easily make things worse as antispasmodics slow down motility for a period of time. The number one factor behind developing SIBO is poor motility. Dr. Mark Pimentel, the leading researcher in SIBO, says the only real way to get rid of SIBO is through fixing motility. A lot of people take antibiotics but that's not addressing the underlying cause and is mostly to speed up the treatment process, it's not often a cure.
    I do think there is something in this. When I have had antibiotics in the past I have always had burning in my bowel on the left hand side. This time after antibiotics if came higher up in my guts and I have gastritis.
    Unfortunately the foods to eat on SIBO I canít eat because of diverticulosis disease. So not sure I can fix it x

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