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Thread: PDL Recovery Tips?

  1. #11
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    Quote Originally Posted by Chai View Post
    The only problem is I have tried the medications and none have worked. This dr did suggest them but Iím already on them or have tried them. She isnít pushing more laser at the moment- I just am skeptical that all of this will clear on its own. But maybe I just have to be patient and wait like a month or something crazy. Sigh.
    From my experience, you have to try several medications to find the right combination. Just because two or three don't work, doesn't mean others won't. For example, some people are finding LDN very helpful when other medicines didn't help. There really is a long list of medicines which help different people in different combinations: clonidine, moxonodine, atenolol, propranolol, mirtazapine, anti-histamines, probiotics (Symprove helps me a lot), pregabalin, gabapentin, hydroxychloroquine, mepacrine... You often need a combination, not just one, to really control the flushing. But you also need to make dietary adjustments as well to really control flushing. Laser or IPL sometimes seems like a quicker option, but persisting to find the right medicines may be more rewarding.

  2. #12
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    Although I am a pain-sensitized patient, I think for refractory flushers who might not be pain-sensitized, they might also benefit from agents that target the neuronal control of blood vessels.

    I think ramping up on something like cymbalta and sticking with propranolol for at least a month, might be helpful for you.

    I hate that laser did not seem to be what you were hoping for + hope that you heal with time.

  3. #13
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    Quote Originally Posted by laser_cat View Post
    Although I am a pain-sensitized patient, I think for refractory flushers who might not be pain-sensitized, they might also benefit from agents that target the neuronal control of blood vessels.

    I think ramping up on something like cymbalta and sticking with propranolol for at least a month, might be helpful for you.

    I hate that laser did not seem to be what you were hoping for + hope that you heal with time.
    Thank you! I have tried instant release propranolol 5 different times (I wanted to give it more chances) and every time I end up with red splotches. I havenít tried Cymbalta- just Effexor, celexa, mirtazapine, and Trintellix for antidepressants. Maybe something else. I canít find someone to prescribe hydroxychloroquine...

    Iím still healing. Maybe PDL will help in the end but so far I still look worse than before trying it and it hasnít reduced flushing yet. It did seem to get rid of a birthmark that has been more red since I got rosacea, so thereís one positive!

  4. #14
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    I had Vbeam on November 15th. It is now 28th January and my face still has not healed. I had faint red blotches on my face as a result of the laser, although I hope it continues to fade.

    This is my third treatment and there seems to be general agreement that healing takes longer each time. Honestly, my face looks worse now than it did before I had treatment.

    3 months seems to be recommended as the total healing time and to see how the laser was or was not effective. I'm wondering if I should give it a bit longer than 3 months before I contact the laser doc to ask for help/advice.

    Something I should point out is that I used a moisturiser recently that BURNED my face badly and created brand new red marks. I'm worried I've somehow halted the healing with this vasodilating interruption. The moisturiser is one I've used for years by Lacura (claiming 0% alcohol, no burning) but it was a new tube. Must've been a new formulation.

    Anyway, a few days is nowhere near enough to see a resolution. I find many laser doctors to be utterly misleading when they tell people there will only be a few days of downtime. It's nothing of the sort.
    I'm recovering from Mirvaso-induced skin damage. Ask me about it if you are too.



    T-Shirt: "Laser skin treatment. That's what it is if you're wondering. Yes, it hurt."

  5. #15
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    [QUOTE=darren1;352218]I had Vbeam on November 15th. It is now 28th January and my face still has not healed. I had faint red blotches on my face as a result of the laser, although I hope it continues to fade.

    This is my third treatment and there seems to be general agreement that healing takes longer each time. Honestly, my face looks worse now than it did before I had treatment.

    3 months seems to be recommended as the total healing time and to see how the laser was or was not effective. I'm wondering if I should give it a bit longer than 3 months before I contact the laser doc to ask for help/advice.

    Something I should point out is that I used a moisturiser recently that BURNED my face badly and created brand new red marks. I'm worried I've somehow halted the healing with this vasodilating interruption. The moisturiser is one I've used for years by Lacura (claiming 0% alcohol, no burning) but it was a new tube. Must've been a new formulation.

    Anyway, a few days is nowhere near enough to see a resolution. I find many laser doctors to be utterly misleading when they tell people there will only be a few days of downtime. It's nothing of the ]


    My observation is that most people end up disappointed with laser, even when they find the first few treatments helpful. Eventually, they have a bad treatment and wish they'd never started it.

  6. #16
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    I agree with your comment about vbeam. I was initially delighted with it ( eradicated a few broken veins) but it eventually ruined my skin and turned it into the hot, swollen, stinging nightmare it is now.

  7. #17
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    I also think that lasers are a mistake. The first treatments kind of supported but later it was only worse and final and I think that they damaged the skin more.

  8. #18
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    Quote Originally Posted by darren1 View Post
    I had Vbeam on November 15th. It is now 28th January and my face still has not healed. I had faint red blotches on my face as a result of the laser, although I hope it continues to fade.

    This is my third treatment and there seems to be general agreement that healing takes longer each time. Honestly, my face looks worse now than it did before I had treatment.

    3 months seems to be recommended as the total healing time and to see how the laser was or was not effective. I'm wondering if I should give it a bit longer than 3 months before I contact the laser doc to ask for help/advice.

    Something I should point out is that I used a moisturiser recently that BURNED my face badly and created brand new red marks. I'm worried I've somehow halted the healing with this vasodilating interruption. The moisturiser is one I've used for years by Lacura (claiming 0% alcohol, no burning) but it was a new tube. Must've been a new formulation.

    Anyway, a few days is nowhere near enough to see a resolution. I find many laser doctors to be utterly misleading when they tell people there will only be a few days of downtime. It's nothing of the sort.
    ***************

    Sorry, to hear that it is not going so well, as last year you seemed to be making good progress.

    I was thinking of making an appointment to see Anand Patel in Nottingham, as my life is just being wasted whilst my skin is burning
    up at times. I saw a doctor at City hospital in Birmingham in 2018 and I had no confidence in his ability. I asked to meet with other
    patients, so I could confirm they were happy with the treatment and they provided no support. You may as well fly abroad, as my experience
    was that the doctors would provide no after care at the NHS. I said in 2018, if there are happy patients then surely i could speak with one of them!
    After this depressing experience (one of many with the NHS) I felt that your youtube videos provided some hope.

    I would like to thank you for making your candid youtube videos of your V beam laser treatment and I believe you deserve some of the
    £350 million a week from Brexit and not the untrustworthy people employed by the NHS.

  9. #19
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    Quote Originally Posted by aguycalledphil View Post
    ***************

    Sorry, to hear that it is not going so well, as last year you seemed to be making good progress.

    I was thinking of making an appointment to see Anand Patel in Nottingham, as my life is just being wasted whilst my skin is burning
    up at times. I saw a doctor at City hospital in Birmingham in 2018 and I had no confidence in his ability. I asked to meet with other
    patients, so I could confirm they were happy with the treatment and they provided no support. You may as well fly abroad, as my experience
    was that the doctors would provide no after care at the NHS. I said in 2018, if there are happy patients then surely i could speak with one of them!
    After this depressing experience (one of many with the NHS) I felt that your youtube videos provided some hope.

    I would like to thank you for making your candid youtube videos of your V beam laser treatment and I believe you deserve some of the
    £350 million a week from Brexit and not the untrustworthy people employed by the NHS.
    Thanks. I'm going to wait until the three month mark before I reach any conclusions about the efficacy of my third treatment.
    I'm recovering from Mirvaso-induced skin damage. Ask me about it if you are too.



    T-Shirt: "Laser skin treatment. That's what it is if you're wondering. Yes, it hurt."

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