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Thread: Advice Please - Burning Without Flushing

  1. #11
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    Quote Originally Posted by pjc5150 View Post
    Thank you so much CountryGirl.
    Fantastic advice!

    Is Dr Chu good? He is one of the specialists we might be seeing.
    When you say your rosacea has developed, what do you mean?

    My partner has been stared on Citalopram so hopefully it will help

    Peter x
    Hi Peter,

    It really does take a good month or so for Citalopram to kick in, so tell her to hang in there. I was in pain 24/7 and it was unbearable....I had no life, it was miserable.

    I have seen Prof Chu many times, he is very good, and worth a visit.

    There is a chap on this forum called burner, he also has facial pain, maybe look his posts up.

    Weirdly when I had the most pain I was quite pale, now I’m red with lumpy bumpy skin, open pores etc...but I’m working on it.

    I presume your girlfriend has had numerous blood tests for lupus etc...and is not on birth control pills, sometimes they can cause all sorts of symptoms.

    All the best.

  2. #12
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    Bless you.
    I sincerely hope you find something that works for you but I’m glad you’re no longer in pain.

    I think if we can control the pain she’d get back some quality of life

    She’s had bloods drawn and we have a review with the local dermatologist on the 26th.

    I think we are going to arrange a consultation with Dr Chu tommorow. See if we can get an appt sorted out. He seems to be held in quite high regard

    Thank you again for all of your advice, and I’ll be sure to look up the Chap here on the forum

    Thanks again x


    Sent from my iPhone using Tapatalk

  3. #13
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    Furthermore,

    I think she’s worried about the colour and texture of her face changing. She’s had no redness as of yet and I genuinely can’t see any flushing... even when she believes there is.

    I’ve reassured her that everyone is different, and we don’t even know for sure that it is infect rosacea yet.

    My poor girl has got herself in such a state over this. I’m positive that with some medication and advice we can turn things around

    x


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  4. #14
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    Quote Originally Posted by pjc5150 View Post
    Hi Judworth!

    I shall read that now my friend, thank you

    We are based in North East Lincolnshire in the UK. A small town called Cleethorpes/Grimsby. Not sure if you are aware of it?

    Regards,
    Peter
    Morning Peter,

    You are most welcome!

    Yes, I know where you are!

    I have had rosacea for 15 years, no derm, doctor could help me, LDN has knocked my nerve pain down by 85/90%...............not a cure but WOW!!

    What a nice guy you are supporting your partner, that kind of support is invaluable!

    Good luck!

    J
    SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA.


    *Vit D3,Theratears Omega 3.



    *LDN since October 2018.

    *REN skincare range. TARTE cosmetics.

    *Tried Clonidine, Moxonidine & Atenolol (None being taken at present ).

    *Yearly IPL treatments until 2009.

    * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).

    * Use Optimel & Ilast cream for MGD Ocular rosacea.

    History of Hyperthyroidism (Graves) Lichen Planus (oral)
    PROUD TO BE DIFFERENT






    .

  5. #15
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    Thank you so much for the reply, I really appreciate it

    That sounds fantastic!
    I hear a lot of doctors are reluctant to prescribe it?

    Did you or do you have any of the flushing my friend? Or is your complexion ‘normal’ and you just have the tingling?


    That’s very kind of you to say. I love my girlfriend and it pains me to see her like this. I have a history of depression so I can relate to how down she is feeling. I wouldn’t wish it on anybody

    Thank you again,
    Pete x


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  6. #16
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    Quote Originally Posted by pjc5150 View Post
    Thank you so much for the reply, I really appreciate it

    That sounds fantastic!
    I hear a lot of doctors are reluctant to prescribe it?

    Did you or do you have any of the flushing my friend? Or is your complexion ‘normal’ and you just have the tingling?


    That’s very kind of you to say. I love my girlfriend and it pains me to see her like this. I have a history of depression so I can relate to how down she is feeling. I wouldn’t wish it on anybody

    Thank you again,
    Pete x


    Sent from my iPhone using Tapatalk
    I had mild flushing in the early days; but looking back it was the pain that was intolerable!

    Even two expensive & hope-filled visits to Prof Chu did no good. sadly he prescribed meds that made me worse and didn't recognise neuropathic rosacea!

    You can get LDN after a telephone consultation (just need proof of rosacea diagnosis) and a chemist in Glasgow will makeup & send the subscription.

    My partner has been amazing too................

    J
    SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA.


    *Vit D3,Theratears Omega 3.



    *LDN since October 2018.

    *REN skincare range. TARTE cosmetics.

    *Tried Clonidine, Moxonidine & Atenolol (None being taken at present ).

    *Yearly IPL treatments until 2009.

    * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).

    * Use Optimel & Ilast cream for MGD Ocular rosacea.

    History of Hyperthyroidism (Graves) Lichen Planus (oral)
    PROUD TO BE DIFFERENT






    .

  7. #17
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    LDN is easy to obtain from the LDN trust website - they will direct you to a local doctor and pharmacy. Otherwise if you are in the UK, you can contact Dickson Chemist in Glasgow and they will arrange a phone appointment for you with a GP and send you the medicine. It is not that expensive compared to most private medicine - around £40 for the consultation and the medication. For me, LDN is quite helpful, but certainly not sufficient to treat the rosacea. There are a wide range of anti-flushing medications, and dermatologists tend to begin with those with the lowest side effects first, so it's important to be patient and keep being persistent in asking to try new options.
    Last edited by antwantsclear; 3rd March 2019 at 12:41 PM.

  8. #18
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    Hi Pete, I am currently dealing with the same thing as your partner. My heart goes out to her and I totally feel her pain. How is she doing now? Has she able to find any solutions? Please update, much appreciated!

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