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Thread: Burning without flushing

  1. #11
    Senior Member ladycappuccino's Avatar
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    Quote Originally Posted by Dan3dwards View Post
    Seems really strange that your doctor says it is a dangerous drug?! A few well known television doctors in the UK are saying it is one of the safest drugs out there. Have you tried contacting this clinic in the UK?

    Clinic 158
    Courtney - Medical Receptionist
    Tel: 0141 404 6255
    Opening hours: 9am - 5pm Monday to Friday

    This is where I get my prescription of LDN from, might be worth contacting them.
    Please, don't even get me started...It was a complete waste of time. The doctors here are very incompetent. And very conventional. And very busy. He was checking his wristwatch all the time. I am so tired of this.

  2. #12
    Senior Member ladycappuccino's Avatar
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    Quote Originally Posted by Judworth View Post
    Hello Lena

    How crazy!! The maximum dose for LDN is 4.5 mg................my GP wouldn't prescribe it as it is unlicensed but thankfully I too obtain it through Dickinsons Chemist in Glasgow.

    The GP's are happy to prescribe 'other' licensed medications that have far worse side effects and are ineffective!

    Hope that you can get it sorted my friend!

    J
    Oh J,
    I think there's nothing much I can do. He said he has never heard of treating neuropathic pain and autoimmune disorders with LDN. He proposed me steroids instead!!!! He also said that I exaggerate and that thyroid problems have no impact whatsoever on people's life (!!!!!!!!!). And, a cherry on the top, he claimed that everybody has Hashimoto but is not diagnosed. In other words - I should just take my thyroid medication until the end of my days and forget about "experimental dangerous therapy".
    I am done with doctors.

  3. #13
    Senior Member ladycappuccino's Avatar
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    Needless to say, he has never heard of treating rosacea with LDN. Neurogenic rosacea? "What is it? Does it exist? Well, you don't have rosacea. You are pale".

  4. #14
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    Quote Originally Posted by ladycappuccino View Post
    Oh J,
    I think there's nothing much I can do. He said he has never heard of treating neuropathic pain and autoimmune disorders with LDN. He proposed me steroids instead!!!! He also said that I exaggerate and that thyroid problems have no impact whatsoever on people's life (!!!!!!!!!). And, a cherry on the top, he claimed that everybody has Hashimoto but is not diagnosed. In other words - I should just take my thyroid medication until the end of my days and forget about "experimental dangerous therapy".
    I am done with doctors.
    Wow!! Change GP!!

    Your thyroid controls your physical and mental well-being! The man is an idiot!!

    Steroid induced rosacea is common!!

    I really feel for you!

    Hugs J
    SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA SINCE 2002.


    *Vit D3,Theratears Omega 3.



    *LDN since October 2018.

    *REN skincare range. TARTE cosmetics.

    *Tried Clonidine, Moxonidine & Atenolol (None being taken at present ).

    *Yearly IPL treatments until 2009.

    * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).



    History of Hyperthyroidism (Graves) Lichen Planus (oral)
    PROUD TO BE DIFFERENT






    .

  5. #15
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    Quote Originally Posted by ladycappuccino View Post
    Needless to say, he has never heard of treating rosacea with LDN. Neurogenic rosacea? "What is it? Does it exist? Well, you don't have rosacea. You are pale".
    Have you seen a dermatologist? Who gave you Rosacea diagnosis?

    Sent from my WAS-LX1A using Tapatalk

  6. #16
    Senior Member ladycappuccino's Avatar
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    Quote Originally Posted by Andrew P View Post
    Have you seen a dermatologist? Who gave you Rosacea diagnosis?

    Sent from my WAS-LX1A using Tapatalk
    I've seen plenty of them. They tend to say it's rather a couperose skin than rosacea. I have broken caps because of the failed treatments prescribed by doctors -cortisone (had it on my face for 5 days only, but messed me up, I think), then metronidazole then protopic. I am mostly pale. I have no p&ps. But I have this dryness and stinging and burning, which resembles neurogenic rosacea.

  7. #17
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    Quote Originally Posted by ladycappuccino View Post
    I've seen plenty of them. They tend to say it's rather a couperose skin than rosacea. I have broken caps because of the failed treatments prescribed by doctors -cortisone (had it on my face for 5 days only, but messed me up, I think), then metronidazole then protopic. I am mostly pale. I have no p&ps. But I have this dryness and stinging and burning, which resembles neurogenic rosacea.
    Is couperose skin usually red?

    I think what I struggle with is the fact it is a subjective diagnosis without a real clinical nail that says this is what it is as fact rather than an opinion.

    When I look in the mirror I do not see a Rosacean looking back me.



    Sent from my WAS-LX1A using Tapatalk

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