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Thread: Would you give 1+ years off your life for a cure?

  1. #1

    Default Would you give 1+ years off your life for a cure?

    Would you give 1+ years off your life for a cure?

    One of the startling outcomes of some research into the true burden of rosacea is just how much life expectancy a sufferer of severe rosacea would be willing to trade for clearance of their symptoms.

    The study which was commissioned by Galderma has unearthed a striking statistic -many rosacea sufferers who say that their quality of life has been severely affected by rosacea would be willing to trade a year of their life for relief.

    The study tells us that “someone with a high DLQI is more than twice as likely to report they are willing to trade a year or more of their life for a rosacea cure, compared to people with low–moderate DLQI.”

    Additionally we know that some rosacea sufferers put a high dollar value on ridding themselves of rosacea.

    What is happening here?

    This is a major concern, the burden of rosacea is something that cannot be ignored.
    The desire for clearance is high and the overall treatment satisfaction level is low. Herein lies the problem – there is a gulf between what rosaca sufferers are looking for, and are finding. Until that gulf is crossed there will continue to exist a body of rosacea sufferers frustrated and constantly on the look for something better than they can find.

    Can you imagine it?

    Can those who don’t suffer from rosacea hope to understand how you feel? Isn’t rosacea just teenage pimples?
    Feel free to have a rant below and let everyone know how rosacea makes you feel !

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  2. #2
    Senior Member nat007's Avatar
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    True. I remember an old post on here, quite some time ago, where people shared how many years of their lives, or what limbs, they were willing to trade for a rosacea free life. I happily give up ten to fifteen years of my life to get a healthy body.skin back and more thoroughly enjoy life, instead of being housebound
    Uses: 22,5 mg mirtazapine, clonidine and propranolol, Xyzal at times.
    Diet: trying low sugar, no gluten and dairy, high protein diet.
    Link to my rosacea blog:http://scarletnat.blogspot.com

  3. #3
    Senior Member
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    Quote Originally Posted by nat007 View Post
    True. I remember an old post on here, quite some time ago, where people shared how many years of their lives, or what limbs, they were willing to trade for a rosacea free life. I happily give up ten to fifteen years of my life to get a healthy body.skin back and more thoroughly enjoy life, instead of being housebound
    Wow! I was just saying to my partner I would gladly give 10 years of my life to be rosacea-free Nat, and I am older than you!

    J x
    SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA.


    *Vit D3,Theratears Omega 3.



    *LDN since October 2018.

    *REN skincare range. TARTE cosmetics.

    *Tried Clonidine, Moxonidine & Atenolol (None being taken at present ).

    *Yearly IPL treatments until 2009.

    * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).

    * Use Optimel & Ilast cream for MGD Ocular rosacea.

    History of Hyperthyroidism (Graves) Lichen Planus (oral)
    PROUD TO BE DIFFERENT






    .

  4. #4
    Junior Member
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    Default Yes

    Yes! Take a year off! Skin issues are the worst.

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