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Thread: My Low Dose Naltrexone Journey (so far)

  1. #551
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    Quote Originally Posted by Rubydo1 View Post
    Iím on week 11 still not sure if I should go up higher as not a lot seems to be happening.
    Skin is super sensitive and dry to the point I dread washing it. Iím back down to water now.
    And just Cerave for moisturising. SD is getting worse because of this.
    I am sorry to hear this. what dose are you on?

    Have you looked into the manuka honey treatment for you SD my friend? a lot of sufferers have found relief.

    J
    SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA SINCE 2002.


    *Vit D3,Theratears Omega 3.



    *LDN since October 2018.

    *REN skincare range. TARTE cosmetics.

    *Tried Clonidine, Moxonidine & Atenolol (None being taken at present ).

    *Yearly IPL treatments until 2009.

    * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).



    History of Hyperthyroidism (Graves) Lichen Planus (oral)
    PROUD TO BE DIFFERENT






    .

  2. #552
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    Quote Originally Posted by Rubydo1 View Post
    I’m on week 11 still not sure if I should go up higher as not a lot seems to be happening.
    Skin is super sensitive and dry to the point I dread washing it. I’m back down to water now.
    And just Cerave for moisturising. SD is getting worse because of this.
    I think Judy you use only filtered water, not chlorinated water, on your face? If you are still showering, Ruby, with shower water, I'd consider not having showers as they are very drying on delicate rosacea skin. I use Evian mineral water, but filtered water seems to work well for some to wash their face with. I wash my hair over the sink so it doesn't go on my face - and with a shower filter - removes chlorine from tap water.

    https://www.amazon.co.uk/gp/product/...?ie=UTF8&psc=1

  3. #553
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    Quote Originally Posted by antwantsclear View Post
    I think Judy you use only filtered water, not chlorinated water, on your face? If you are still showering, Ruby, with shower water, I'd consider not having showers as they are very drying on delicate rosacea skin. I use Evian mineral water, but filtered water seems to work well for some to wash their face with. I wash my hair over the sink so it doesn't go on my face - and with a shower filter - removes chlorine from tap water.

    https://www.amazon.co.uk/gp/product/...?ie=UTF8&psc=1

    Good memory, I have a water softener!

    J
    SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA SINCE 2002.


    *Vit D3,Theratears Omega 3.



    *LDN since October 2018.

    *REN skincare range. TARTE cosmetics.

    *Tried Clonidine, Moxonidine & Atenolol (None being taken at present ).

    *Yearly IPL treatments until 2009.

    * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).



    History of Hyperthyroidism (Graves) Lichen Planus (oral)
    PROUD TO BE DIFFERENT






    .

  4. #554
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    Quote Originally Posted by antwantsclear View Post
    I think Judy you use only filtered water, not chlorinated water, on your face? If you are still showering, Ruby, with shower water, I'd consider not having showers as they are very drying on delicate rosacea skin. I use Evian mineral water, but filtered water seems to work well for some to wash their face with. I wash my hair over the sink so it doesn't go on my face - and with a shower filter - removes chlorine from tap water.

    https://www.amazon.co.uk/gp/product/...?ie=UTF8&psc=1
    Yep I have one fitted to shower I was hair over bath never put my face under the shower.
    I use filtered water boiled and left to cool.

  5. #555
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    Quote Originally Posted by Judworth View Post
    I am sorry to hear this. what dose are you on?

    Have you looked into the manuka honey treatment for you SD my friend? a lot of sufferers have found relief.

    J
    Iím on 3mg. I did ask the guy who had success what sort of honey he used but donít think heís on here that much. Iím toying with the idea of going all the way to 4.5. But not sure if I should be more patient.

    We have this around the corner from us. But not sure the strength of the honey. http://www.medibee.co.uk/products.php
    Plus itís getting the honey off when even water is drying my skin.
    I just donít understand why my skin everywhere has gone so dry. I use to wash my hands with washing up liquid a year and half ago but now I have to use emollient.

  6. #556
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    Quote Originally Posted by Rubydo1 View Post
    Iím on 3mg. I did ask the guy who had success what sort of honey he used but donít think heís on here that much. Iím toying with the idea of going all the way to 4.5. But not sure if I should be more patient.

    We have this around the corner from us. But not sure the strength of the honey. http://www.medibee.co.uk/products.php
    Plus itís getting the honey off when even water is drying my skin.
    I just donít understand why my skin everywhere has gone so dry. I use to wash my hands with washing up liquid a year and half ago but now I have to use emollient.
    I am an advocate of less is more with LDN; but obviously the choice is yours, I have used Manuka honey in the past from good old Holland and Barratt.

    I appreciate that removing it will be an issue however in the past many people have had great success with the honey masks...........dealing with two issues must be so hard.

    J
    SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA SINCE 2002.


    *Vit D3,Theratears Omega 3.



    *LDN since October 2018.

    *REN skincare range. TARTE cosmetics.

    *Tried Clonidine, Moxonidine & Atenolol (None being taken at present ).

    *Yearly IPL treatments until 2009.

    * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).



    History of Hyperthyroidism (Graves) Lichen Planus (oral)
    PROUD TO BE DIFFERENT






    .

  7. #557
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    Quote Originally Posted by Judworth View Post
    I am an advocate of less is more with LDN; but obviously the choice is yours, I have used Manuka honey in the past from good old Holland and Barratt.

    I appreciate that removing it will be an issue however in the past many people have had great success with the honey masks...........dealing with two issues must be so hard.

    J
    I know but it doesnít seem to be having any effect. My lips are constantly shedding and splitting my eyes are burning. It like I have sjogren's but blood test was negative. My mouth and stopped burns constantly.
    Docs just donít want to know they say Iíve had too many tests done. Itís like Iím in hell at the moment constantly burning inside and out. Chilblains on all my toes. Waiting to see a specialist but it could be months.
    Trying to stay positive but on top of the tremors itís an insane situation. Still carrying on with life as Iím a fighter but it takes all my energy to make it through the day.
    Thatís why I was trying to get up to 4.5 mg coz some say nothing under 3mg did anything for them .
    Iím on 3.5 and on week 11. You said you noticed a different straight away in nerve pain. But Iíve not noticed much difference to be honest. Itís so hard when you canít ask the Docs for advice. Your kinda on your own with it l

  8. #558
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    Quote Originally Posted by Rubydo1 View Post
    I know but it doesnít seem to be having any effect. My lips are constantly shedding and splitting my eyes are burning. It like I have sjogren's but blood test was negative. My mouth and stopped burns constantly.
    Docs just donít want to know they say Iíve had too many tests done. Itís like Iím in hell at the moment constantly burning inside and out. Chilblains on all my toes. Waiting to see a specialist but it could be months.
    Trying to stay positive but on top of the tremors itís an insane situation. Still carrying on with life as Iím a fighter but it takes all my energy to make it through the day.
    Thatís why I was trying to get up to 4.5 mg coz some say nothing under 3mg did anything for them .
    Iím on 3.5 and on week 11. You said you noticed a different straight away in nerve pain. But Iíve not noticed much difference to be honest. Itís so hard when you canít ask the Docs for advice. Your kinda on your own with it l
    May of asked you this before, have you had your thyroid tested recently?
    SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA SINCE 2002.


    *Vit D3,Theratears Omega 3.



    *LDN since October 2018.

    *REN skincare range. TARTE cosmetics.

    *Tried Clonidine, Moxonidine & Atenolol (None being taken at present ).

    *Yearly IPL treatments until 2009.

    * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).



    History of Hyperthyroidism (Graves) Lichen Planus (oral)
    PROUD TO BE DIFFERENT






    .

  9. #559
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    Quote Originally Posted by Judworth View Post
    May of asked you this before, have you had your thyroid tested recently?
    Last year I did .
    I asked again if it could be thyroid at the docs last week and she just shook her head.
    Itís like youíve had enough tests just deal with it.

  10. #560
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    Quote Originally Posted by Rubydo1 View Post
    Last year I did .
    I asked again if it could be thyroid at the docs last week and she just shook her head.
    Itís like youíve had enough tests just deal with it.
    That's a poor response from them; you do have a right to ask for your results.
    SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA SINCE 2002.


    *Vit D3,Theratears Omega 3.



    *LDN since October 2018.

    *REN skincare range. TARTE cosmetics.

    *Tried Clonidine, Moxonidine & Atenolol (None being taken at present ).

    *Yearly IPL treatments until 2009.

    * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).



    History of Hyperthyroidism (Graves) Lichen Planus (oral)
    PROUD TO BE DIFFERENT






    .

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