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Thread: My Low Dose Naltrexone Journey (so far)

  1. #511
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    Quote Originally Posted by Rubydo1 View Post
    Just knowing Iím not on my own and not going mad is a help.
    Thank you so much for your help and advice x
    Iíll let you know how I get on.
    You are certainly not alone my friend!

    This can be one of the most lonely and misunderstood diseases going!

    J
    SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA.


    *Vit D3,Theratears Omega 3.



    *LDN since October 2018.

    *REN skincare range. TARTE cosmetics.

    *Tried Clonidine, Moxonidine & Atenolol (None being taken at present ).

    *Yearly IPL treatments until 2009.

    * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).

    * Use Optimel & Ilast cream for MGD Ocular rosacea.

    History of Hyperthyroidism (Graves) Lichen Planus (oral)
    PROUD TO BE DIFFERENT






    .

  2. #512
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    Is there even a point trying Vbeam in case like ours? any experience?

  3. #513
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    Quote Originally Posted by opare View Post
    Is there even a point trying Vbeam in case like ours? any experience?
    My experience was Vbeam only made it worse.

    Have you tried hydroxychloroquine yet? And moxonodine? And Zhongzhou cream?

  4. #514
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    Quote Originally Posted by antwantsclear View Post
    My experience was Vbeam only made it worse.

    Have you tried hydroxychloroquine yet? And moxonodine? And Zhongzhou cream?
    No, I'm currently trying jojoba oil and cerave moisturizer with rosehip oil. As I'm more of the oily skin I never really used much moisturizer so I wanna see if my skin is dehydrated and if this helps. So far it seems to ease the sensitivity a bit. I'm waiting for a new sunscreen too the australian gold one. Still on 1.0mg LDN each night
    I'm looking at trying Azelaic acid too as Soolantra left me quite itchy.

    and !!! celery juice every morning lol you never know right... the years Accutane for sure did some damage
    Last edited by opare; 11th November 2019 at 08:40 PM.

  5. #515
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    Quote Originally Posted by opare View Post
    Is there even a point trying Vbeam in case like ours? any experience?
    Vbeam caused my neuropathic rosacea so avoid it and all lasers, ipl, etc.

  6. #516
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    Quote Originally Posted by Momof View Post
    Vbeam caused my neuropathic rosacea so avoid it and all lasers, ipl, etc.
    How com when you mention neuropathic rosacea to private derms in the UK they have never heard of it ?
    Like you have made the word up when you mention it .

  7. #517
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    Quote Originally Posted by Rubydo1 View Post
    How com when you mention neuropathic rosacea to private derms in the UK they have never heard of it ?
    Like you have made the word up when you mention it .
    Most GP's and derms IMO have not heard and indeed do not recognise neuropathic rosacea, sadly it's up to US to inform and educate!!

    J
    SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA.


    *Vit D3,Theratears Omega 3.



    *LDN since October 2018.

    *REN skincare range. TARTE cosmetics.

    *Tried Clonidine, Moxonidine & Atenolol (None being taken at present ).

    *Yearly IPL treatments until 2009.

    * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).

    * Use Optimel & Ilast cream for MGD Ocular rosacea.

    History of Hyperthyroidism (Graves) Lichen Planus (oral)
    PROUD TO BE DIFFERENT






    .

  8. #518
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    Quote Originally Posted by Judworth View Post
    Most GP's and derms IMO have not heard and indeed do not recognise neuropathic rosacea, sadly it's up to US to inform and educate!!

    J
    I know itís crazy and you pay hundreds to see these people.

    I spent 20 years as an Dental implantologist and we had to go on courses constantly to keep up to date with developments. Half the derms Iíve seen seem to be stuck 20 years in the past . Antibiotics for everything.
    With no alternatives other than harsh creams.

  9. #519
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    Quote Originally Posted by Rubydo1 View Post
    I know itís crazy and you pay hundreds to see these people.

    I spent 20 years as an Dental implantologist and we had to go on courses constantly to keep up to date with developments. Half the derms Iíve seen seem to be stuck 20 years in the past . Antibiotics for everything.
    With no alternatives other than harsh creams.
    I spent too much on a very well-respected derm, who just kept giving me meds that made my condition worse!

    IPL was okay for a while and then suddenly made things much worse! RLT the same!!
    SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA.


    *Vit D3,Theratears Omega 3.



    *LDN since October 2018.

    *REN skincare range. TARTE cosmetics.

    *Tried Clonidine, Moxonidine & Atenolol (None being taken at present ).

    *Yearly IPL treatments until 2009.

    * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).

    * Use Optimel & Ilast cream for MGD Ocular rosacea.

    History of Hyperthyroidism (Graves) Lichen Planus (oral)
    PROUD TO BE DIFFERENT






    .

  10. #520
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    Quote Originally Posted by Judworth View Post
    I spent too much on a very well-respected derm, who just kept giving me meds that made my condition worse!

    IPL was okay for a while and then suddenly made things much worse! RLT the same!!
    Have you managed to try the Zhongzhou cream and epidermal repair cream yet? I'd be interested if it does help you. I don't think any dermatologist has all the answers to complex rosacea.

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