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Thread: My Low Dose Naltrexone Journey (so far)

  1. #391
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    Quote Originally Posted by Fiugs View Post
    Hello Opare,

    I remembered after my last post that you didnít have your LDN appt until Wednesday. Please know that a candle will be burning for you that day here in Scotland.

    I was told when I started LDN that most drugs can be taken alongside LDN except for opioids of any kind... so for instance painkillers such as codeine... as a guide any painkiller that ends with Ďineí is likely to be an opioid.

    So yes, Oradea would be fine to take alongside LDN. The only thing is, if you start to take them both at the same time and one of them helps you, you wonít know which one it is.

    Why not try taking LDN for just two weeks before starting Oracea? It seems, from what most people have said here, that you should get some positive changes within that period. I certainly did.

    I felt for you when I read some of your earlier posts... I have been in that place where every day feels like a sore, flushing face hell. I hope with all my heart you get the LDN and that it helps you. If you know that doc you will be seeing prescribes LDN Iím sure you have a good chance, most prescribers seem to work on the basis that thereís no harm in trying, because LDN is so weak compared to other drugs.

    Having said that, the first LDN prescriber I spoke to said to me, when I told him I wanted to try it for my rosacea, ďAre you saying you think LDN will help you with your visible capillaries caused by sun damage!?Ē So even in the LDN world there is a degree of ignorance with regard to rosacea. I would suggest that you print out a few of the posts from this thread that list successful outcomes and take that with you on Wednesday.

    Take care...
    Btw Fiona what I wanted to ask you, now that I hopefully can start LDN soon and for that I'm scanning through this thread again, I noticed you mentioned you had eczema that stopped right away taking LDN. If I may ask what kind of eczema was that (where, itchy?...) and you believe LDN did solve it? I'm asking because I'm dealing with some kind of eczema on my scalp.

    Thank you,
    O

  2. #392
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    Quote Originally Posted by opare View Post
    Interesting. You dont know if Oracea possibly could help with oily skin? What did you take it with that it helped with redness? Your cheeks are not red? Of course my main focus is LDN but it could take a long time for it to show up hence why not try a Oracea cycle...
    Il actually looking at getting a Probiotic too as my gut is not relaxes and stool not regular but that could wait I guess
    Oracea should help with redness and spots. I don't have particularly red cheeks, but oracea will help with redness and spots whether on the nose or the cheeks, but it is not probably a sufficient treatment for redness, which is why you need to look at treatments like moxonodine, gabapentin or hydroxychloroquine (given you don't like propranolol and clonidine so far).

  3. #393
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    Quote Originally Posted by opare View Post
    Btw Fiona what I wanted to ask you, now that I hopefully can start LDN soon and for that I'm scanning through this thread again, I noticed you mentioned you had eczema that stopped right away taking LDN. If I may ask what kind of eczema was that (where, itchy?...) and you believe LDN did solve it? I'm asking because I'm dealing with some kind of eczema on my scalp.

    Thank you,
    O
    I only had a little eczema that appeared every now and then, often around times of stress. I think it might have been the stress of my rosacea (which started three years ago) that triggered the eczema! The eczema appeared about two years ago and it would be patches on my neck and sometimes a little on my hands.

    I couldn’t tell you how long it might take for LDN to get rid of eczema because I can’t remember now if I was having an eczema flare when I started to take LDN. All I can say is that I’ve never had any eczema since taking LDN.

    I also was starting to get a little Raynaud’s about a year after the rosacea started. It’s never been back since the LDN either.

    Thinking of you today and hoping you leave your appointment feeling hopeful.

  4. #394
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    I' dome. The doctor prescribed it to me but the pharmacy dont have it in stock and they need maybe another 2-3 weeks to create it...

  5. #395
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    Quote Originally Posted by opare View Post
    I' dome. The doctor prescribed it to me but the pharmacy dont have it in stock and they need maybe another 2-3 weeks to create it...
    Are you saying that this Doctor, who specialises in prescribing LDN, cannot get the LDN for you from the pharmacy that usually provides it for him?

  6. #396
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    Quote Originally Posted by Fiugs View Post
    Are you saying that this Doctor, who specialises in prescribing LDN, cannot get the LDN for you from the pharmacy that usually provides it for him?
    Nop, only on order

  7. #397
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    Quote Originally Posted by opare View Post
    Nop, only on order
    Happy for you but still sounds frustrating that they donít have it for you sooner.

    Angela

  8. #398
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    Quote Originally Posted by opare View Post
    Nop, only on order
    It must be so disappointing for you after waiting so long for your appt. but, dear Opare, try to stay strong and positive... you know it’s coming and if you are as fortunate as many of us here have been it may help you within a few days of taking it. Other drugs would require you to take them for many weeks or months before you get an improvement.

    Perhaps you have decided to take Oracea now.

    I wonder also if you have tried CBD oil? I took it for a while and it seemed to help the face pain a little ... it also helped me feel a little more calm about my face pain and so on...

    Some people take CBD along with LDN... at least the clinic in Glasgow that compounds LDN for some of us here also sells good quality CBD. It’s not hard to get hold of these days. Better still... take a trip to The Netherlands and get hold of the ‘leaded’ version!!

    Take care...
    Last edited by Fiugs; 11th July 2019 at 08:18 AM.

  9. #399
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    Default Fiona!

    sublingual drops arrived today!

    Could you tell me how many mg's are in the bottle please?

    I paid £27 for mine.

    thanks

    Judy
    SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA.


    *Vit D3,Theratears Omega 3.



    *LDN since October 2018.

    *REN skincare range. TARTE cosmetics.

    *Tried Clonidine, Moxonidine & Atenolol (None being taken at present ).

    *Yearly IPL treatments until 2009.

    * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).

    * Use Optimel & Ilast cream for MGD Ocular rosacea.

    History of Hyperthyroidism (Graves) Lichen Planus (oral)
    PROUD TO BE DIFFERENT






    .

  10. #400
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    Quote Originally Posted by Judworth View Post
    sublingual drops arrived today!

    Could you tell me how many mg's are in the bottle please?

    I paid £27 for mine.

    thanks

    Judy
    Hi there.

    Golly. I have no idea how many mgs are in the bottle.Dicksons would need to tell you that.

    If you're wondering how long it will last you, all I can tell you is I have been reducing my dose by .5mg a week since I started on the drops.. so for the first week I was taking 8 drops (4 mg) nightly.. 2nd week 7 drops nightly.. etc etc .. as of tomorrow I will be down to 4 drops (2mg) nightly. So that means at that gradually reducing dose (i.e. so far Ive been taking much more than you will be using) Ive been on the drops for one month so far and I reckon I'm about half way through the bottle.

    So by my expert mathematical reckoning, at 2 mgs (4 drops) nightly ithese drops should last us - a while...

    Sorry I cant be more precise!

    Hope you like it though

    Lots of love X

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