Page 51 of 53 FirstFirst ... 414950515253 LastLast
Results 501 to 510 of 522

Thread: My Low Dose Naltrexone Journey (so far)

  1. #501
    Senior Member
    Join Date
    Aug 2009
    Location
    UK
    Posts
    1,616
    Country: UK

    Default

    Quote Originally Posted by Rubydo1 View Post
    How long did it take them to get back to you ?
    Iíve had no reply since Friday morning.
    And what proof of illness did you send?
    Iíve just sent my medical med history.
    They should email you re your consultation (by phone) you can always chase them.

    J
    SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA.


    *Vit D3,Theratears Omega 3.



    *LDN since October 2018.

    *REN skincare range. TARTE cosmetics.

    *Tried Clonidine, Moxonidine & Atenolol (None being taken at present ).

    *Yearly IPL treatments until 2009.

    * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).

    * Use Optimel & Ilast cream for MGD Ocular rosacea.

    History of Hyperthyroidism (Graves) Lichen Planus (oral)
    PROUD TO BE DIFFERENT






    .

  2. #502
    Senior Member
    Join Date
    Mar 2019
    Posts
    172
    Country: UK

    Default

    Quote Originally Posted by Judworth View Post
    They should email you re your consultation (by phone) you can always chase them.

    J
    Iíve chased it up they said they are really busy so nothing till end November.
    Do you have to order a prescription every month ?
    Or can you get 3 months worth ?

  3. #503
    Senior Member
    Join Date
    Aug 2009
    Location
    UK
    Posts
    1,616
    Country: UK

    Default

    Quote Originally Posted by Rubydo1 View Post
    Iíve chased it up they said they are really busy so nothing till end November.
    Do you have to order a prescription every month ?
    Or can you get 3 months worth ?

    Wow!

    It depends what dose you are on, they set up an account online for you and you order when required.
    LDN lasts for 90 days in the fridge.

    J
    SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA.


    *Vit D3,Theratears Omega 3.



    *LDN since October 2018.

    *REN skincare range. TARTE cosmetics.

    *Tried Clonidine, Moxonidine & Atenolol (None being taken at present ).

    *Yearly IPL treatments until 2009.

    * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).

    * Use Optimel & Ilast cream for MGD Ocular rosacea.

    History of Hyperthyroidism (Graves) Lichen Planus (oral)
    PROUD TO BE DIFFERENT






    .

  4. #504
    Senior Member
    Join Date
    Mar 2019
    Posts
    172
    Country: UK

    Default

    Quote Originally Posted by Judworth View Post
    Wow!

    It depends what dose you are on, they set up an account online for you and you order when required.
    LDN lasts for 90 days in the fridge.

    J
    I have burning Mouth syndrome as well So I’m hoping it helps.
    You know when you face burns that much you don’t know if it’s your moisturiser or face wash
    Or just your skin ahhhhhhhhh really don’t want to try another moisturiser. I’ve switched from oil of Olay sensitive to Cerave moisturising lotion. My skin seems to look ok but it feels so sore. I’m Using Cerave Smoothing face wash.
    Any suggestions on moisturiser is Cerave moisturising lotion a good one ?
    I tried the PM one but it only has one ingredients difference and it’s so much mor expensive.
    Last edited by Rubydo1; 6th November 2019 at 03:58 PM.

  5. #505
    Senior Member
    Join Date
    Aug 2009
    Location
    UK
    Posts
    1,616
    Country: UK

    Default

    Quote Originally Posted by Rubydo1 View Post
    I have burning Mouth syndrome as well So Iím hoping it helps.
    You know when you face burns that much you donít know if itís your moisturiser or face wash
    Or just your skin ahhhhhhhhh really donít want to try another moisturiser. Iíve switched from oil of Olay sensitive to Cerave moisturising lotion. My skin seems to look ok but it feels so sore. Iím Using Cerave Smoothing face wash.
    Any suggestions on moisturiser is Cerave moisturising lotion a good one ?
    I tried the PM one but it only has one ingredients difference and itís so much mor expensive.
    My burning mouth has completely gone since using LDN; I also have ocular rosacea and my eyes are much improved too!

    https://www.renskincare.com/

    Have a look at that link, search for the sensitive section, I cleanse moisturise and use their night balm! Fab products and a little goes a long way!

    J
    SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA.


    *Vit D3,Theratears Omega 3.



    *LDN since October 2018.

    *REN skincare range. TARTE cosmetics.

    *Tried Clonidine, Moxonidine & Atenolol (None being taken at present ).

    *Yearly IPL treatments until 2009.

    * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).

    * Use Optimel & Ilast cream for MGD Ocular rosacea.

    History of Hyperthyroidism (Graves) Lichen Planus (oral)
    PROUD TO BE DIFFERENT






    .

  6. #506
    Member
    Join Date
    Nov 2018
    Posts
    30

    Default

    Quote Originally Posted by Rubydo1 View Post
    I have burning Mouth syndrome as well So Iím hoping it helps.
    You know when you face burns that much you donít know if itís your moisturiser or face wash
    Or just your skin ahhhhhhhhh really donít want to try another moisturiser. Iíve switched from oil of Olay sensitive to Cerave moisturising lotion. My skin seems to look ok but it feels so sore. Iím Using Cerave Smoothing face wash.
    Any suggestions on moisturiser is Cerave moisturising lotion a good one ?
    I tried the PM one but it only has one ingredients difference and itís so much mor expensive.
    Hi Rubydo,
    I use La Roche Posay Toleraine Ultra Nuit in the morning and at night and my skin loves it. The skin on my face had become so dry and this has restored its moisture. No fragrance, parabens etc. my skin reacted to Cerave- got really itchy. Maybe it was the parabens my skin didnít like?

  7. #507
    Senior Member
    Join Date
    Mar 2019
    Posts
    172
    Country: UK

    Default

    Quote Originally Posted by Momof View Post
    Hi Rubydo,
    I use La Roche Posay Toleraine Ultra Nuit in the morning and at night and my skin loves it. The skin on my face had become so dry and this has restored its moisture. No fragrance, parabens etc. my skin reacted to Cerave- got really itchy. Maybe it was the parabens my skin didn’t like?
    Yeah my skin is getting sore but Cerave always gets great reviews will have a look at that .
    Anyone else have problems with Cerave?

  8. #508
    Senior Member
    Join Date
    Mar 2019
    Posts
    172
    Country: UK

    Default

    Quote Originally Posted by Judworth View Post
    Everyone is different & I guess you never know until you try.

    Most meds give ME side effects!!

    J
    Hi what do you mean ME side effects ?
    I seem to be hyper sensitive to meds and developed ME like symptoms after taking
    amitriptyline. Tremor and chronic fatigue.

    Currently have rosacea with flushing swelling and spots and hypersensitivity plus ocular rosacea plus burning mouth.
    Taking soolantra for skin.
    Recovering from Gastritis induced by antibiotics.

    I have phone consultation finally on Monday.
    I know there is two types of liquid forms LDN one that by passes gut and goes straight into blood stream.
    Do you think the one that bypasses the gut is the better option ?
    Thanks for all the information you guys are providing. This is by the far the worst thing I’ve ever had to cope with. I’ve busted most bones in my body and have dislocation issues but that pain I can deal with no problem. This neuropathic pain along with spots and swelling eyes and burning mouth has nearly broke me .
    Most Derm docs I’ve mentioned the burning pain to look at you like your mad .
    Last edited by Rubydo1; 8th November 2019 at 03:23 PM.

  9. #509
    Senior Member
    Join Date
    Aug 2009
    Location
    UK
    Posts
    1,616
    Country: UK

    Default

    Quote Originally Posted by Rubydo1 View Post
    Hi what do you mean ME side effects ?
    I seem to be hyper sensitive to meds and developed ME like symptoms after taking
    amitriptyline. Tremor and chronic fatigue.

    Currently have rosacea with flushing swelling and spots and hypersensitivity plus ocular rosacea plus burning mouth.
    Taking soolantra for skin.
    Recovering from Gastritis induced by antibiotics.

    I have phone consultation finally on Monday.
    I know there is two types of liquid forms LDN one that by passes gut and goes straight into blood stream.
    Do you think the one that bypasses the gut is the better option ?
    Thanks for all the information you guys are providing. This is by the far the worst thing I’ve ever had to cope with. I’ve busted most bones in my body and have dislocation issues but that pain I can deal with no problem. This neuropathic pain along with spots and swelling eyes and burning mouth has nearly broke me .
    Most Derm docs I’ve mentioned the burning pain to look at you like your mad .
    Hello again

    I meant ME as in I/myself, I get side effects to all meds!

    So glad that you have your telephone consultation!
    sublingual drops, (without the fillers) were the best option for me, taste awful but more effective.

    I am with you on the burning nerve pain, dry eyes and burning mouth, but after 16 yrs with this ***** disease I am finding relief.

    Like many, this disease has brought us to our knees, let us know how you get on

    J
    SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA.


    *Vit D3,Theratears Omega 3.



    *LDN since October 2018.

    *REN skincare range. TARTE cosmetics.

    *Tried Clonidine, Moxonidine & Atenolol (None being taken at present ).

    *Yearly IPL treatments until 2009.

    * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).

    * Use Optimel & Ilast cream for MGD Ocular rosacea.

    History of Hyperthyroidism (Graves) Lichen Planus (oral)
    PROUD TO BE DIFFERENT






    .

  10. #510
    Senior Member
    Join Date
    Mar 2019
    Posts
    172
    Country: UK

    Default

    Quote Originally Posted by Judworth View Post
    Hello again

    I meant ME as in I/myself, I get side effects to all meds!

    So glad that you have your telephone consultation!
    sublingual drops, (without the fillers) were the best option for me, taste awful but more effective.

    I am with you on the burning nerve pain, dry eyes and burning mouth, but after 16 yrs with this ***** disease I am finding relief.

    Like many, this disease has brought us to our knees, let us know how you get on

    J
    Just knowing Iím not on my own and not going mad is a help.
    Thank you so much for your help and advice x
    Iíll let you know how I get on.

Similar Threads

  1. Low Dose Naltrexone..
    By mrsmoof in forum Prescription medications
    Replies: 20
    Last Post: 19th February 2017, 10:32 AM
  2. Low dose Accutane not really doing the business. Give high dose a go?
    By Jimmyb78 in forum Prescription medications
    Replies: 2
    Last Post: 4th October 2013, 03:11 PM
  3. Antibiotics: is low-dose as effective as high dose?
    By TheMediumDog in forum Prescription medications
    Replies: 5
    Last Post: 23rd January 2009, 05:32 AM
  4. OK, I think I need to try low-dose accutane.
    By nbapoker in forum Prescription medications
    Replies: 14
    Last Post: 27th September 2007, 12:04 PM
  5. Dr. Nase -- rosacea, low dose, lower dose .5 for rosacea
    By bettina in forum Prescription medications
    Replies: 2
    Last Post: 1st July 2005, 06:24 AM

Tags for this Thread

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •