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Thread: My Low Dose Naltrexone Journey (so far)

  1. #191
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    Quote Originally Posted by antwantsclear View Post
    Hi Angela

    You'll see a little menu at the top right of your screen, with 'Welcome, [your screen name], Notifications, My Profile, Settings, Log out'. If you have the message, you'll have a little '1' under the Notifications. Anyway, click on Notifications and you'll see your messages.

    Hope that helps.

    Thank you so much!!

    Angela

  2. #192
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    Quote Originally Posted by Ange4 View Post
    Ok Judy, I am literally from the Stone Age because I canít figure out how and where to check private message from. Could you kindly help a little old lady?


    Angela
    Awww! thank you antwantsclear

    J
    SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA.


    *Vit D3,Theratears Omega 3.



    *LDN since October 2018.

    *REN skincare range. TARTE cosmetics.

    *Tried Clonidine, Moxonidine & Atenolol (None being taken at present ).

    *Yearly IPL treatments until 2009.

    * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).

    * Use Optimel & Ilast cream for MGD Ocular rosacea.

    History of Hyperthyroidism (Graves) Lichen Planus (oral)
    PROUD TO BE DIFFERENT






    .

  3. #193
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    All,

    Just an update from me. Iíve been on LDN since Jan 2018. Since September 2018, Iíve been taking 3mg. I increased slowly.

    My skin is less reactive, swelling is eliminated, and my smell/chemical sensitivity has improved. I could not go into a nail salon or walk down the laundry aisle without needing to immediately escape.

    I have multiple autoimmune diseases that presented years before rosacea (graves, celiac). My thyroid was removed ages ago, so I will need to take thyroid replacement for the rest of my life, thus LDN cannot assist me with that, but I do believe my body overall has been less on high alert / fight or flight mode since taking this drug.

    Working with a functional medicine dr who has prescribed me LDN and did a comprehensive stool test to help me identify things going on in my gut (ie, i had a superbug infection called klebsiiella, made zero digestive enzymes, insufficient bile production, amongst a host of other things I never knew existed) has helped me tremendously.

    Although heat and anxiety are still flushing triggers, I no longer feel like I am doomed with this condition.

    Additionally, I created a thread in 2017 about an aggressive Vbeam treatment that really set me back. I learned that those settings: 7joules, 10ms and 20ms with 3 passes is just wrong (even though the manufacturers manual recommend these settings). This left me with permanent redness.

    In my weakest hour I found an amazing derm who wrote academic books on laser in the early Ď90s. I trusted her to treat the permanent redness. I am not out of the woods yet, but her style is very effective for me. The settings used are 6 joules and anywhere between 2 and 6 ms. Iíd say she does only 25 zaps a session whereas my nightmare treatment was 150+. I do not swell at nor do I get very red. She said sheís learned over the years that less is more with Vbeam.

    I will continue to update.

    Best of luck to all.

  4. #194
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    Quote Originally Posted by sg321 View Post
    All,

    Just an update from me. Iíve been on LDN since Jan 2018. Since September 2018, Iíve been taking 3mg. I increased slowly.

    My skin is less reactive, swelling is eliminated, and my smell/chemical sensitivity has improved. I could not go into a nail salon or walk down the laundry aisle without needing to immediately escape.

    I have multiple autoimmune diseases that presented years before rosacea (graves, celiac). My thyroid was removed ages ago, so I will need to take thyroid replacement for the rest of my life, thus LDN cannot assist me with that, but I do believe my body overall has been less on high alert / fight or flight mode since taking this drug.

    Working with a functional medicine dr who has prescribed me LDN and did a comprehensive stool test to help me identify things going on in my gut (ie, i had a superbug infection called klebsiiella, made zero digestive enzymes, insufficient bile production, amongst a host of other things I never knew existed) has helped me tremendously.

    Although heat and anxiety are still flushing triggers, I no longer feel like I am doomed with this condition.

    Additionally, I created a thread in 2017 about an aggressive Vbeam treatment that really set me back. I learned that those settings: 7joules, 10ms and 20ms with 3 passes is just wrong (even though the manufacturers manual recommend these settings). This left me with permanent redness.

    In my weakest hour I found an amazing derm who wrote academic books on laser in the early Ď90s. I trusted her to treat the permanent redness. I am not out of the woods yet, but her style is very effective for me. The settings used are 6 joules and anywhere between 2 and 6 ms. Iíd say she does only 25 zaps a session whereas my nightmare treatment was 150+. I do not swell at nor do I get very red. She said sheís learned over the years that less is more with Vbeam.

    I will continue to update.

    Best of luck to all.


    Do you think your heat sensitivity lessened at all? Did you flush a lot before with heat or temperature change? Iím glad that LDN is giving you some relief. I have been on it 17 days and started noticing subtle changes on day 12. Iím going to wait til Iíve been on 30 days to give my update.

    Angela

  5. #195
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    Country: UK

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    Quote Originally Posted by sg321 View Post
    All,

    Just an update from me. Iíve been on LDN since Jan 2018. Since September 2018, Iíve been taking 3mg. I increased slowly.

    My skin is less reactive, swelling is eliminated, and my smell/chemical sensitivity has improved. I could not go into a nail salon or walk down the laundry aisle without needing to immediately escape.

    I have multiple autoimmune diseases that presented years before rosacea (graves, celiac). My thyroid was removed ages ago, so I will need to take thyroid replacement for the rest of my life, thus LDN cannot assist me with that, but I do believe my body overall has been less on high alert / fight or flight mode since taking this drug.

    Working with a functional medicine dr who has prescribed me LDN and did a comprehensive stool test to help me identify things going on in my gut (ie, i had a superbug infection called klebsiiella, made zero digestive enzymes, insufficient bile production, amongst a host of other things I never knew existed) has helped me tremendously.

    Although heat and anxiety are still flushing triggers, I no longer feel like I am doomed with this condition.

    Additionally, I created a thread in 2017 about an aggressive Vbeam treatment that really set me back. I learned that those settings: 7joules, 10ms and 20ms with 3 passes is just wrong (even though the manufacturers manual recommend these settings). This left me with permanent redness.

    In my weakest hour I found an amazing derm who wrote academic books on laser in the early Ď90s. I trusted her to treat the permanent redness. I am not out of the woods yet, but her style is very effective for me. The settings used are 6 joules and anywhere between 2 and 6 ms. Iíd say she does only 25 zaps a session whereas my nightmare treatment was 150+. I do not swell at nor do I get very red. She said sheís learned over the years that less is more with Vbeam.

    I will continue to update.

    Best of luck to all.
    Hello sg321

    Your post contains many similar things to mine, I also have several autoimmune disorders; I have graves (resting no medication), I always felt that my body/face was 'in flight or fight mode' so reactive, allergic to life itself!

    I am so delighted to hear of your progress and that you have found supportive derm, it appears that neuropathic rosacea seems to respond to LDN in a big way for many!!

    Wishing you all the luck in the world on your journey to good heath!

    J
    SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA.


    *Vit D3,Theratears Omega 3.



    *LDN since October 2018.

    *REN skincare range. TARTE cosmetics.

    *Tried Clonidine, Moxonidine & Atenolol (None being taken at present ).

    *Yearly IPL treatments until 2009.

    * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).

    * Use Optimel & Ilast cream for MGD Ocular rosacea.

    History of Hyperthyroidism (Graves) Lichen Planus (oral)
    PROUD TO BE DIFFERENT






    .

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