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Thread: A nose in flames, fears etc

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    Default A nose in flames, fears etc

    Hey guys!

    I am pretty new to write to this forum but it has helped me for several years. Its great that it exists because there is really no place similar to this to turn for advice here in Sweden.

    I have had diagnosed rosacea since 2012, but I believe its been there for longer. I had very, very dry skin since my early 20ies and could never use any sort of product on it because it immediately got pimples and redness. The skin is also super sensitive.

    My rosacea started with pimples that spread over my cheeks in the winter time. In the summer the skin healed and I always looked fantastic and shining from the sun light. After my diagnosis things started to change. To make a long story short; my skin has become beyond sensitive. I have no pimples kinda inflammation, my skin is smooth and soft but extremely dry and hyper active. I know I´m not unique ;). I have had several treatments through the years, tetracycline, finacea, IPL, betablockers and v-beam. Some things has worked for a while, but they don't get to the bottom of the condition.

    Most things regarding rosacea I can stand and it hasn’t bothered my too much until this winter…

    My nose has become a total night mare. It tingles, burns and there is a pressure in it almost 24/7. It swells (along with my face, eyes etc) when I sleep and I wake up with a stuffy, puffy nose every day. Every night I get a humungous nose blush – feeling like someone punched it or it got stung by a bee. When it all started last spring I thought it was allergies since my face was itching along with the nose, but the antihistamines only helps slightly. It wasn’t that bad though and the blush only came about once in a while. The past three months its been EVERY SINGLE DAY and I can just stand by and watch how my skin gets torn by this. My nose becomes red like a tomato, hurts and I almost can't believe my eyes when I look in the mirror. Is that really my nose!? And then it just goes.

    I have been working hard on my diet and life style for years but particularly since this started and it has made my face somewhat calmer – but the nose is almost alien to me atm. And as the months go by it gets more and more sensitive and inflamed.

    This phenomena is painful, depressing and I feel I need advice. I am 34 year old female – super healthy – clean living. I cannot pin down what triggers it.. only that it seams connected to my digestion. Sometimes heat pushes it but I can usually feel it almost rising from inside in a cool environment as well.

    I feel so sad and desperate . Is it rosacea or is it something else on top of my rosacea. Does anybody recognize this?

    Please help!

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    Quote Originally Posted by Violetsareblue View Post
    Hey guys!

    I am pretty new to write to this forum but it has helped me for several years. Its great that it exists because there is really no place similar to this to turn for advice here in Sweden.

    I have had diagnosed rosacea since 2012, but I believe its been there for longer. I had very, very dry skin since my early 20ies and could never use any sort of product on it because it immediately got pimples and redness. The skin is also super sensitive.

    My rosacea started with pimples that spread over my cheeks in the winter time. In the summer the skin healed and I always looked fantastic and shining from the sun light. After my diagnosis things started to change. To make a long story short; my skin has become beyond sensitive. I have no pimples kinda inflammation, my skin is smooth and soft but extremely dry and hyper active. I know I´m not unique ;). I have had several treatments through the years, tetracycline, finacea, IPL, betablockers and v-beam. Some things has worked for a while, but they don't get to the bottom of the condition.

    Most things regarding rosacea I can stand and it hasn’t bothered my too much until this winter…

    My nose has become a total night mare. It tingles, burns and there is a pressure in it almost 24/7. It swells (along with my face, eyes etc) when I sleep and I wake up with a stuffy, puffy nose every day. Every night I get a humungous nose blush – feeling like someone punched it or it got stung by a bee. When it all started last spring I thought it was allergies since my face was itching along with the nose, but the antihistamines only helps slightly. It wasn’t that bad though and the blush only came about once in a while. The past three months its been EVERY SINGLE DAY and I can just stand by and watch how my skin gets torn by this. My nose becomes red like a tomato, hurts and I almost can't believe my eyes when I look in the mirror. Is that really my nose!? And then it just goes.

    I have been working hard on my diet and life style for years but particularly since this started and it has made my face somewhat calmer – but the nose is almost alien to me atm. And as the months go by it gets more and more sensitive and inflamed.

    This phenomena is painful, depressing and I feel I need advice. I am 34 year old female – super healthy – clean living. I cannot pin down what triggers it.. only that it seams connected to my digestion. Sometimes heat pushes it but I can usually feel it almost rising from inside in a cool environment as well.

    I feel so sad and desperate . Is it rosacea or is it something else on top of my rosacea. Does anybody recognize this?

    Please help!
    Hi violetsareblue,

    I searched about this in the forum a while back but couldn't really find much ...

    There was a woman who said paxil helped with her evening nose flush. I think there were a few that said remeron helped.

    I don't think it is related to digestion for me (eg, can happen before dinner), but a heavy dinner can make it worse. I've tried changing diet to be clean etc as well, but didn't help with this issue.

    I also take these cold gel packs with me to bed because leaning back ever so slightly makes it worse, and the packs help somewhat.

    Some people say sucking on ice chips help them.

    I also remember a couple people saying that trying to minimize the temperature change (ie keeping nose as warm as possible throughout the day) might help the sudden nose flushing later in the day. For example, I have noticed that too high a dose of clonidine can make the nose flushing specifically worse (while at the same time helping my cheek flushing).

    I'd be curious to read what others say...

    Wish there were better options!! Best of luck,

    Lizzy

    PS I personally feel better emotionally if I look at the mirror less, like I never do unless i want to put on sunscreen or something. When I look in the mirror it's like i'm tying my self-worth into what I look like.

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    Thank you so much for replying Lizzy! It mens so much to me to not feel alone with this! I am completely tiring my poor family with my nose problems so it's good to share with someone else.

    I have also been all over the forum and the Internet to find some sort of help. Most things like fans, ice cubes etc only delay my blush. If it wants out it will come whatever I do and after it has come (active for 30-60 min) my skin is calm like silent lake. I can lie down sit up cry laugh etc but before it has come out the slightest touch will make the nose pop! It's as if there is a build up inside of it an all of a sudden a release of that something.

    Before it used to come approx 2 h after dinner so at 7-8, in the evening, but with all my remedies I have somehow managed to move it so that it instead comes 2 h after lunch, at 3, the past week. Right in the work day!! I have to run to the bathroom to cool it with water and bring down the swelling. I feel so ridiculous.

    I don't want to do to harsh medications because I worry they mess me up even more. I used a beta blocker for two months and it made my cheeks calm but my nose gradually worse - similar to your experience with clonidine.

    I have an appointment to a dermatologist next month and also an allergy specialist later on. But I don't dare to hope for any help. At the moment I trust other rosaceans advices more as I haven't yet met a doctor that is wise when it comes to this puzzling condition.

    Your words about self worth brings me so much Warmth. It's very true, I will also try my best to stay away from the mirrors. Obsessing is certainly not helping..

    Thanks again and hope we can find new clues!

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    Hey Violetsareblue! I am in a damned similar situation!

    So I understand your nose symptoms are inside nostrils, as well as on the skin of the nose. If it's not caused by allergies, then it is a vasomotor or nonallergic (just two different names for the same thing) rhinitis.
    I got my nose inflamed a year ago when I took antidepressants in small doses for about two months. The med made me flush way more. I quit it, and flushing stopped at least. But my nose has been a wild beast ever since.

    My nose symptoms: developed tiny visible vessels. My nose sometimes got red before those antidepressants but was generally quite fine - one of the safest areas of my face, and had zero visible veins
    Flushing and swelling, and stuffed feeling sometimes when I change temperatures rapidly - for example getting in public transport after waiting for it out in the cold. Flushing and swelling etc at somewhat random times. Dry, sore nostrils - especially when I wake up. Almost every day starts out like **** because I wake up in pain.
    Sensitivity and tingling on nose skin. I spent the entire last summer indoors because I couldn't stand a light breeze - it felt so uncomfortable and made me feel like it's harming my skin. I sat inside thinking that if I leave my nose alone, it'll heal but that wasn't the case unfortunately. Currently my nose is the worst part about my face and, damn, I wish I had never taken those pills

    Treatments I'm trying:
    So as I already said, the first few months I just hoped that if I leave it alone it will heal on it's own. Nope. Tried antihistamine nasal spray. Didn't help, made nose drier and overall worse. I was real sad about that Took some oral antihistamines like once but they're generally said not to help nonallergic rhinitis so I didn't bother much. Considered taking a steroid nasal spray but decided against it, I'll try it if all else fails. Steroids on rosacea skin are very bad so I figured I shouldn't put them in my nose either. Maybe it'd be okay, buuuut..maybe not! So right now in the last few days I've been trying rinsing nostrils with a saline twice daily. It's quite fun Haven't done it long enough to report results though. Another idea that I will try later is actually putting capsaicin in my nose. I already infused an oil - put cayenne pepper powder in it and heated up. So now I have a beautifully red, spicy oil in my fridge lol. This might really work - google capsaicin rhinitis and read the articles!

    Do you feel like your nose attacks start with your nose's skin going inflamed or your nostrils? I felt like mine most usually starts with my nostrils. Overall, I am so mad at myself that I just passively didn't do much about this for a goddamn year and just treated the symptoms with eating cold things and wishing for it to stop and suffered. Dumb lil me

    Oh and you said It's as if there is a build up inside of it an all of a sudden a release of that something. That reminds me of one article about the warm room flush theory. Check it out definitely HERE!
    Last edited by elegantsquatlobster; 1st April 2017 at 04:13 PM.

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    hello violetsareblue how r u
    i can feel your pain, i have rosacea subtype 2 i do flush but not the typical rosacea flush, my main problem is pimples flaky very tight red inflammed skin.
    i will tell u my expierence as i have been battling this disease for quite some time now
    i really really do believe that we have to treat rosacea internaly and externally BOTH
    so what im doing is that im usipng topical erythromycin gel and metronidazole gel together on my face twice daily, and taking a probiotic with omega 3-6-9 capsules to deal with the inflammation internally
    for me, i have mal digestion, undiagnosed lactose intolerance for years that caused me alot of diarrhea, i strongly believe that i have a bunch of bad bacteria over there

    my mum has been cleared from rosacea becasue she has treated her stomach problems
    so my question is :
    1. have u found a suitable topical treatment that calms ur face?
    2. do u have any digestive problems or food allergy?
    3. im not sure, but r u the girl who was posting days ago about probiotics? if yes, it might causes worsening of ur rosacea symptoms for a while, its called a die off method, it happened to me, and still does, been now for 2 months on probiotics, and my symptoms r fluctuating

    i hope u can find a cure and more important inner peace
    and i totally agree with lizzy, im trying as much as i can not to look at the mirrors.
    hope u have a good day
    Last edited by Miaa; 3rd April 2017 at 09:28 AM.

  6. #6
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    Smile Re: Nose in flames

    Quote Originally Posted by Violetsareblue View Post
    Hey guys!

    I am pretty new to write to this forum but it has helped me for several years. Its great that it exists because there is really no place similar to this to turn for advice here in Sweden.

    I have had diagnosed rosacea since 2012, but I believe its been there for longer. I had very, very dry skin since my early 20ies and could never use any sort of product on it because it immediately got pimples and redness. The skin is also super sensitive.

    My rosacea started with pimples that spread over my cheeks in the winter time. In the summer the skin healed and I always looked fantastic and shining from the sun light. After my diagnosis things started to change. To make a long story short; my skin has become beyond sensitive. I have no pimples kinda inflammation, my skin is smooth and soft but extremely dry and hyper active. I know I´m not unique ;). I have had several treatments through the years, tetracycline, finacea, IPL, betablockers and v-beam. Some things has worked for a while, but they don't get to the bottom of the condition.

    Most things regarding rosacea I can stand and it hasn’t bothered my too much until this winter…

    My nose has become a total night mare. It tingles, burns and there is a pressure in it almost 24/7. It swells (along with my face, eyes etc) when I sleep and I wake up with a stuffy, puffy nose every day. Every night I get a humungous nose blush – feeling like someone punched it or it got stung by a bee. When it all started last spring I thought it was allergies since my face was itching along with the nose, but the antihistamines only helps slightly. It wasn’t that bad though and the blush only came about once in a while. The past three months its been EVERY SINGLE DAY and I can just stand by and watch how my skin gets torn by this. My nose becomes red like a tomato, hurts and I almost can't believe my eyes when I look in the mirror. Is that really my nose!? And then it just goes.

    I have been working hard on my diet and life style for years but particularly since this started and it has made my face somewhat calmer – but the nose is almost alien to me atm. And as the months go by it gets more and more sensitive and inflamed.

    This phenomena is painful, depressing and I feel I need advice. I am 34 year old female – super healthy – clean living. I cannot pin down what triggers it.. only that it seams connected to my digestion. Sometimes heat pushes it but I can usually feel it almost rising from inside in a cool environment as well.

    I feel so sad and desperate . Is it rosacea or is it something else on top of my rosacea. Does anybody recognize this?

    Please help!
    Hi Violets,
    Have you considered some types of Lasers to treat this, or maybe
    Accutane? I know those are sometimes recommended for rhinophyma, which is what it sounds like is developing here!

    I'm sorry you're having this problem! Hope it gets better soon!

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    Quote Originally Posted by Jasmine 215 View Post
    Hi Violets,
    Have you considered some types of Lasers to treat this, or maybe
    Accutane? I know those are sometimes recommended for rhinophyma, which is what it sounds like is developing here!

    I'm sorry you're having this problem! Hope it gets better soon!
    Hi Jasmine!

    Thanks for your reply.. I really do hope its not rhinophyma. That is of course my worst fear. I´m still hoping its something else going on. I don't have typical oily skin on my nose for example – my pores are really tiny – and I´m female also which makes the risk smaller. Both laser and accurate are really the last options I will go for – if everything else fails. I think mostly because they don't treat the cause of this and they both come with potential risks of making the condition even worse. I will give this at least a year of investigation before I consider any of those options.

    Thanks anyways!

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    Quote Originally Posted by Miaa View Post
    hello violetsareblue how r u
    i can feel your pain, i have rosacea subtype 2 i do flush but not the typical rosacea flush, my main problem is pimples flaky very tight red inflammed skin.
    i will tell u my expierence as i have been battling this disease for quite some time now
    i really really do believe that we have to treat rosacea internaly and externally BOTH
    so what im doing is that im usipng topical erythromycin gel and metronidazole gel together on my face twice daily, and taking a probiotic with omega 3-6-9 capsules to deal with the inflammation internally
    for me, i have mal digestion, undiagnosed lactose intolerance for years that caused me alot of diarrhea, i strongly believe that i have a bunch of bad bacteria over there

    my mum has been cleared from rosacea becasue she has treated her stomach problems
    so my question is :
    1. have u found a suitable topical treatment that calms ur face?
    2. do u have any digestive problems or food allergy?
    3. im not sure, but r u the girl who was posting days ago about probiotics? if yes, it might causes worsening of ur rosacea symptoms for a while, its called a die off method, it happened to me, and still does, been now for 2 months on probiotics, and my symptoms r fluctuating

    i hope u can find a cure and more important inner peace
    and i totally agree with lizzy, im trying as much as i can not to look at the mirrors.
    hope u have a good day
    Hi Miaa!

    Thank you so much for your kind reply! It warms me a lot <3
    I am pretty sad.. trying my best to keep my mood up though. I know it doesn't get any better with me being totally depressed over this.
    It was me writing about probiotics the other day. I am still investigating that and hoping for some relief – I have found some interesting
    info on probiotics. I will share that in the probiotics thread.

    I agree with you – I think that the treatment has to come both from internal and external remedies. I have a really good diet atm and have
    had for around three months now, which has improved my skin a lot in general – the effects on my nose blushes are negligible though.
    The nose and my whole sinus area is very uppset and lives its own life atm..

    To your questions:

    1. No, I havent really found any topical working. My skin is so good atm – I have no pimples and it doesn't look inflamed at all. Its very smooth
    but very very dry, which I do have a good and gentle cream to treat. The main problem is the blushing episodes which can be extremely aggressive
    when they occure.. I know most rosacea topicals are to treat sub type 2 and I don't have those problems.. I might try something though because
    I feel very desperate to get some sort of relief.

    2. I am also lactose intollerant, I have been my whole life. When I was a child I could not tolerate milk at all but it got better as I grew older,
    however I am still avoiding lactose and dairy in general – because I am still lactose intolerant. I will be tested for more allergies later on this
    spring but the waiting is very long so for now I just have to try the best I can on my own before I get anything confirmed. My face/nose does
    feel very connected to my digestion – the blushing occurs almost always 1-3h after meals. After that it can be very calm. But when it happens
    the face actually swells :.....(

    3. I have realized that different probiotics does effect my blushing, so I am very careful and I try one thing at the time. I bought some plain greek
    yoghurt last week and my face became very flamy for about two days – so that one didn't work!! Now I will just continue with the probiotics that I
    have felt intuivly have the most calming effect.

    Thank you so much for your support!! It means so so much to me!
    Hope you have a good day as well!!

    /V
    Last edited by Violetsareblue; 3rd April 2017 at 04:44 PM.

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    Quote Originally Posted by elegantsquatlobster View Post
    Hey Violetsareblue! I am in a damned similar situation!

    So I understand your nose symptoms are inside nostrils, as well as on the skin of the nose. If it's not caused by allergies, then it is a vasomotor or nonallergic (just two different names for the same thing) rhinitis.
    I got my nose inflamed a year ago when I took antidepressants in small doses for about two months. The med made me flush way more. I quit it, and flushing stopped at least. But my nose has been a wild beast ever since.

    My nose symptoms: developed tiny visible vessels. My nose sometimes got red before those antidepressants but was generally quite fine - one of the safest areas of my face, and had zero visible veins
    Flushing and swelling, and stuffed feeling sometimes when I change temperatures rapidly - for example getting in public transport after waiting for it out in the cold. Flushing and swelling etc at somewhat random times. Dry, sore nostrils - especially when I wake up. Almost every day starts out like **** because I wake up in pain.
    Sensitivity and tingling on nose skin. I spent the entire last summer indoors because I couldn't stand a light breeze - it felt so uncomfortable and made me feel like it's harming my skin. I sat inside thinking that if I leave my nose alone, it'll heal but that wasn't the case unfortunately. Currently my nose is the worst part about my face and, damn, I wish I had never taken those pills

    Treatments I'm trying:
    So as I already said, the first few months I just hoped that if I leave it alone it will heal on it's own. Nope. Tried antihistamine nasal spray. Didn't help, made nose drier and overall worse. I was real sad about that Took some oral antihistamines like once but they're generally said not to help nonallergic rhinitis so I didn't bother much. Considered taking a steroid nasal spray but decided against it, I'll try it if all else fails. Steroids on rosacea skin are very bad so I figured I shouldn't put them in my nose either. Maybe it'd be okay, buuuut..maybe not! So right now in the last few days I've been trying rinsing nostrils with a saline twice daily. It's quite fun Haven't done it long enough to report results though. Another idea that I will try later is actually putting capsaicin in my nose. I already infused an oil - put cayenne pepper powder in it and heated up. So now I have a beautifully red, spicy oil in my fridge lol. This might really work - google capsaicin rhinitis and read the articles!

    Do you feel like your nose attacks start with your nose's skin going inflamed or your nostrils? I felt like mine most usually starts with my nostrils. Overall, I am so mad at myself that I just passively didn't do much about this for a goddamn year and just treated the symptoms with eating cold things and wishing for it to stop and suffered. Dumb lil me

    Oh and you said It's as if there is a build up inside of it an all of a sudden a release of that something. That reminds me of one article about the warm room flush theory. Check it out definitely HERE!
    Hi elegantsquatlobster!

    Thanks for your reply! It means so much to me just sharing with others helps the psychological part of this! I am relieved that I found someone who is in a similar situation.

    My nose was also my safest place – never blushed before 2015-16. I could basically copy paste the symptoms you describe. I will share my progress too and I will check out capsaicin rhinitis! I have an appointment to a dermatologist, so hoping him or her can cast a little light on the situation as well, I will share my experience. Did you get checked out by a doctor? Have you got any help/diagnosis from a dermatologist? In the meantime I am also working with multiple approaches to get some relief.

    To answer your question. I think that it all started with my eyes and then the outside of my nostrils/skin. I felt the tickle in the vessels I thought it was allergies and did not relate it to rosacea at all. Now, when I get my attacks my skin is where it starts – at least that´s how it feels – but it then spreads, making my whole nose/sinus area sore and swollen. My nose only gets stuffed inside, at night, when I sleep.

    My skin is pore less and my nose only has fine pores so its not like people describe rinophyrma symptoms with sebum and oiliness at all – it´s just very very dry, sensitive and over reactive – red!! Its like it has come to live or something.. I had several big changes in my life 15-16, so its hard to pin down which one could have been accelerating the nose but I feel that even though finding a cause can sound trivial – its feels important.

    May I ask what antidepressants you were taking?

    One thing that has been under my radar is that I took beta blockers (metoprolol) at first once every now and then 2016 and then in nov-dec I took them daily (I was under tremendous stress). I have lately read that some antidepressants + beta blockers etc can have side effects on the sinus – cause rhinitis – but nobody mentioned this to me and its not listed as a side effect from medication that I took. Also I thought that side effects would appear after years of usage – not after a couple of months on the lowest dose!! I also thought side effects occure while taking the medication and that they then subside the month after you stop. In my case that doesn't seem to happen. Metoprolol is a very common medication for people with high blood pressure here and they usually take much higher doses!! I took a very low dose for a short time.. I must be hyper sensitive! However, my nose phenomena has developed while taking this medication. And I did have a weird feeling about it as I felt like it sort of moved/redirected my blush from my cheeks to my nose.

    Thanks for the warm room link! I will check that one out!!!

    I hope I have some good news soon!

    Have a lovely night and good luck to you as well!!

    //V

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    Violetsareblue,

    Yes, I checked with my derm. She said my nose doesn't look that bad to her and insisted that I have no visible capillaries on it which is really not true. She advised to get an air humidifier. I bought one and it helped somewhat but didn't stop my nasal symptoms completely. I was still a mess. Then I also visited an otolaryngologist and she was really nice to me (I wish all drs were like her lol) and listened and really wanted to help but in the end she just said she doesn't know how to because I had tried all kinds of nasal oils and salves and everything else I mentioned in my previous post. So Drs didn't help that much :/

    My nose, on the contrary, has gotten really oily. The oiliness itself doesn't bother me that much but it must mean something's wrong and that bothers me.

    I was taking Anafranil 10 mg per day. It's a SSRI and I've read those can help with blushing/flushing. I guess that's why I got prescribed them but, sigh, they really screwed me up.

    Beta blockers can cause rhinitis! It isn't mentiond much, yes, but if you google beta blockers and rhinitis there is an established link between the two. Quite a bunch of things can cause it, actually! Only when my rhinitis started I found out you can get it from SSRIs sometimes. Also, NSAIDs can cause it - for example, even basic aspirin when you use it continuously. Crazy, right?
    I also tried beta blockers(propranolol, up to 40 mg) a few times but they never helped me with blushing so I stopped. Luckily, didn't get any side effects from them.
    Yes, sadly, with medication you can't tell who's gonna get what side effects, for how long etc. That's just how it is with current medicine.

    So I can do a small update now - I kept on rinsing my nostrils with saline twice daily for about a week but stopped. Sometimes it seemed to help but overall I felt inflamed nostrils often and the irrigation process itself was messy and I couldn't seem to do it right sometimes no matter how much I tried. So I ended it.
    I will update on capsaicin later.

    Thank you! I'd also be really happy to be able to deliver good news soon! All the best to you
    Last edited by elegantsquatlobster; 9th April 2017 at 06:12 AM.

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