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Thread: Thank you everyone! ♥

  1. #1
    Senior Member
    Join Date
    Sep 2015
    Posts
    431

    Default Thank you everyone! ♥

    Just want to say thank you to everyone. You have all been so kind and understanding and supportive to me while I have been going through this horrible extended Mirvaso injury. And you are all struggling with your own serious and challenging conditions. But, you take the time and patience to be helpful to me even though I ended up here from malpractice. And I know I have been panicked and angry and really lost in this nerve pain. I see how thoughtful and helpful you are to everyone else here as well. You are strong, resilient, calm, patient, and wise. You help support people in going through the difficult process of improvement, while helping us to not get further injured by meds.

    I understand clearly now. I never had rosacea. I had clear, pale, beautiful, healthy skin. No history of blushing or flushing. I was overtreated with antibiotics. A normal side effect is light, mild flushing. I flushed a few times, very light, mild. It would only last a couple minutes. I was in a healing process. That usually takes at least a year. Six months along I was doing great. I went to a dermatologist. I could have used something like niacinamide to heal and repair the moisture barrier in my skin. And dietary changes. But, the dermatologist over reacted, misdiagnosed (didn't use her eyes or brain), scared me, very wrongly prescribed without informed consent. I almost didn't fill the prescription. But, she scared me. So, I tried it. And the nerve pain was so severe that it completely overwhelmed my body (new dermatologist explained it). It was just a disaster. I was under extreme stress, in a constant state of terror. Couldn't lie down to sleep. Constant nerve pain. Couldn't eat. Lost too much weight. Went on a strict diet that led to gut injury and food intolerance. Developed severe cystic acne (never had acne in my life). Mirvaso destroyed my health and life.

    I am not better. It's going on six months since trying mirvaso. But, I am hopeful I can continue regaining my health. It's going to be a long process. I have been to two more dermatologists. They both say I don't have rosacea. And yet, I have chronic neurogenic nerve pain. Have to monitor my diet to prevent flushing. And I have some kind of cystic acne. My hormones don't reflect that. My skin is hypersensitive from Mirvaso.

    I don't know if I have a life long nerve injury or a life long condotion. Or if I will recover. I don't know what I have. I don't think any doctors really do. But, I have been to a general practitioner, urgent care, rheumatologist, two neurologists, an allergist/immunologist, 3 dermatologists, 2 naturopaths. I am seeing a neuro-opthalmologist tomorrow. Have a referral to a GI specialist just in case. I have had a CT scan. Probably other doctors I am forgetting. Had tests. Scheduled to see a functional doctor this summer.

    I don't know if I will get better. I am hopeful enough to keep trying to regain my health and maybe rebuild my life again.

    My Rheumatologist has been most amazing and helpful. I couldn't have survived this mentally without her. She even suggested I start a lawsuit. And all of you here. I really couldn't have gotten through this mentally without you all. I have been pushed to my mental breaking point. I have experienced a darkness I never want to experience again. I am trying my best to keep myself out of that darkness.

    I just really wanted to say Thank you! Not everyone has responded kindly to me out on the internet. And I understand. I was really traumatised by this Mirvaso injury. But, you all have been very kind always. I also do want to look into a possible class action lawsuit. Either here in Canada or the US or both if possible. I have read the info about the Canadian class action lawsuit against yaz/yasmina birth control and spoken to people injured by it.

    I definitely recommend Ben Goldacre. He is a doctor and epidemiologist. His website is Bad Science. He has two TED talks and books. Bad Science and Bad Pharma.

  2. #2
    Senior Member
    Join Date
    Sep 2015
    Posts
    431

    Default

    Sorry this is so long. Lol

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