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Thread: Accutane?

  1. #1
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    Default Accutane?

    I saw a third dermatologist today. The first one wrongly prescribed mirvaso and severely injured my face five months ago. I didn't have rosacea. Now, I have something like neurogenic rosacea from Mirvaso. The second dermatologist said she could only prescribe doxycycline, but I was also injured by antibiotics, so there is nothing she can do. She thought the antibiotics ultimately led to the onset of severe cystic acne that happened after Mirvaso. And she doesn't think I have rosacea. But, she was clueless about Mirvaso. This new derm does understand how harmful Mirvaso is. She also said I don't have rosacea. She said I had mild flushing from the antibiotics and never should have been prescribed mirvaso or diagnosed with rosacea. She thinks I have cystic acne because of the severe traumatic stress caused by Mirvaso and the chronic nerve pain (plus I already had ptsd). And the diet that controls my nerve pain has caused GI problems and screwed up my health. She thinks I should see a GI doctor, a neurologist, get psychiatric help. She thinks I should take 10 mg of Accutane a day. She says the acne is scarring my face. She said she only deals with skin, not the health of my body and she is a western doctor so she only knows how to prescribe meds. She says it's not safe for me to take antibiotics. She said my regular doctor has been very wrong not to refer me to a GI doctor. I don't know what to do. Take Accutane to stop the cystic acne. Or not because what if it worsens my nerve condition and flushing disorder caused by Mirvaso.

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    And what if it further damages my GI system and/or causes worse food intolerance that further damages my GI system. My health is so destroyed since Mirvaso. My life is destroyed. I am destroyed. But, this cystic acne is really difficult to live with and it's scarring my face. I am living in a nightmare. I never could have envisioned my life turning out this way. I am pretty suicidal. But, I am going to start therapy next week. Because talking will magically restore my health, face, life, and stop me from wanting to die.
    Last edited by TinyDancer; 6th February 2016 at 03:20 AM.

  3. #3
    Senior Member Mistica's Avatar
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    I am very sorry to hear your journey has worsened. Like you, I often sit and think about the fact, 'if only' I hadn't been to see a doctor, I would likely be a healthy person. My disastrous journey started years ago, long before brimonidine and metro, but the latter two were the icing on the cake of hell.

    That aside....

    I am sure you are familiar with accutane induced flushing and how it is usually irreversible.
    I implore you to avoid it.

    Obviously if you are suffering scarring you do want to find a treatment that will prevent more of this and hopefully heal what you already have, but I am sure there are ways to achieve this without throwing yet another log onto the roaring fire of disaster to which you have already succumbed.

    My personal feeling is, you need to find a holistic physician. Not a Naturopath. You need someone who actually understands biology and has a solid history of success with complex patients.
    Based on what you have said about diet, I tend to think this plays a role.
    You may have nutritional deficiencies, including vitamin A, but again, I don't think Accutane is the way to go.

    Do you have any integrated physicians where you live? Within this community they often specialise in different disorders.
    Previous Numerous IPL.
    Supplements: Niacinamide, Vit K2, low D3, Moderate Dose Vit C, Iodine, Taurine, Magnesium. Very low dose B's. Low dose zinc (to correct deficiency).
    Skin Care: No Cleanser, ZZ cream mixed with Niacinamide gel 4% and LMW HA.

    Treating for gut dysbiosis under specialist care. (This is helping).
    Previous GAPS diet. Testing tolerance of resistant starch.
    Fermented Foods. 2 to 3 days per week, Intermittent fasting -16-18 hours.

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    Mistica, thank you so much for your info and words of wisdom. I think you are right!!! I almost let this dermatologist scare me into trying another dangerous med. I even think she is exaggerating the scarring. Why do they do this. I already struggle with body dysmorphia disorder. That's why I went to the dermatologist the first time and why I took the med she prescribed. It's a huge source of my stress. It's from the ptsd I have. You are right! I think we have functional medical doctors. I think I should try to find one. I haven't found any here. But, I am sure there must be some.

    Thank you for opening up and sharing as well. I am so sorry this all has happened to you. I know you have suffered very much. You are strong. And you are very kind and helpful.

    Yes, I think I have gastrointestinal problems and food issues. And the ptsd that was increased severely from the nerve pain.

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    The derm prescribed 10 mg. Some people take as little as 5. I even read a study that as low as 2.5 was very effective. I wonder if that could work and be safer. A lot of people take 20 two times a day or more.

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    It sounds to me like your demodex have penetrated down to a level that is causing a severe inflamatory condition. I also have the same.

    I suspect i will have to take accutane eventually.

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    Mistica has given some good advice. You need to get your body back in balance and I think investigating the GI link could be helpful, especially with the help of a holistic doctor. After all you have suffered from the other meds, I do not think another strong med like accutane is going to help you, especially when it is known to be hard on the liver. Many alternative medicine professionals view cystic acne to be a result of the liver not being able to remove enough of the hormones and toxins from the blood. I have no idea if this has merit but if your liver is already compromised, you certainly don't want to be taking any meds that might further weaken it.

    Don't let doctors bully or scare you into doing something that goes against your intuition about your body. I knew that I would probably react badly to prednisone and expressed that to the doctor yet out of desperation to feel better allowed the doctor to convince me I would be fine. It was the last straw that landed me bedridden for four months. When I tried to call the doctor to tell him about the horrible reaction I was having, he was on vacation! I never went back to him.

    Do get support for the emotional issues. Are you able to dance even a little? It seems like being a dancer, getting some of your emotions out through dance might be beneficial and help bring some balance-- something I am sure you know a lot about.

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    Thank you! Thanks for the support to remind me to go back to trusting myself, healing my body, getting at the root causes. Rather than getting scared by doctors not to trust my healing process (which is slow and difficult) and further destroying my health. As has already happened too many times. I am so sorry that happened to you. You give me hope that I can get through this too. As I was sitting in the derm office I felt so stressed, scared, and hopeless my face broke out in swollen welts right before our eyes. I said, "You are saying stress from Mirvaso has caused this. So, if I can reduce the stress will I..." Before I could finish she skeptically said, "What? Just heal?!" She told me I needed to get on psychiatric meds. Like everything requires a med. That's why I scheduled therapy. So doctors won't recommend more meds. I am going to my Rheumatologist on Tuesday. I'm sure she will reassure me not to take meds and that I can recover. I hope. She knows auto-immune diseases are not curable. But, this is medical injury. Not auto-immune disease. She knows that now. And hopefully she will refer me to a GI specialist. She referred me to the derm and the neurologist. And I also scheduled to get examined by the neuro-opthalmologist in two weeks.
    Last edited by TinyDancer; 7th February 2016 at 09:59 PM.

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    I haven't been able to go back to dancing yet. I am choreographing for the kids because I can't let them down. It's incredible how much I have declined physically in these five months. I was so young, healthy, fit, dancing. Now I am skinny, lost muscle, can barely do beginner yoga for 15 minutes. But, I am walking and doing yoga. Trying to get back again. I have lost myself.

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    Even if just working with the kids, I think that is great to do. Hearing the music and using your gifts and talents. I know it is really hard not to focus on what is lost... I go through it a lot myself... But the more you focus on what you can do and enjoy the things you love, the greater help it will be. Keep going.. You can and will get there!!! <3

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