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Thread: Vbeam for severe flushing/burning?

  1. #1
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    Default Vbeam for severe flushing/burning?

    Hi,

    I've been experiencing severe, debilitating flushing and burning on my face for the past year and a half, and on my ears and chest for the past six months. The doctors think the severity would best be diagnosed as erythromelalgia and/or neurogenic rosacea. I'm considering Vbeam (suggested by derms) or maybe even a sympathectomy/sympathetic blocks of some kind (though less enthusiastic about that possibility). I was wondering if anyone had found Vbeam useful for severe, heat-related flushing and burning? I'm very nervous Vbeam might actually make the pain worse (which seems to involve nerve damage fueling the pain), but am also desperate to find something new to try if it might give relief. Also, if one has extremely sensitive skin/problems with seborrheic dermatitis too, can healing after laser be a problem or still work?

    My flushing seems especially heat responsive: I flush from any increase in heat over 70 degrees (as well as "triggers" like eating, getting animated at all, etc.) and all through the night as I sleep. The burning pain is very intense and constant (even when I'm not in an active flush). I've also been experiencing seborrheic dermatitis, presence of demodex indicated in biopsies, and pustules/small bumps over much of my face--along with extremely sensitive skin. I can't tolerate any topicals anymore. A number of medication attempts to reduce the flushing (clonidine, propranolol, prozac, carvedilol) and pustules/rashiness (oracea, ivermectin) and pain (neurontin, lyrica) have not been very successful so far, so Vbeam seems like a possible next step. Any experience anyone has had with Vbeam (or sympathetic blocks) for these kind of symptoms would be much appreciated!!
    Last edited by AEB; 3rd February 2016 at 11:53 PM. Reason: change content

  2. #2
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    I recently had a purpuric V Beam for severe burning, and mild redness. This was far from my first V Beam, but it was definitely the most powerful by a long way. I would say it definitely helped my burning and redness in the short term. I was going through a period of constant burning in my cheeks and nose, and after the V Beam that has now subsided, albeit not completely. I will go for another one once the symptoms get bad again. For me, my flushing is very mild but the burning is unbearable. The V Beam helped both, but I would say it helps redness a lot more than it does the burning unfortunately. Hope this helps anyway.

  3. #3
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    Quote Originally Posted by Seb91 View Post
    I recently had a purpuric V Beam for severe burning, and mild redness. This was far from my first V Beam, but it was definitely the most powerful by a long way. I would say it definitely helped my burning and redness in the short term. I was going through a period of constant burning in my cheeks and nose, and after the V Beam that has now subsided, albeit not completely. I will go for another one once the symptoms get bad again. For me, my flushing is very mild but the burning is unbearable. The V Beam helped both, but I would say it helps redness a lot more than it does the burning unfortunately. Hope this helps anyway.
    Thanks! I'm glad to hear that Vbeam worked for you. It's nice to hear that something can relieve the unbearable burning!

  4. #4
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    It's definitely worth a shot. You're most likely going to want to pursue the purpuric vbeam for the intense flushing. It won't completely clear your condition, but you should see significant improvement after 3-4 sessions.

  5. #5
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    Hi AEB Did you try Vbeam? I seem to be the same as you. Hope it worked for you if you tried it.

  6. #6
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    Hi Lesley,

    I'm scheduled to consult with a laser specialist (who was highly recommended by some people with flushing) and maybe do a test spot with VBeam in a few weeks. I'll let you know how it goes--hopefully it can help you too!

  7. #7
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    Yes im hopeful for you AEB

  8. #8
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    Default Vbeam for burning

    Hello folks -

    About 2.5 years ago I began having the debilitating burning you all speak of. It was so bad that I had to take time off of work. I went to a plastic surgeon and supposed laser specialist. He conducted about 5 aggressive IPL sessions. It completely took away the burning however it left me with some skin damage (I am positive). THis doc told me that IPL is the gold standard in treatment of burning and veins from rosacea. I was so totally vulnerable that I took his word as God and did what he said. Plus I was desperate for relief. When I felt that I began to notice little lines connecting on my face I brought it up with him. He of course denied it completely. I could not touch IPL after that, except for on my nose to help breakdown the vasculature. I have nose swelling and I hate it.

    My question, what is truly best for helping with burning and some redness without the risk of damage? Or is that even possible? I am now too terrified to ever put a laser, light energy on my skin again (except for nose).

    Many sincere thanks.

    Wendy

  9. #9
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    Default Need laser derm recommendation

    Hi AEB

    how did your vbeam session go? i hope you received good result!

    also could you please share the laser specialist info?

    many thanks.



    Quote Originally Posted by AEB View Post
    Hi Lesley,

    I'm scheduled to consult with a laser specialist (who was highly recommended by some people with flushing) and maybe do a test spot with VBeam in a few weeks. I'll let you know how it goes--hopefully it can help you too!

  10. #10
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    Sorry it's taken so long to reply. i've seen bradley bloom (ND:Yag and Botox) in nyc and eric bernstein (Vbeam) near philly. both were very good and I've had some improvement, though i will contine since not as much as id like. hope this helps!

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