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Thread: Soolantra

  1. #621
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    Default

    Hi to you all.

    I am glad I found this forum. Reading here made me feel better. Thinking that I am not alone. I have been struggling with rosacea for over a year now. Before, I had a good skin with some pimples now and then. But for a year, it has been a nightmare for me. Doctors never knew what I exactly had. First they thought eczema, later hormonal acne. This time my dermatologist said they it is rosacea. It has it's ups and downs. Like yesterday night before I went to sleep, I had very little redness and no bumps at all. It was cleared up but when I woke up in the morning, surprise surprise, there it was.

    Yesterday was my first day of using soolantra. I read here that it can worsen your rosacea at first. Maybe that is the reason why I got flamed up. My rosacea is more in the centre of my face. Around my nostrils, my mouth and up to my cheeks. My nose hurts badly everytime. It swells up and my skin feels very thick. My rosacea is red with little bumps. It is very itchy :/

    I think I need to be patient and wait to see some improvement with soolantra. Hope this works for me

  2. #622
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    Default soolantra

    pinkcupcake,

    How did you get Ivermectin, I am assuming pills, in Canada? I asked my doctor for the pills, but he said they were not available in Canada???
    I really wanted the pills as my eyes are so bad and the eye specialist said it was most likely demodex. I have had tea tree oil treatments at the eye doctor 2x where they give you a "turbo" treatment of 20% tea tree oil and have used the Cliradex wipes for 2 mos. My eyes are still not white and the R eyelid remains inflamed. I continue to lose eyelashes and eyebrows, so I am wondering if I need to give the Cliradex wipes a break. Only doing once a day now. Most days, I just do not know what to do anymore: Wash the face once a day, wash the face twice a day; use the wipes, don't use the wipes; use Soolantra, don't use Soolantra???

    I am so done with this whole nightmare. Mine has flared in the eyes since July and the flushing and skin flare has been for 2 mos now. I did one round of Soolantra for 6wks then got really ill and could not continue for about 2wks. I have found that the cream is very drying for me. I have terribly dry, thin skin.

    Now started up again at least 3 wks ago. Have not seem to get anywhere except that the redness and flushing is getting worse. The flushing is very extreme and comes in waves at least 2-3x/day. My skin is getting so damaged by the intense heat and swelling. I think I am going to need some treatment for all the broken capilliaries. Do you know where to go for IPL in Vancouver that knows rosacea? The sides of my nose are swollen now. I hate leaving the house as I do not know if I am going to have a flushing attack. I tried Mirtazapine, but had to quit as it gave me unbearable headaches. Am going to ask for clonidine next as I can't go on like this. I would appreciate the name of your derm as mine is not very supportive and believes Soolantra is only for type 2. I would love to find a derm open to holistic therapies.

    Sorry for the rant...just SO frustrated and do not know what to do anymore. I seem to have "skin envy" everywhere I look LOL!!!

    Best of luck and health to all fighting this battle

  3. #623
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    Blue Dog

    I also have ocular rosacea. Why did the optho say yours was probably Demodex? Did the doctor explain himself? I also use Cliradex and Soolantra. Soolantra works for my face but my eyes are very resistant.

    Just curious!

  4. #624
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    Smile soolantra

    Hi Faith,

    Oh to have white eyes again, sigh, no swollen lids or sore eyes!

    He said that everyone except the very children have demodex. As we age, apparently the demodex population grows even greater. The first tea tree oil treatment he did seem to clear it up completely, except for a mildly swollen lid. Then about a month later, it came back with a vengence and I have not been able to lose the ocular rosacea in both eyes and blepharitis (R eye only) despite 2 more tea tree oil treatments and cliradex wipes for 2mos. I am losing eyelashes and eyebrows on the L eye. Go figure? I even tried the Soolantra on the brows and they still fell out. I am not sure what I am dealing with anymore. No one has done a demodex face scraping and I keep my eyelids very clean, no crusting to analyze.

    I am giving the Cliradex a break as I found it very irritating and drying. I started castor oil on the eyebrows and lashes to help them grow back. I wish I knew what was going on. I am wondering if too much tea tree oil weakens the eyebrows and lashes causing them to become brittle and fall out?

    Am seeing a different optho in 2 wks for another opinion. I realize that there is no cure, but I would like it to become manageable once again.

    I have had this R eye blepharitis since Oct of last year when I awakened one morning with a swollen lid. My rosacea was dormant until just this summer when the eyes were flaring also.

    Hang in there. I will post after I see the the new optho. Maybe there are some new magic eyedrops out there!

  5. #625
    Senior Member Brady Barrows's Avatar
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    Quote Originally Posted by Esen View Post
    Hi to you all.

    I am glad I found this forum. Reading here made me feel better. Thinking that I am not alone. I have been struggling with rosacea for over a year now. Before, I had a good skin with some pimples now and then. But for a year, it has been a nightmare for me. Doctors never knew what I exactly had. First they thought eczema, later hormonal acne. This time my dermatologist said they it is rosacea. It has it's ups and downs. Like yesterday night before I went to sleep, I had very little redness and no bumps at all. It was cleared up but when I woke up in the morning, surprise surprise, there it was.

    Yesterday was my first day of using soolantra. I read here that it can worsen your rosacea at first. Maybe that is the reason why I got flamed up. My rosacea is more in the centre of my face. Around my nostrils, my mouth and up to my cheeks. My nose hurts badly everytime. It swells up and my skin feels very thick. My rosacea is red with little bumps. It is very itchy :/

    I think I need to be patient and wait to see some improvement with soolantra. Hope this works for me
    I am on day 70 with Soolantra. I can assure you that it will get worse before it gets better. Generally this is what happens from most of the anecdotal reports in this thread. Have you read the entire thread? In the clinical reports on Soolantra 40% of patients were clear/almost clear at 12 weeks. I can also assure you that Soolantra is not for the faint of heart. But I will give Soolantra at least a full twelve weeks and report my findings in a thread at the RRDi (with photos).
    Brady Barrows
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  6. #626
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    Quote Originally Posted by Bluedog View Post
    pinkcupcake,

    How did you get Ivermectin, I am assuming pills, in Canada? I asked my doctor for the pills, but he said they were not available in Canada???
    I really wanted the pills as my eyes are so bad and the eye specialist said it was most likely demodex. I have had tea tree oil treatments at the eye doctor 2x where they give you a "turbo" treatment of 20% tea tree oil and have used the Cliradex wipes for 2 mos. My eyes are still not white and the R eyelid remains inflamed. I continue to lose eyelashes and eyebrows, so I am wondering if I need to give the Cliradex wipes a break. Only doing once a day now. Most days, I just do not know what to do anymore: Wash the face once a day, wash the face twice a day; use the wipes, don't use the wipes; use Soolantra, don't use Soolantra???

    I am so done with this whole nightmare. Mine has flared in the eyes since July and the flushing and skin flare has been for 2 mos now. I did one round of Soolantra for 6wks then got really ill and could not continue for about 2wks. I have found that the cream is very drying for me. I have terribly dry, thin skin.

    Now started up again at least 3 wks ago. Have not seem to get anywhere except that the redness and flushing is getting worse. The flushing is very extreme and comes in waves at least 2-3x/day. My skin is getting so damaged by the intense heat and swelling. I think I am going to need some treatment for all the broken capilliaries. Do you know where to go for IPL in Vancouver that knows rosacea? The sides of my nose are swollen now. I hate leaving the house as I do not know if I am going to have a flushing attack. I tried Mirtazapine, but had to quit as it gave me unbearable headaches. Am going to ask for clonidine next as I can't go on like this. I would appreciate the name of your derm as mine is not very supportive and believes Soolantra is only for type 2. I would love to find a derm open to holistic therapies.

    Sorry for the rant...just SO frustrated and do not know what to do anymore. I seem to have "skin envy" everywhere I look LOL!!!

    Best of luck and health to all fighting this battle
    I /so/ understand where you're coming from! This entire disease is so baffling and no one really seems to offer much in the way of actual science relating to cause/cure. Most doctor's I've seen have told me that I will have this forever and the best I can do is control it. If it's demodex though, I hardly see that as being the case. We can and will eradicate these bastards!! If it's not demodex...well, it's back to the drawing board for me and everyone I know will think I'm totally bonkers (oh hey, it's the girl with the "bugs under her skin"...le sigh). I just started my course (I'm in school to be a facialist) at the Dermal Institute and we had a well known dermatologist in today so I was able to pick her brain. She said that Soolantra may do more than just kill mites, they believe (the mechanism by which they're not entirely sure of) it also helps with inflammation and possibly skin barrier repair. But we all know it sure seems to take its sweet time. The derm did say that Soolantra is also tolerated (generally) better than. Most other treatments like Metrogel/Cream and Finacea - both of which are really crap for us dry skinned folks.

    I just do topical ivermectin and I use the Cliradex wipes (they seem to have really helped my ocular symptoms). Have you checked in to low dose doxy? That helped my eyes right away as it's very anti inflammatory. Also what about food grade Diatomaceous Earth? It's supposed to be great for killing critters - I'll have to do more research into its effect in demodex but I know a few people who have perioral dermatitis who swear by it. And many derms tend to think demodex can cause PD as well. So it may be something to look into.

    My derm is Ambleside Dermetics in west Vancouver. (AmblesideDermedics.com) and she definitely does quite a lot of IPL (though I've not gone that route yet). She prescribed me a compound cream mixture with Azalaelic Acid (finacea), Metrocream, sulphur and zinc. I was going to get it filled (and it's way cheaper than Soolantra) but I thought that I should try to kill the demodex first and if that doesn't work then I'll get her prescription filled. The one thing she added to it was .5% cortisone - and I am totally against putting steroids on my face (especially since they're known to actually cause Rosacea and PD). It's a very small amount, however, but still something to be cautious of. There is also Dr. Joanna Day (she's downtown Vancouver) - I've not seen her yet as she's a privatized derm and I didn't want to pay a fee for the same old pat "you have classic rosacea" answer that everyone else has given me. Honestly only one doctor I've seen even looked at my skin - incredibly frustrating! But I may see her after I've given Soolantra the proper time to work.

    Sorry for rambling! I will report back as I have any updates or learn anything new in skincare school 😊Sending happy skin vibes to everyone!

  7. #627
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    Quote Originally Posted by Brady Barrows View Post
    I am on day 70 with Soolantra. I can assure you that it will get worse before it gets better. Generally this is what happens from most of the anecdotal reports in this thread. Have you read the entire thread? In the clinical reports on Soolantra 40% of patients were clear/almost clear at 12 weeks. I can also assure you that Soolantra is not for the faint of heart. But I will give Soolantra at least a full twelve weeks and report my findings in a thread at the RRDi (with photos).
    Is it only 40%? I was hoping it would be higher, but still, perhaps I will be in that percentile!

  8. #628
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    Quote Originally Posted by pinkcupcake View Post
    Is it only 40%? I was hoping it would be higher, but still, perhaps I will be in that percentile!
    If I remember correctly, it was around 40% at 12 weeks and around 70% at 12 months so worth persevering!

  9. #629
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    Default Long Term Results of Soolantra

    Quote Originally Posted by pinkcupcake View Post
    Is it only 40%? I was hoping it would be higher, but still, perhaps I will be in that percentile!
    My dermatologist told me that only one in four of his patients improve with Soolantra. This could be because they quit after they see it gets worse after using it? Everything I have read says you have to go through at least 90 days (little more than twelve weeks). However, to be sure it may take even longer according to this report on the Soolantra web site:
    soolantra_long_term.jpg
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  10. #630
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    Bluedog,

    My eyes really only flare badly "around that time of the month" so it is totally hormonal. They never used to only flare at that time, it was always random. Now it is only one week before my period. I have some mild rosacea on the face as well, but its mostly the eyes that really bother me. I use Cliradex too but I am unsure it helps much. My doctor doesn't think my eye condition is demodex, but I am not convinced.

    Soolantra has helped my face. If I do not use it for a few days I will get flushes at night.

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