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Thread: Big regrets with doxycycline

  1. #21
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    Country: United States

    Default my story

    [COLOR="#0000CD"][/COLOR
    I have had rosacea for over 20 years and have been lucky compared to the horror stories I am reading, My Dr gave erithromycian I think a 3 month course witch cleared it up and I used metrogel for years. I very rarely use the gel anymore until I had laser surgery on my eyes for glaucoma. Then the ocular rosacea showed up. I had eye antibiotics almost continusiously for 4 months then a 3 week supply of doxycycline for 3 weeks with the antibiotic eye drops
    Worked for 3 weeks and it was back. I spend the winters in California and we have a salt water pool. I started swimming without goggles and my eyes got immediately better. I take a Neils Sinus rinse salt packet and put it in 3-4 oz of sterile water and use it several times a day I have been clear for 3 months, although I feel it coming back, I think part of my problem is dry eye.
    Maybe this will help you??? I hope I know how miserable you can be but I am lucky with my face It very rarely gets red anymore


    My first post. Sorry that it's a bit long but I just feel that I need toe put everything into context. I've had rosacea for more than 15 years. The first ten years it was untreated and it progressively got worse. I was in denial.

    Then in 2008 I work up one morning with a massive flare-up. My skin was red and burning and it stayed red and burning for days. That flare-up left permanent damage and redness.

    Soon after that I had my first laser treatment and was given a tube of Skinoren (Finacea) to use. The Skinoren cleared my rosacea up very nicely (most of the time it was unnoticeable that I even had rosacea) however I developed almost immediate SEVERE ocular rosacea which I had never had before. It literally felt as though everything living on my face (demodex?) had got up and walked into my eyelids. The next two or three years were a very, very dark time in my life. To be honest, I didn't know if I could continue living with such extreme eyelid discomfort. Eye specialists could give me no answers or solutions.

    A couple of years ago I decided to finally try antibiotics (which I had been avoiding)and I asked my doc for a 50mg dose of doxycycline (Oracea is not available where I live). It worked really well for me and I could actually go out without any make-up on. After about six months though I developed a terrible burning sensation in my oesophagus and stomach and it got so bad that I could barely eat. I came off the doxycycline. Within ten days my skin was worse than ever. Instead of the rosy cheeks and nose I had had previously I now had blotchy red patches, broken skin and pimples (which I had never had before). Anyway I managed to stay off the doxy for seven months and then felt that I wanted to give it another go. It cleared my skin up nicely for a while but then my skin started to look bad again despite taking the doxy. Ten days ago I developed sever burning in my stomach and throat and had to stop the doxy again. My doc thinks I have a duodenal ulcer so I am off the doxy and on omeprazole for the ulcer. After being off the doxy for ten days my skin is already starting to look inflamed, red and broken.

    Anyway, to summarise, the doxy did help give me some ocular relief and clear my skin for a while but ultimately I feel it has done more harm than good. My skin is worse than it was before, my stomach is destroyed and the Skinoren gel no longer works to clear up my skin. I really don't know what to do now regarding treating my rosacea.[/QUOTE]

  2. #22
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    Default

    So the metrogel didn't help you, either? Have you tried OTC Prosacea? Just asking because the metrogel by itself wasn't completely helping me and then I paired it up with Prosacea and within a couple of months my p&ps were pretty much gone. It has 1% sulfur in it and it's homeopathic. It helps some people and with others it doesn't do much, but I got lucky. I'm sorry about your ocular rosacea, too. I hope I don't develop it.

  3. #23
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    Country: South Africa

    Default Rosacea face burns mostly in winter

    Quote Originally Posted by Kalamazoo View Post
    flahflah, thanks so much for these interesting links.

    Yes, I've read about licorice and I have a little bottle of licorice drops at home. I will definitely start taking them regularly once I have resolved the pain and discomfort.
    i have found using Apple cider vinegar gets rid of the pimples however you have to apply it undiluted directly onto the area. i have not found anything that will help with the redness. Any one heard of VEINWAVE treatment? i am looking into trying this.

  4. #24
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    Hi jes, There are some older threads on the forum where members talk about veinwave. The search bar will help you. I read through some of them myself. I think it seems risky, so I'm staying with IPL and vbeam.

    When you put the ACV on pimples, do you use a qtip to apply only to the spot and does it sting?

  5. #25
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    If you can't take orale Doxy, you should continue Finacea and try Soolantra asap. Soolantra will give you the answer about demodex.

    I recommand to make a test for SIBO. The main root cause of Ulcer is H. pylori. You could be tested for it. Several study show a link between H. pylori and rosacea.

    Have you try probiotic to repopulate your gut after so long use of antio?

  6. #26
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    Country: Hong Kong

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    Quote Originally Posted by jes View Post
    i have found using Apple cider vinegar gets rid of the pimples however you have to apply it undiluted directly onto the area. i have not found anything that will help with the redness. Any one heard of VEINWAVE treatment? i am looking into trying this.
    Jes, have you tried tetralysal?
    I complaint about the redness to my derm and then he prescribed tetralysal 300mg for 2 weeks. I paired it up with metro topical and this combination worked well in removing redness.
    For your information, my case is mild to slightly moderate, and my facial flushing is like a copper red tint underneath skin. Hope this helps!

  7. #27
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    Hi Kalamazoo, what's the latest? Are you OK?

  8. #28
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    Quote Originally Posted by Incognito84 View Post
    Interesting info thanks for that.
    I get really bad break outs so much that they start to bleed and I can't move my face. I also would never have a good sleep cause of the pain. I was on doxy as well which helped but was too harmful on my body. My derm presribed me approlin, it is a less dosage than the doxy which I have no issues with body and helps my face tramendously. Also when I have a bad flare up I use calamine lotion and helps. Takes away the bumps almost right away. I even once a week sleep with it on to sooth my skin. Hope that helps 😊

  9. #29
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    Country: United States

    Default Mastic for h.pylori might help instead of antibiotics

    I am having a poor reaction to Doxycycline for ocular rosacea. I never had facial symptoms of rosacea and after I had trabeculectomy surgery for my glaucoma I was left with painful, red and irritated eyes. 6 months later and three consulting doctors some of the redness and irritation is gone after taking doxycycline, but the idea of being on antibiotics for the rest of my life seems like a really bad idea for my health. I was researching my glaucoma and came across this article (among others) that showed some promising results when taking mastic for h.pylori. As you might know h.pylori is the bacteria implicated in causing rosacea as well as ulcers and maybe even glaucoma.

    It's easy to keep reinfecting yourself with h.pylori as it has been found in samples of food taken from the grocery store!

    Mastic has been used for centuries in Greece for stomach ailments. Maybe it can help and be more healthy than Doxycycline. Here is an article from New England Journal of Medicine. I wish everyone help and hope with their rosacea struggles.

    http://www.nejm.org/doi/full/10.1056...2618#t=article


    Quote Originally Posted by Kalamazoo View Post
    Hi everyone

    My first post. Sorry that it's a bit long but I just feel that I need to put everything into context. I've had rosacea for more than 15 years. The first ten years it was untreated and it progressively got worse. I was in denial.

    Then in 2008 I work up one morning with a massive flare-up. My skin was red and burning and it stayed red and burning for days. That flare-up left permanent damage and redness.

    Soon after that I had my first laser treatment and was given a tube of Skinoren (Finacea) to use. The Skinoren cleared my rosacea up very nicely (most of the time it was unnoticeable that I even had rosacea) however I developed almost immediate SEVERE ocular rosacea which I had never had before. It literally felt as though everything living on my face (demodex?) had got up and walked into my eyelids. The next two or three years were a very, very dark time in my life. To be honest, I didn't know if I could continue living with such extreme eyelid discomfort. Eye specialists could give me no answers or solutions.

    A couple of years ago I decided to finally try antibiotics (which I had been avoiding)and I asked my doc for a 50mg dose of doxycycline (Oracea is not available where I live). It worked really well for me and I could actually go out without any make-up on. After about six months though I developed a terrible burning sensation in my oesophagus and stomach and it got so bad that I could barely eat. I came off the doxycycline. Within ten days my skin was worse than ever. Instead of the rosy cheeks and nose I had had previously I now had blotchy red patches, broken skin and pimples (which I had never had before). Anyway I managed to stay off the doxy for seven months and then felt that I wanted to give it another go. It cleared my skin up nicely for a while but then my skin started to look bad again despite taking the doxy. Ten days ago I developed sever burning in my stomach and throat and had to stop the doxy again. My doc thinks I have a duodenal ulcer so I am off the doxy and on omeprazole for the ulcer. After being off the doxy for ten days my skin is already starting to look inflamed, red and broken.

    Anyway, to summarise, the doxy did help give me some ocular relief and clear my skin for a while but ultimately I feel it has done more harm than good. My skin is worse than it was before, my stomach is destroyed and the Skinoren gel no longer works to clear up my skin. I really don't know what to do now regarding treating my rosacea.

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