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Thread: Can We Put All of the Journal Articles in one Place?

  1. #1
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    Default Can We Put All of the Journal Articles in one Place?

    Edit: Some Day will get this whole thread organized - once enough articles have been added
    -mfm


    ================================================== ========================================
    So here's a quick question:

    I mentioned elsewhere that my flushing was triggered (read: likely caused) by using accutane. One part of me thinks that accutane made my body nearly incapable of producing acne, and instead it produces what could possibly be seb-derm, partially because my flushing follows a very splotchy pattern that looks more like a rash and extends far beyond my face onto my neck and chest - also, I guess you could say it resembles P&Ps but very mildly so.

    Anyway, all my derms are completely in the dark about any connection between accutane use and resulting permanent flushing. However, they are open-minded to any suggestions I have as long as they are backed by medical journals to which they can get copies to review for themselves. So, I was wondering if I could get links to journals supporting all of the possible hypotheses that have popped up somewhere on this site, including:

    1. SIBO causes rosacea, and you should use rifaximin if you breath-test positive for hydrogen, metronidazole if you test positive for methane).
    2. Hydroxychloroquine and Quinacrine (aka Plaquenil and Mepacrine) are effective for flushing caused or triggered specifically by accutane use.
    3. All of the other possible treatments that I've read about and forgotten, especially if they are specific to post-accutane flushing.

    Part of the reason I want to ask these things is that I've yet to take beta- or alpha-blockers everyday as I already have poor circulation and prefer taking them intermittently, as they are still effective for that. Plus I'm really not a fan of taking pills everyday that affect how I feel, and I'd rather deal with inflammatory or fungal/bacterial issues than just stop my blood from pumping to my extremities (again, while I got red in the face regularly before accutane, never did it spread beyond that or look like a rash - even though my acne was widespread).

    Regardless of my situation, I think anyone who doesn't have a Dr. Chiu (or Chen?) in their area would probably like to take all of these thoughts to their derms, as none of these hypotheses seem to be common knowledge. So, can we just put all of the more reputable Medical Journal articles in one convenient place so patients can take them out to docs?

  2. #2
    Moderator man_from_mars's Avatar
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    Sounds like a good idea to me.

    I'll make this thread a stickie (stays near the top)

    so feel free to add any good ones to this thread that you may find.

    -mfm

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    Here's a couple recent ones

    Advances in Understanding and Managing Rosacea: Part 1
    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3315879/

    Advances in Understanding and Managing Rosacea: Part 2
    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3315876/
    Attached Files
    Last edited by man_from_mars; 14th March 2013 at 01:31 AM.

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    How to promote and preserve eyelid health
    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3484726/

    Current Trends in Intense Pulsed Light
    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3390232/


    Optimizing Treatment Approaches in Seborrheic Dermatitis
    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3579488/
    Attached Files

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    Default Researchers explain how coal tar treats eczema

    Coal tar induces AHR-dependent skin barrier repair in atopic dermatitis

    http://www.jci.org/articles/view/656...8bcfeb630f5430
    Attached Files

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    Hey guys,

    I'm working on a tool that will allow you to do this! Not only will all the research be in one place, it will be summarized and easy to understand, and it will super easy to filter by certain categories.

    For instance, you'll be able to search for rosacea and alcohol, or rosacea and SIBO, and get all the relevant research.

    Let me know if this sounds interesting to you Hopefully it will be a big help to some people!

  7. #7
    Moderator man_from_mars's Avatar
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    Quote Originally Posted by AlsoColor View Post
    Hey guys,

    I'm working on a tool that will allow you to do this! Not only will all the research be in one place, it will be summarized and easy to understand, and it will super easy to filter by certain categories.

    For instance, you'll be able to search for rosacea and alcohol, or rosacea and SIBO, and get all the relevant research.

    Let me know if this sounds interesting to you Hopefully it will be a big help to some people!
    That sounds interesting AlsoColor
    This site runs under vBulletin4.x - can you make it a plugin?

    Maybe post it up on http://vbulletin.org for testing

    -mfm

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    No unfortunately it will have to be stand alone, because I want it to be really full featured, and eventually be able to cover other disorders!

    Some of the really awesome stuff I want to do wouldn't work as a plugin

    Quote Originally Posted by man_from_mars View Post
    That sounds interesting AlsoColor
    This site runs under vBulletin4.x - can you make it a plugin?

    Maybe post it up on http://vbulletin.org for testing

    -mfm

  9. #9
    Moderator man_from_mars's Avatar
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    Quote Originally Posted by AlsoColor View Post
    No unfortunately it will have to be stand alone, because I want it to be really full featured, and eventually be able to cover other disorders!

    Some of the really awesome stuff I want to do wouldn't work as a plugin
    oh well - thanks for the offer

  10. #10

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    I think such a resource would be great too, but we need to be thoughtful of copyright at the same time.

    Many journals are funded through sales of articles, and even though sites that are for sufferers like this one aren't selling the articles, it still may be a grey area.

    I don't have a solution but want to at least let everyone be thinking about being careful about how we treat the intellectual property of others.
    Get Rosacea News here - https://rosacea-support.org

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