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Thread: Going to PCP tomorrow and want to get prescribed remeron and clonidine

  1. #1
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    Default Going to PCP tomorrow and want to get prescribed remeron and clonidine

    hello everyone.

    I am going to my PCP tomorrow to ask for Remeron and Clonidine. How can I urge my doctor to prescribe these meds for me? My dermatologisit would not and said that "they don't work" which doesn't make sense because many of you are finding relief from your flushing.

    Are there articles written by Dr. Chu that I can access and bring to my appt... or by any other well-known derm?

    Thanks in advance as I would really like to get these meds prescribed to me. And clonidine works best taken 3x a day (every 8 hrs?).

    Please help.. thank you thank you!

  2. #2
    Senior Member nat007's Avatar
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    Hey,

    here are some links to medical sites where clonidine, mirtazapine and propranolol are mentioned as anti flushing meds:

    http://www.angelfire.com/journal2/sadhelp/othertx.htm
    http://www.netdoctor.co.uk/medicines/100000829.html

    http://www.aafp.org/afp/2006/0201/p457.html
    http://www.ncbi.nlm.nih.gov/pubmed/1...?dopt=Abstract
    http://www.angelfire.com/journal2/sa...irtazapine.htm

    http://www.dundee.ac.uk/medther/taye...ropranolol.htm
    http://rosacea-support.org/rosacea-f...opranolol.html


    Some reports are on hot flashes, but the mechanism of facial flushing and hot flashes are very similar. I would advice you to print
    them out and bring them along. I would try to explain to the doc how much rosacea and facial flushing and burning is limiting
    you in your life. How debilitating it is for you and that you like to try some meds out to see if it improves things for you.
    I asked my doctor and said that I wanted to have a month trial period, and that we would evaluate afterwards. That gave the
    doctor a sense of control and it gave me the time to try it out. When I came back and was less flushed and red, we agreed to
    continue with it. Of course I would try to get a trial period that is as long as possible (or not at all if the doc agrees without
    the need for such negotiations tactics lol). You can say that many people on a rosacea forum have good experience with it
    and that a knowledged and experienced professor in London uses it for bad rosacea flushers (maybe print out his name and hospital,
    he's in Hammersmith Hospital).

    Let us know how things went?

    Best wishes Natalja

  3. #3
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    Default

    Hi Nataljoo, thanks for your help.

    Well,.I went to my GP and he did prescribe me remeron, although he did not have any scientific knowledge that it helps for rosacea, but he didn't put up much of a fight because I'm depressed and need an antidepressant.

    The Clonidine was a different story and he said that he was hesitatant in prescribing a med that could drop my blood pressure so much. I printed out some info that it can be helpful for flushing with rosacea but that wasn't enough for him to do it. So when I went home, I did some more research and found a small write up on rosacea and that clonidine and low dose beta blockers can help and guess what?? This was written by the very hospital that I went to (University of Pittsburgh)!! So I emailed this over to him and he responded that I can try a low does but I NEED to come back and get my blood pressure checked. I am yet to see it come through to the pharmacy but I am keeping my fingers crossed.

    My question to you is should I try the clonidine alone first to see if it helps? YES, as much as I feel I need an antidepressant, I am scared of the remeron and the weight gain. Do most people gain weight on it? I am on a no carb, no sugar, no grains and no dairy diet and my face has felt cooler to the touch and my night flushes haven't really been happening (I hope that I haven't spoken too soon) but will the remeron make me ravenous and not be able to follow my diet? Sugar and carbs are my downfall.and I lived off of them.. and some protein but very little vegetables at all. What are your thoughts?

    Let me tell you about the first derm I went to. She said that "there is no treatment for flushing" and people just have to avoid their triggers... and burning is NOT rosacea. Burning is anxiety." I was floored. She gave me metrocream and she told me that if it's not helping then she doesn't think that I have rosacea. UGHH?! She then said that doxycycline and metrocream help most rosacea and she will not prescriibe beta blockers because those are not treatment for rosacea. So she wants me to go on doxy. But I dont have any p&p's.. will it help the inflammation? UNREAL!!

    Well, I am not giving up and am happy that my GP is kind of willing to work with me but he wants me to find some more hard evidence that clonidine and beta blockers help with rosacea. So, that is what I will look for next.

    What a ride this is. As for my swollen nose problem, dr. looked inside and said the turbinates are very swollen almost touching and that is my allergies. I asked if that could be rosacea and he said no. I have had allergies all of my life though and don't ever remember my nose hurting like this. Maybe it's both but I am concerned with it growing

    Maybe I just need to relax....I am just scared. I am flushy when I wake up but that tends to leave when I wash my face and move around.. but since I haven't been eating carbs/sugar/wheat or dairy, I have been less flushy so my diet seems to be helping. I do crave some fruit though and am wondering if there is something that wouldn't spike my blood sugar too high?

    Thanks for your help! This forum is a godsend!


    Quote Originally Posted by nataljaoo View Post
    Hey,

    here are some links to medical sites where clonidine, mirtazapine and propranolol are mentioned as anti flushing meds:

    http://www.angelfire.com/journal2/sadhelp/othertx.htm
    http://www.netdoctor.co.uk/medicines/100000829.html

    http://www.aafp.org/afp/2006/0201/p457.html
    http://www.ncbi.nlm.nih.gov/pubmed/1...?dopt=Abstract
    http://www.angelfire.com/journal2/sa...irtazapine.htm

    http://www.dundee.ac.uk/medther/taye...ropranolol.htm
    http://rosacea-support.org/rosacea-f...opranolol.html


    Some reports are on hot flashes, but the mechanism of facial flushing and hot flashes are very similar. I would advice you to print
    them out and bring them along. I would try to explain to the doc how much rosacea and facial flushing and burning is limiting
    you in your life. How debilitating it is for you and that you like to try some meds out to see if it improves things for you.
    I asked my doctor and said that I wanted to have a month trial period, and that we would evaluate afterwards. That gave the
    doctor a sense of control and it gave me the time to try it out. When I came back and was less flushed and red, we agreed to
    continue with it. Of course I would try to get a trial period that is as long as possible (or not at all if the doc agrees without
    the need for such negotiations tactics lol). You can say that many people on a rosacea forum have good experience with it
    and that a knowledged and experienced professor in London uses it for bad rosacea flushers (maybe print out his name and hospital,
    he's in Hammersmith Hospital).

    Let us know how things went?

    Best wishes Natalja

  4. #4
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    Default clonidine only twice a day?

    Update on the clonidine:

    I got my doctor to prescribe the clonidine. He prescribed 0.1 mgs but only twice a day. Isn't it supposed to be ttaken 3x a day to prevent rebound?

    Thx for all of the help!

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