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Thread: young people and rosacea

  1. #1
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    Default young people and rosacea

    Hi there,
    I have a 15 year old who has had rosacea since the age of 10 (when symptoms first started). she was diagnosed with acne rosacea at first in one hospital, then 6 months later she got corneal blisters. the opthamologists said it is ocular rosacea caused by the rosacea on her nose. however, 10 dermotolgists in our local hospital have completely denied it being rosacea due to her age. i have reserched rosacea thorughly and it fits all the brackets. she has tried a lot of treatments. isotetronin worked brilliantly for her acne, but still left her with a bright red nose. she has been bullied throughout all her former years being called rudolf the red nose reindeer amongst others. the dermatologist said recently (when i prompted her) that if she was 30 she would diagnose it with rosacea, but she claims that there are no recorded incidents of children having rosacea.
    i know there is no way that this can be age preferential, and would like to hear from anyone else who suffers with rosacea as a young person? this would really help my daughter and I to know that she is not alone and to have some support and ideas on how to address this issue for her would be fantastic.

    please help, a frustrated and heartbroken mum

  2. #2
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    The redness and flushes on my face started after a 6 months accutane (isotretinoin) course for my teenage acne, at the age of 16.
    Accutane is a common trigger for rosacea. You can search on this forum.

  3. #3
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    Hi Kirsten

    I first got mild rosacea symptoms when I was 16. It was diagnosed as seborreich dermatitis, as I was too young to have rosacea. It seem to me that dermatologists now more and more accept that it can affect children and youth as well.

    If the red nose is the main problem now, could Vbeam or other laser treatment be an option? I used to have a red nose, but with proper treatment, it is seldom and issue anymore.

    I also believe accutane can trigger rosacea, but I suspect that most of those who first see rosacea syptoms while on accutane, most likely would have the disease one day or another. If you are prescribed accutane, you have a seborreich skin type with acne, redness, and are prone to rosacea and seborreich dermatitis.

    My advice is to find a dermatologist who is updated on rosacea and different treatments. Be honest about your worries about how this can affect your daughters self asteem and see if you can find a proper treatment.

    Regards
    Snegovik

  4. #4
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    thankyou for your replies.
    it has been a very long journey for us. her symptoms satrted at about ten yrs old, looking like a slight sunburn on her nose, this became redder over time. she was originally given antibiotics from her GP but this didnt work. he then reffered her to a dermatologist. by the time that appt came through some spots started to appear over her nose. they put her on oxytetracycline. this didnt really work either, neither did any of the creams. by the time she was 11 her eyes became inflamed. at first the GP said it was hayfever, after weeks of treatment she was agony and i took her to the opticion who sent us to the eye hospital immediatly. she had 3 corneal blisters. the opthamologists said that it is caused by her roacea. she was then reffered to the dermatologists, who ummed and ahhed over her nose for months and months. they all said she is too young to get rosacea so treated her for excma. the steroid creams they gave her made her nose so bad it would bleed, burn and sting.. also making her eyes worse. her nose was a bright reed beacon by this point. it was only 18 months ago the dermatologists decided to try her on a course of isotetronin. it was supposed to be a 4 month course but she was on it for 8 months. it did stop the pustles and calm down the burning and itching of her nose.. but didnt stop the redness of it. she has had no acne symptom since this treatment. the isotetronin hasnt caused her rosacea, unfortuantly it had already developed.
    another trip to the dermatologist this last week has still not given answers. i am very assertive and kept repeating myself as to why they refuse to diagnose it as rosacea. her only answer was her age. i told her that the psychological damage has been immene, not only on my daughter but the affects to the family as well. i told her about all the troubles in school and at home. this is not the first time i have mentioned this. i always do, but i just get silence. she agreed all the symptoms do point to rosacea, but tells me that she does not know of any recorded incidents.
    she has undergone a patch test to see if there are any allergies which proved nothing. i asked the dermo, if she was 30 and in her office right now what would her dianoses be, she did say rosacea, but still refuses to put that down on paper.
    she has now been given tetralysel and elidel cream. she is now 15 and a half yrs old. i have asked about laser treatment but down here in cornwall our nearest one is about 100 miles away. dermo will not refer her as she wont say its rosacea.
    i am at my wits end, and want to prove that rosacea can affect young people and get more help and support for all who suffer. i have set up a support group for young people with rosacea on facebook but have had no responses as yet. A Rosacea support group for young sufferers...
    my daughter needs to know she is not the only one as she feels she is and her confidence and self esteem is virtually nil know. and any ideas to help calm the redness on her nose would be fantastic as well.

    many thanks for taking the time to read my essay (sorry about that!) and hope that you can keep in touch.

  5. #5
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    Hi there

    Definetly push for vbeam laser treatments. She may need several treatments before seeing significant results, but i highly recommend vbeam, as has Snegovick. I will probably keep getting them for life, they are worth every penny and really do help decrease redness. Do you have to get a referall?? In NZ we can just arrange specialist appointments ourselves if we want to... There is no Rosacea cure, but with effective management Rosacea can be controlled.

    Shantelle
    Shantelle

    31 Year old female from NZ

  6. #6
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    has anybody elese here had rosacea since a child? if so when was it first recognised and what has been teh best course of treatments?

    i am definatly going to push for laser treatment. its just conving a dermo first that they need to look at it as rosacea. !!

  7. #7
    Senior Member gizzy's Avatar
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    Yes i've had the vascular rosacea since I was about 14 it started with flushing on my cheeks and chin then progressed to my nose. I'm currently having a course of IPLs with some improvement to the redness and capillaries.

  8. #8
    Moderator Melissa W's Avatar
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    Hi Kirsten,
    I am so sorry your daughter is going through all this. Perhaps your daughter can search our site for info and support. Her age does not preclude her from posting here and we would be happy to offer any help we could.

    I definitely had rosacea (but a mild case at the time) as a young teen but never went to the doctor for it. Looking back though I am sure it was rosacea. I blushed/flushed easily and often had a pink tinge to my skin. The first person to ever say it was rosacea was a classmate in graduate school who said that her sister in law also had rosacea and she recommended a makeup to use. I had never used makeup at that point because it never really bothered me and I never thought anything of the fact that I blushed and turned pink easily. In cold weather, in stressful situations, spicy food etc. It was funny that a classmate noticed before any doctor ever mentioned it or before I even went seeking help.

    Anyway, in those days my face never burned when I blushed/flushed unlike now. So I wonder if I had been properly diagnosed by a dermatologist and sought treatment if it would have been an easier road. In any case, we are here for your daughter if she decides she would like more info than she is currently obtaining regarding this. I am surprised the doctors are not more willing to accept the fact that young people get rosacea. My dermatologist's daughter has rosacea and he is currently treating her so at least one doctor knows it is possible.

    Best of luck and tell your daughter to hang in there. Help is out there for her and it is just a matter of finding the right doctor.

    Best wishes,
    Melissa

  9. #9
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    thankyou so much for your wisdom and kind words melissa, i will get my daughter to read this later on when she comes in and hopefully she may pluck up the courage to use this site for more support and advice.


  10. #10
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    Im 17 years old (male), and i also have a very red nose sometimes. so i know how your daughter is feeling about getting bullied and such, been there done that. the winters here in sweden, when its getting like -35C thats not fun at all haha..

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