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Thread: Severe facial swelling

  1. #1
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    Default Severe facial swelling

    Can someone let me know how to post pictures please as it will only let me show 5 attatchments!

    Hi, I'm glad I found this forum, it seems that other people have got similar symptoms to me. This is going to be a long post but please read it all as I would really appreciate any help/advice. Some dates/time frames may be incorrect as I have bad memory.

    My problem is that I have a severely swollen face, mainly the cheeks, nose, nose bridge, eyes and forehead areas. It is significantly worse when I wake up in the morning and gradually gets a little bit better throughout the day. I found that drinking LOTS of water helps (3L+ daily) but it only improves the swelling a little bit and it's not a long-term solution.

    This is what I used to look like (pictures are from a festival I went to in summer 2009, that was when I last looked 'normal')
    6491_1191003529763_1068621054_597710_7527394_n.jpg6491_1190268831396_1068621054_595290_3411938_n.jpg6491_1190268791395_1068621054_595289_6472512_n.jpg6491_1191004449786_1068621054_597733_2008380_n.jpg6491_1191003489762_1068621054_597709_4772478_n.jpg

    I got severely sunburnt at this festival but I don't know if that has any relevance to anything.
    In early 2010 I developed an acne cyst on the right side of my nose. I squeezed it twice which made it spread along the side of my nose and it has been there ever since. (Picture of acne cyst on nose). I originally thought that this was the cause of my swelling but after various acne treatments the swelling still persists.
    I then developed swelling on the right side of my face (where the cyst is) and over the course of around 4 months it spread all over my face so the swelling is now bilateral.

    I went to see an ENT specialist as I thought it may be something to do with my sinuses but I was told that nothing was wrong. I should add that I constantly have a blocked nose, I don't know why.
    I took anti-histames for just over a week with no improvement.
    I have taken Doxycycline (2 or 3 courses), Tetracycline, Differin and Accutane (I'll get to that later) which improved my acne but NOT the swelling.

    In October 2010 the swelling was at its worst. (PICTURES)
    In January 2011 I developed a large cyst on my cheek just to the right of my nose (although my main problem is the swelling). I saw a dermatologist and he told me the swelling was due to acne, and that accutane would get rid of my acne and then subsequently get rid of the swelling. 2/3 months into treatment I was feeling incredibly depressed, I had an appointment with my dermatologist. My acne was virtually gone but the swelling was still how it was before I started accutane. He told me that it looked like nothing was wrong with me and it was just me 'growing' (I'm 18 years old now).

    After this I stopped taking accutane and went on another course of doxycycline to try and reduce the size of my new acne cyst.
    Doxycycline didn't work so I then went on Tetracycline for 3 months (I've just finished the course) which only helped with my acne a little bit.
    Here are some recent pictures (March-June 2011 PICTURES)

    So now I'm here, after a year with the severe swelling, my life is ruined, I have lost all my friends and I never leave the house anymore.
    2 weeks ago I saw a NEW dermatologist, who upon seeing instantly said he thought the swelling was due to rosacea and he prescribed me 500mg twice daily of Clarithromycin.

    I've been on the Clarithromycin for nearly 2 weeks and the swelling is still very bad, there is no improvement. How long should it take to see even a tiny improvement? My face also feels very dry and I have yellow scabby tissue on my nose which is very itchy (This may just be my skin trying to heal itself?)
    I'm hopeful that this will fix my problems but I'm doubtful...

    Thank you for reading, I hope I can get the pictures uploaded somehow soon.

    Dan.

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    Bump - Can someone please help me to link all of my pictures please

  3. #3
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    Default Some links that might help.

    Some of these may sound odd but Im sure your at the point where you'll try anything to get results.

    -Massage warm mustard oil or apple cider vinegar into the affected area. Add ground flaxseed or flaxseed oil to your diet.

    -Sleep with your head proped up.

    -Reduce salk intake.

    -Have your doctor check for possible infections.

    -Place a mixture of papaya mashed in a basin and mix it with honey. Use this mixture as a facial mask. Let it sit for a while in your face for at least 15 to 20 minutes. Rinse afterwards.

    -See your doctor and ask if maybe you could try some anti-inflamitory medicine to see if it can help with the swelling.

    Keep us updated

    Rosy

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    Dan, do you know about the netti pot? It's a little pot that you put warm water and purified salt into, then you take the pot and use it to run the saline solution through your nose. There are tutorials on line for using one. It's really easy. This should clear up your sinuses (you do it 2x per day) and maybe even reduce some of the swelling.
    "It's all illusion anyway."

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    Quote Originally Posted by RosyRed5 View Post
    Some of these may sound odd but Im sure your at the point where you'll try anything to get results.

    -Massage warm mustard oil or apple cider vinegar into the affected area. Add ground flaxseed or flaxseed oil to your diet.

    -Sleep with your head proped up.

    -Reduce salk intake.

    -Have your doctor check for possible infections.

    -Place a mixture of papaya mashed in a basin and mix it with honey. Use this mixture as a facial mask. Let it sit for a while in your face for at least 15 to 20 minutes. Rinse afterwards.

    -See your doctor and ask if maybe you could try some anti-inflamitory medicine to see if it can help with the swelling.

    Keep us updated

    Rosy
    The thing is, none of these things will cure it. I could drink 4litres of water a day so I look a little bit better but it's only temporary. I have asked for anti-inflammatory steroids off my doctor but he said he doesn't want to give me them as we need to find out what's wrong.

    I also bought Turmeric but haven't tried it, do you think that would help reduce the swelling? (I know this is hypocritical but I have easy access to turmeric..)

    Thanks

    Quote Originally Posted by Ghost View Post
    Dan, do you know about the netti pot? It's a little pot that you put warm water and purified salt into, then you take the pot and use it to run the saline solution through your nose. There are tutorials on line for using one. It's really easy. This should clear up your sinuses (you do it 2x per day) and maybe even reduce some of the swelling.

    I will try this soon, my nose is constantly blocked and I'm always sniffing so that should help in regards to that. One of my distant relatives had a swollen face and their diagnosis was swollen adenoid sinuses.


    What do you both think of Clarithromycin? Is it a realistic 'cure'?
    Last edited by djdelmar; 9th June 2011 at 11:10 AM.

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    Quote Originally Posted by djdelmar View Post


    I will try this soon, my nose is constantly blocked and I'm always sniffing so that should help in regards to that. One of my distant relatives had a swollen face and their diagnosis was swollen adenoid sinuses.


    What do you both think of Clarithromycin? Is it a realistic 'cure'?
    Never heard of Clarithromycin. Antibiotic? I'd try the gentle natural approach first unless you have an infection going, of course. But your docs don't think you do it seems.
    "It's all illusion anyway."

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    Quote Originally Posted by Ghost View Post
    Never heard of Clarithromycin. Antibiotic? I'd try the gentle natural approach first unless you have an infection going, of course. But your docs don't think you do it seems.
    Yes, he said it has been very successful in patients with rosacea... guess I just have to wait a month to see if it works or not, I really hope it does.

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    Quote Originally Posted by djdelmar View Post
    Yes, he said it has been very successful in patients with rosacea... guess I just have to wait a month to see if it works or not, I really hope it does.
    So you started it? Hope it works.

    I took antibiotics for this crap back in the day. It was erythromycin. Didn't do anything. Some harder core ones did -- like whatever kind it was I got after surgery. It cleared me up for a while. But i didn't put 2 + 2 together (surgery does that to you). Not that I could or would take antibiotics forever.

    What did clear me up was the method described in my profile (about me section).
    "It's all illusion anyway."

  9. #9
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    I too have periods of significant facial swelling.
    The swelling exacerbates flushing and redness.
    In my personal experience, there is no overnight fix, however, I have found a couple of things somewhat helpful.

    When needed I take a product called Lymphondran Plus.

    http://www.fourbody.com.au/orthoplex...dran_plus.html

    There are various formulas of these ingredients. I take this one for the sole reason, it is the only version available to me in Australia.
    If you use the search function for Quercetin, or Lymphodran on this forum, it should bring up a thread or two discussing users. From memory, Queta was the first to try and introduce it to others. I followed. My initial experiences were a bit rocky, but over time I found it helped.
    I only take it when needed.

    The downside for me, is that it can make me a bit redder at times. This is likely due to the possible vasodilating effect of bromelain. I am a severe flusher and react quickly to anything which causes vasodilation. Others may not.

    I have recently started taking R-Alpha Lipoic acid on the advice of my GP, mostly for other reasons. I feared it thinking it would increase rosacea symptoms.
    So far I am pleased with effects on my rosacea, as they are a bit less.


    I have taken and still take macrolide antibiotics. I started with Erythromycin.
    A few years ago I took Clarithromycin. In my particular case, it helped for a short time and then I began to feel more and more pressure in my face. Swelling included, but it was not felt to be an allergic reaction to clarithromycin.
    My rosacea is complex and the opinion of my physicians and dentist ( plus a specialist dental surgeon) is that I suffer from chronic infections.
    Sinus issues are being discussed, including the possibility of a staph strain. I am vague on this point at the moment as I have not had time to look into it thoroughly. I am awaiting feedback from the dental specialist, via my GP.

    I mention all this as you report swelling and sinus issues.

    The suggestion by Ghost to implement the nasal flush regime with saline is a good one. I have been urged to try it as well, but have not as yet, as nose (rosacea) flushing is a bad problem for me. I am undecided about the degree of residual sinus infection I may have, as for me, breathing through my nose becomes impaired during and after severe nose flushing phases.

    If you find your symptoms and facial pressure increases after being on clarithromycin for a period of time, I would suggest you start looking for infections. Dermatologists won't be well versed in this field. Alas.
    Mine isn't either, but he has the sense to realise this and make efforts to seek appropriate physicians for me.

    Modifying your diet might provide some benefits. However swelling generally takes a fair time to resolve as the lymphatic system seems to be impaired/damaged in some rosaceans. I would still encourage dietary change however as it might trigger an anti-inflammatory effect. Lots of us have had positive changes when cutting out refined carbs, grains and at times, dairy. Dairy is a major trigger for me. Omega 3's are also a trigger for me, for an explainable reason... at this stage.

    I see you have taken accutane. This might have had lasting negative effects on your immune system.

    What did your derm say about the yellow scabby tissue on the side of your nose? Do you have flaky skin at all?

    Do you know what your vitamin D status is? Vitamin D3 has been instrumental in improving my condition, but it is not a cure. It is necessary to start slow with supplementation, such as 500mg per day. No more than 1000mg, as symptoms might increase initially.

    Sleep propped up on several pillows.

    When I was looking for relief from my swelling I came across several reports by other rosaceans who were using curcumin products. Some people reported pleasing results. Others didn't. I have not tried curcumin, but it might be something you could consider.

    You likely have a long journey ahead of you.
    I am sorry you are having to deal with all this at such a young age.
    Previous Numerous IPL.
    Supplements: Niacinamide, Vit K2, low D3, Moderate Dose Vit C, Iodine, Taurine, Magnesium. Very low dose B's. Low dose zinc (to correct deficiency).
    Skin Care: No Cleanser, ZZ cream mixed with Niacinamide gel 4% and LMW HA.

    Treating for gut dysbiosis under specialist care. (This is helping).
    Previous GAPS diet. Testing tolerance of resistant starch.
    Fermented Foods. 2 to 3 days per week, Intermittent fasting -16-18 hours.

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    What a depressing post
    If I can't fix this I really don't know what I'll do, I'm really depressed as it is...

    The thing is, it all started when I squeezed the cyst on my nose, and then the inflammation 'spread' over time, which made me think it was an infection.

    If the Clarithromycin works, is it a cure or only a temporary fix?

    I don't have a problem with spots and redness to be honest, it's just the inflammation/swelling that I want to get rid of. I could live with a couple of spots and a red face but this is 100x worse for me.

    Someone mentioned that it could be a staph infection, I told my doctor and he said he doesn't think it is. It's just this 'waiting game' that's killing me, if I do eventually get cured then it's going to take a lot of time for me to get back to a normal mentality, this has really taken its toll on me.

    I have found that dairy does indeed make the swelling worse but it's hard to cut it out...

    The yellow flaky skin has nearly gone now, I think it was just a short 'phase' where my skin was trying to heal itself. You mention accutane, I don't think this has had any effect as I had the swelling for 7/8 months before taking accutane and it was at its worst a few months before I took accutane.

    I probably have very low vitamin D as I never go outside so I should start taking tablets, I also have low iron so I need to get tablets for that too.

    Thanks for your post.

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