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Thread: General poll: do ppl that have ocular rosacea have worse or better facial rosacea?

  1. #11
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    Quote Originally Posted by drums View Post
    What would your reaction be if I said that you are causing this problem yourself and no amount of medical help will ever come close to giving you a solution.

    You see its like this I have been there myself and found out I was actually doing this it to myself its only my opinion of course. The cause is down to disordered eating mainly its just the way people eat and drink but the cold climate is part of the problem also. The condition of the skin and the eyes is decided in a persons stomach and when you eat in a disordered way it disturbs the healthy secretions for the skin and eyes.

    I am not being awful here and hope you will see the positive side as a means of bringing relief
    I don't think you are being awful at all as I have been researching the gut and skin conditions.

    I eat very healthy(mostly chicken,turkey(rarely beef)veggies,limit fruit to 1 a day usually apples,pears,berries),no sweets,no pastas,no gluten. I drink only water and herbal,caffeine tea and am looking into getting a juicer and trying juices only.

    I am up for any suggestions and thanks.Care to share your diet that has helped you?

  2. #12
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    Default Reply to Melissa

    My main symptoms are the burning irritation which increases with a rosacea flush and rarely foreign sensation.My eyes are ok in the mornings usually and worsen as the day goes.They are always really bloodshot and sometimes usually the left lid will burn and if I massage it my vision gets really blurred(oil I think).

    Right now I am applying the honey for lid scrubs and sometimes leave it on overnight and it seems to be helping at times.

    As I said I have switched docs 4 times and 2 specialists but am looking into the Wills Eye Institute in Philadelphia and may travel to see them in the Spring.

    The docs felt that I need to get the rosacea calmed before they can treat the eyes??? but the cold weather has calmed it somewhat and still the eyes become more irritated.

    I have been to an Allergist(found none,but plan to be tested for food in the future),rheumatologist(nothing they can put their finger on just abnormal bloodwork),a Hematologist who feels I am in early stages of autoimmune disease(so he sent me back to the Rheumatologist who said the same as before and will retest me in 6 months).So it is like a roller coaster.

    Have tried the warm compresses on and off for 2 years and they seemed to intensify the rosacea??? so it can be very confusing.

    I have purchased many books on eyes and rosacea and they all pretty much say the same thing.

    I have been on Restasis twice a day since August(this is my second time around with it) and preservative free drops do nothing and some even irritate right in the lids themselves when applied.

    I thank you for your reply though and I just keep searching and the Eye Institute is my next route.Only drawback is the distance to travel on a regular basis.

    I just keep searching the forums for new ideas so thanks again!!!! Sandy

  3. #13
    Moderator Melissa W's Avatar
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    Sandy,
    Wills Eye Institute is an excellent place to go and if you can I urge to do so. You might not have to go back too frequently once they diagnose and start treating you and you may really find some answers there.

    It sounds as if you have MGD with evaporative eye disease based on your symptoms and not so much tf insufficiency since you rarely experience fb sensation. When your rosacea flushing worsens it is normal that your ocular symptoms may get worse too and that is why the doctors want to better control your facial rosacea symptoms. I remember when my ear flushing was horrible that the VBeam treatments on my face actually helped my ears too without having to do laser on my ears.

    As far as the Restasis goes it can sometimes be helpful to be on low dose ocular steroid drop therapy for a while at the same time as Restasis to allow it to work better.

    When dealing with ocular surface diseases you have to realize it can take time and you must be persistent and use concomitant therapies to reach results. And realize as well that while you cannot cure it you certainly can manage your symptoms to the point you don't even think about them. Hang in there Sandy. You will find the right combo that works for you!

    Best,
    Melissa

    ps the honey has helped lots of people here so fingers crossed for you!

  4. #14
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    Quote Originally Posted by sandra lee View Post
    My main symptoms are the burning irritation which increases with a rosacea flush and rarely foreign sensation.My eyes are ok in the mornings usually and worsen as the day goes.They are always really bloodshot and sometimes usually the left lid will burn and if I massage it my vision gets really blurred(oil I think).

    Right now I am applying the honey for lid scrubs and sometimes leave it on overnight and it seems to be helping at times.

    As I said I have switched docs 4 times and 2 specialists but am looking into the Wills Eye Institute in Philadelphia and may travel to see them in the Spring.

    The docs felt that I need to get the rosacea calmed before they can treat the eyes??? but the cold weather has calmed it somewhat and still the eyes become more irritated.

    I have been to an Allergist(found none,but plan to be tested for food in the future),rheumatologist(nothing they can put their finger on just abnormal bloodwork),a Hematologist who feels I am in early stages of autoimmune disease(so he sent me back to the Rheumatologist who said the same as before and will retest me in 6 months).So it is like a roller coaster.

    Have tried the warm compresses on and off for 2 years and they seemed to intensify the rosacea??? so it can be very confusing.

    I have purchased many books on eyes and rosacea and they all pretty much say the same thing.

    I have been on Restasis twice a day since August(this is my second time around with it) and preservative free drops do nothing and some even irritate right in the lids themselves when applied.

    I thank you for your reply though and I just keep searching and the Eye Institute is my next route.Only drawback is the distance to travel on a regular basis.

    I just keep searching the forums for new ideas so thanks again!!!! Sandy
    Sandy, I'm sorry to hear your having such troubles. I can only sympathise!

    It is so frustrating dealing with it. I have MGD and Bleph in both eyes, but my right eye has lesions over the eyelid (the think caused by allergies) but I cannot see this is the cause as the allergy eye drops did nothing.

    Have you been tested for celiac disease? I hear some people have had success when they go on a gluten free diet. I have been tested and alas, this is not the problem.

    I too have found the warm compress to be of little help and if anything irritates more. I shall try the drops Melissa recommends.

    How did your eye problem progress?

    There will be an answer of how to knock it into remission and as Melissa says, it'll be almost like you haven't got it. But it's a headache trying to find it!

  5. #15
    Senior Member findingaway's Avatar
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    Quote Originally Posted by drums View Post
    What would your reaction be if I said that you are causing this problem yourself and no amount of medical help will ever come close to giving you a solution.

    You see its like this I have been there myself and found out I was actually doing this it to myself its only my opinion of course. The cause is down to disordered eating mainly its just the way people eat and drink but the cold climate is part of the problem also. The condition of the skin and the eyes is decided in a persons stomach and when you eat in a disordered way it disturbs the healthy secretions for the skin and eyes.

    I am not being awful here and hope you will see the positive side as a means of bringing relief
    Thanks for your post on my other threat btw. I am not sure what you mean tho??

    Interesting, I found this article after a quick google about MGD and Rosacea and that it is occurring more in the younger generation, linked to maybe higher fat intake...

    'Rosacea is becoming more common in younger patients, which may be related to diets that are high in fatty acids. '

    http://www.dailystrength.org/c/Dry_E...133-people-can

    Also:

    'Rosacea patients often have a reduced secretion of pancreatic lipase, an enzyme which aids in fat digestion. Pancreatic or plant enzyme supplementation, especially when prepared with extra lipase, will improve this digestive weakness'

    http://www.diagnose-me.com/cond/C515509.html

    Is this what you are getting at?

  6. #16
    Senior Member findingaway's Avatar
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    Default Does warm compress irritate your eyes?

    Hi,

    Just thought i'd throw this in the mix. Was looking at Dry Eye Talk forum because my right eye is even more inflamed then usual as i've been using the warm compress for 2 days again.

    It just makes my eye worse. I wondered if others experienced this, so I did a search. This is what I found.

    http://www.dryeyezone.com/talk/showthread.php?t=3989

    Basically you should still clear out the glands, but by using sufficient pressure and them compress.

    I suppose it makes sense since it is inflammation we are dealing with!! For info, my LEFT eye has worse MGD then my right. But my right eye is more inflamed and has lesions under the eyelid making it look like i've been punched! Great look :/

    I'm not saying this will work for everyone, but it might...

  7. #17
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    Default Hi

    Absolutely the warm compresses wreak havoc with my already inflammed eyes!!!

  8. #18
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    Quote Originally Posted by sandra lee View Post
    Absolutely the warm compresses wreak havoc with my already inflammed eyes!!!
    Cool. So what do you do instead?

    Not sure I totally understand how to clear the glands without heat?

    PS - just realised I called you Sandy earlier. Sorry about that!

  9. #19
    Moderator Melissa W's Avatar
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    Make sure the warm compresses are not too hot and if it is irritating follow with cool compresses. If all else fails leave out the warm compresses and just massage the lids but the heat is very helpful for opening up the glands.

  10. #20
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    Quote Originally Posted by moore778899 View Post
    Sandy, I'm sorry to hear your having such troubles. I can only sympathise!

    It is so frustrating dealing with it. I have MGD and Bleph in both eyes, but my right eye has lesions over the eyelid (the think caused by allergies) but I cannot see this is the cause as the allergy eye drops did nothing.

    Have you been tested for celiac disease? I hear some people have had success when they go on a gluten free diet. I have been tested and alas, this is not the problem.

    I too have found the warm compress to be of little help and if anything irritates more. I shall try the drops Melissa recommends.

    How did your eye problem progress?

    There will be an answer of how to knock it into remission and as Melissa says, it'll be almost like you haven't got it. But it's a headache trying to find it!
    I was never tested for celiac disease but went on a wellness program which consisted of a strict gluten free diet and supplements for over a year and my condition continued to progress.

    Mostly the eye irritation,blurriness and burning have worsened,but also so has the facial.

    They have tried numerous antibiotics,topicals and drops and I do feel if only I could find the right docs I may have a chance to calm things down but that is way easier said than done unfortunately.

    I wish you much improvement. Sandy

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