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Thread: NOTHING works against this...

  1. #1
    Senior Member Michael_V's Avatar
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    Default NOTHING works against this...

    I am at my wit's end with this f*cking disease. Tired of the constant burning and those d*mned unstoppable papules, pustules, and nodules that have become my constant companions. Last Christmas, I had clear, easy to care for skin. This year, I have this mess. So far, I've tried the anti-mite route (ivermectin, eurax, permethrine), vitamin D3, zinc, metrogel, clindagel, sulfur, zinc, and finacea, four bouts of IPL (hurt like hell!) and two months or so of LED, doryx, oracea, clonidine, and remeron. All with no noticeable effect on my rosacea!

    I am weary of this fight. My arse is officially kicked....

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    Default Man

    I know how you feel. It strikes at the very core. I hate when you feel like doing something to "get healthy" only to realize that in reality it will be a flare. I hate having to dodge the sun.

    I don't know what to say besides let's compare notes and find something that works good. I am using raw honey to the face right now and find it is working very well. Have you tried this?

    What can you recommend for me? I have oily skin. I am 25 years old.... I also play guitar. (in reference to your picture)

    So, we can beat this bastard of a disease, we can make progress, we can do it! Now saddle up if you got the guts and leave your vanity at the door!

    -Solutionquest-

  3. #3
    Senior Member Michael_V's Avatar
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    Default

    No, idea what to recommend at this point. Wish I knew what worked! I haven't tried raw honey. What did it help you with?

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    Default raw honey

    The raw honey is helping with giving my skin a more solid layer. To best explain what I feel it is doing I would say it is similar to what metrogel or retin A does without the harshness. Like I said I have oily skin and I think it clogs up my pores and causes a dead skin build up and the honey exfoliates.

    Every other night I apply the raw honey to my face.

    What type of skin do you have?

    The only other thing I use is a simple aveeno moisturizing bar. I have stopped wearing my sunscreen and that is one other thing the honey has helped with. In the past when I stopped applying the sunscreen my skin went through a withdrawal of some sorts... I find it very interesting that skin has this reaction. I think some people try to forget about this. aspect.I wonder how much damage we do with all these products? The honey feels different in this sense... that is why I like it and what initially made me try it.

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    Default try reducing fat

    Quote Originally Posted by Michael_V View Post
    I am at my wit's end with this f*cking disease. Tired of the constant burning and those d*mned unstoppable papules, pustules, and nodules that have become my constant companions. Last Christmas, I had clear, easy to care for skin. This year, I have this mess. So far, I've tried the anti-mite route (ivermectin, eurax, permethrine), vitamin D3, zinc, metrogel, clindagel, sulfur, zinc, and finacea, four bouts of IPL (hurt like hell!) and two months or so of LED, doryx, oracea, clonidine, and remeron. All with no noticeable effect on my rosacea!

    I am weary of this fight. My arse is officially kicked....
    Dear Michael_V;228166],
    Its not quite true that nothing works its just you have not yet found one of the most important things which is fat. Given the following statement is true: IF A PERSON WITH ROSACEA CONTINUES TO EAT FAT THEN THAT PERSON WILL ALWAYS AND FOREVER HAVE ROSACEA.

    I am simply replying to your post and your post only

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    Default One more thing

    I just want to say that I am frustrated as well. This stuff pisses me off. It seems so simple, like one could get to the bottom of it... we all search and search and come up with theories, but, alas, not one has been worth much to me. I am new to the natural way so maybe it will end up having some lasting effects in a positive direction. For my skin, I have always said that if I could only get the sun to be a friend and not a foe than I would have something. I sit around and wonder things like, "What if I slapped the honey on and sat in the morning sun for an hour?" Things like this... I keep thinking the answer will come in this form for me... a somewhat basic natural lotion+the sun.... something like this....

    Antibiotics, differin, metrogel, they all seem so confusing to my skin. And this seems like the best the medical community has to offer...

    Drums about the fat thing... it is an interesting theory. Are you in remission? Do you have before and after photos?

  7. #7
    Senior Member Michael_V's Avatar
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    Fat? I have always had a relatively low fat diet. Breakfasts are almost exclusively fresh fruits and green tea. Lunch is usually a salad. Dinner is something reasonable cooked at home by my wife, usually chicken or fish and always with vegetables. Never ever eat candy bars or similar junk. When I snack it is either raw broccoli, carrots, almonds, pumpkin seeds, or cashews.

    Exercise: I used to do something physical almost every day, either running, walking, swimming, biking, or a light work out in the gym. That was before rosacea robbed me of these simple pleasures. Now any exertion causes a flare of nodules.

    Sun exposure: mine has been moderate. I've lived in sunny climes for the past seven years. I grew up in Florida and had my share of sunburns. Spent most of my summers tanned, though. Ironically, I worked a lot of weekends (indoors) over the two years preceding rosacea so had far less sun exposure.

    None of it makes any sense.

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    Default hey

    I grew up in Texas and got lot's of sun. I had a few sunburns and for a while I got burned while on antibiotics. What changes in us that makes us not be able to tolerate the sun at all? It just boggles my mind. I used to think it was the larger pores on my face and the oiliness that made it so sensitive. I have also thought that previous sun damage made the skin compromised. When I see people with far fairer skin than me sitting in the sun with no redness it makes me ponder so many things.

    The last thing that I will say about honey before sounding like a fanatic is that what it does is actually what I think could be the secret. It does nothing. It coats the skin for the time you have it on, protects it, let's it do whatever it needs to do, and then leaves without much trace.

    Your thread says it all: NOTHING works against this.... this thought hit me as I was sitting here trying to describe what I liked about honey. It's like my skin is addicted to having something on it, aka the withdrawal, and this honey, this nothingness, is the ultimate compromise in every direction. The skin gets it's fix, no new damage, a chance for the skin to be coated and have time to repair....

    It ain't perfect, it ain't a miracle cure, but, so far it's steadily feeling better. Will see where I am at in another month....

    I'd also like to say that the Mysterious Dr. S (Ukrane) had recommended his patients put nothing on there face for a year once they went into remission. I thought this was interesting and took note.

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    Default

    Hey you two,

    I too can get extremely frustrated about this condition and was in an extremely bad place a few months back. I find myself missing the way things used to be a lot. But I am trying to move on now and deal with this rosacea beast. It sucks so bad I know especially how it seems a great many of us had great skin before being struck down with this. I also get extremely annoyed with the fact that I have to avoid the sun like the plague. Just having it touch my skin can cause it to start burning so it is just really awesome on those super sunny days when all my friends want to be outside in the sun and your like "hey guys....doesn't that sweet spot of shade over there just look super inviting?!" Or those days were you wake up and you are pale again and people comment on your paleness (I don't know about the rest of you but I find this the ultimate commpliment) But then later on something happens and the burning comes back and I find myself saying "Oh hey rosacea...you are back again? You didn't even give me anytime to miss you"

    On a positive note have either of you tried the virgin coconut oil? I am using that at night as a moisturizer and it really helps. The raw honey solutionquest mentions sounds really nice too!

    Keep up the fight and take care, Jenna

  10. #10
    Senior Member Mistica's Avatar
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    Default

    Quote Originally Posted by Michael_V View Post
    I am at my wit's end with this f*cking disease. Tired of the constant burning and those d*mned unstoppable papules, pustules, and nodules that have become my constant companions. Last Christmas, I had clear, easy to care for skin. This year, I have this mess. So far, I've tried the anti-mite route (ivermectin, eurax, permethrine), vitamin D3, zinc, metrogel, clindagel, sulfur, zinc, and finacea, four bouts of IPL (hurt like hell!) and two months or so of LED, doryx, oracea, clonidine, and remeron. All with no noticeable effect on my rosacea!

    I am weary of this fight. My arse is officially kicked....
    Hi Michael,

    I am sorry to hear you have not managed to make a dent in this rotten disease so far.
    I feel your pain as I have been there.

    Firstly I would like to say that four IPL's are usually not enough to make much difference to redness and flushing. In fact, a few can stir things up.
    I don't know what machine you are being treated with, or whether you are having single or multiple passes, but I can tell you my experiences.
    Initially, my first IPL treatment gave me lots of improvement and I thought, "Great! This is it!". It cleared all my visible vessels and a lot of the redness and flushing. The burning was gone! At 10 days, the burning returned, soon to be followed by more redness and flushing. Subsequent treatment produced few benefits. Then I found out that while IPL can collapse vessels, it can also trigger angiogenesis. Also, IPL is an insult to the skin and it has to be healthy enough to be able to clear the debris. It was said that these processes seemed to stabilize by treatment 6 or 8. Keep in mind, these were single passes. Sure enough, I followed that path. I was a complex case and considered untreatable by many doctors due to comorbid melasma on type III to IV skin.
    I chose to do my treatments in batches, spread over 18 months. I had no choice as I had to fade the melasma with topical agents at the same time as holding the rosacea at bay. In the end, I was rosacea free. NO redness, flushing or P&P's. It can be done, but it takes many treatments. Many doctors say they can't get rid of the redness completely, but in my experience as long as some is there, a decline will be seen rapidly. I got rid of the lot and it never returned in full bloom, ( only slight redness) until my use of topical A.
    I took oral E-mycin the entire time. I had maintenance treatments after one year.
    This 'five treatment' plan is nonsense in my experience and that went for all the other patients attending the clinic at the same time as me.
    I believe Dr Soldo supports these thoughts. ( He has a webinar you can link to).
    Of course, the initial rounds were was horribly expensive.

    Secondly. What were your vitamin D levels to start with? What dose have you been taking and for how long?

    I find topical sulfacetamide10/3%sulphur ( vehicle, cetaphil lotion) very good at controlling the P&P, although these days I only get a few random outbreaks. I was waking up to 30 per day, with more developing throughout the day. D3 further reduced them.

    Do you flush at all?

    Out of curiosity, seeing you are a doctor and no doubt have access to drugs many people don't, could you get a hold of topical heparin?
    Previous Numerous IPL.
    Supplements: Niacinamide, Vit K2, low D3, Moderate Dose Vit C, Iodine, Taurine, Magnesium. Very low dose B's. Low dose zinc (to correct deficiency).
    Skin Care: No Cleanser, ZZ cream mixed with Niacinamide gel 4% and LMW HA.

    Treating for gut dysbiosis under specialist care. (This is helping).
    Previous GAPS diet. Testing tolerance of resistant starch.
    Fermented Foods. 2 to 3 days per week, Intermittent fasting -16-18 hours.

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