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Thread: Really-really tired of pustules

  1. #1
    Member grumpy's Avatar
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    Unhappy Really-really tired of pustules

    Hello,

    I attached some photos of my rosacea symptoms. I only get pustules, no flushing, no permanent redness, not even papules. After I break them, they heal in a day or two (well, most of them) leaving no scars. But I always get new ones daily, sometimes 2-3, sometimes 10-15.

    I used to flush years ago but it's gone. Only during winter, when I enter warm rooms from cold outside, my face gets really hot for an hour or so, and ears turn dark red.

    I am extremely tired of doing the same thing each day: wake up, count the new pustules, break them, wait for the wounds to dry, apply metrocreme and eventually make-up like a lady, before leaving home.

    They clear 100% in about 3 days after I start an antibiotic, and get back in about a month after I stop the antibiotic. After 3 days on antibiotics, I look like a normal clear skin man...but I can't stay on antibiotics forever, I already had tons. They even clear by 80% when I take ibuprofen for colds. I also had 2 courses of Accutane (one as a teenager of acne and one last summer for rosacea pustules). The second course cleared me 95% and remained clear for 2 months after I stopped it. I will not get a 3rd course because it messed my whole body in different ways and the improvement is like 20% only.

    Demodex solutions and Prosacea did nothing for me.

    In the second pic, there's one on the tip of my lips. I also get them on my cheeks and nose or between eyebrows.

    Do you have any ideas on clearing these?
    Attached Images

  2. #2
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    Default

    Hey Grumpy,

    Thanks for sharing your pictures. Honest, the pustules look mild to me, not all over your face and such. I can understand how this bothers you, my breakouts affect me as well. But know, that other people don't even notice, they have there own issues/things going on.

    Being the pustules are near your mouth, have you investigated peri-oral dermatitis (POD)? Peri-oral dermatitis usually occurs outside the mouth or nose. Does your toothpaste have SLS (sodium laureth and sodium lauryl sulfate) in it, and any skin care? If so, these may be the culprit. SLS causes irritation in some folks and it is listed as a potential cause of POD. The other reason I suggest POD, is that you say that you don't really have flushing or issues elsewhere on your face. So, it could likely be POD or acne. What does your Derm. say?

    I know you mention staying off antibiotics, but what about low dose ones, like Oracea or Solodyn? You could do very well on these. You can take probiotics or supplements to help stave off candida or other issues you've experienced in the past. I've taken Accutane also so I can understand you not wanting to do another round at this time.

    Just some ideas. Obviously, I'm not a Derm. but wanted to put some thoughts out your way.

    Take care.

    Yvette

  3. #3
    Member grumpy's Avatar
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    Hi Yvette,

    I read your Accutane journal and I know you also weren't very happy with it months later after the course. Are you on Oracea too?

    I've been going to different doctors: one said it's acne, one said POD and one said it's rosacea. I get some of the pustules on the forehead...and that is not so perioral . Then I went to see one of the best docs around here, and he said it's rosacea and put me on Accutane. He also said that they sometimes consider P&P rosacea subtype as regular acne, both of them responding to Accutane. They also found demodex and aureus but most of the people have these. My toothpaste has SLS but I never thought about this. Hmmm, I will try to find a SLS free one.

    Sometimes I feel that these doctors don't know too much about rosacea. One of them even told me to use a strong antibacterial soap that made my skin very red and gave me a Rudolph nose (it turned back to normal after stopping the soap).

  4. #4
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    Hi Grumpy,

    Actually I was very pleased with Accutane. It was the only drug that really cleared out my skin and kept me clearer on it and for atleast eight months off. It was truly amazing for me. However, I many issues last year that proliferated at the same time - gastric reflux, GI issues, and discovered I have a gluten sensitivity. My skin was a mess last Fall and Winter. I don't blame Accutane for failing me as other health issues likely affected my skin. One of my Derm's (I frequent three) says she takes low dose Accutane herself "maintenance" as she had really bad acne as a teen and in her 20's. This isn't uncommon. I do have the option of taking low dose Accutane again, haven't gone in that direction yet, but know if I do, I can.

    Yes, I'm on Oracea right now. It helps but not a cure all. Solodyn (50mg Minocyline) is good too - I've used that in the past as well. Don't blame your Derm's too much for trying to help. Rosacea is a beast and it all affects us differently. I can see why your Derm. recommended antibacterial cleansers as sometimes these are helpful in destroying germs on the skin but they can be overwhelming on sensitive skin. Have you tried a mild salicylic acid product? Paula's Choice makes salicylic toners which can be beneficial and are not too strong. Also, yes, I'd recommend you discontinue any toothpaste/skincare with SLS in it to see if that helps you as well.

    Take care and chat soon.

    Yvette

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    Default Guessing Game

    Quote Originally Posted by grumpy View Post
    Hi Yvette,

    I read your Accutane journal and I know you also weren't very happy with it months later after the course. Are you on Oracea too?

    I've been going to different doctors: one said it's acne, one said POD and one said it's rosacea. I get some of the pustules on the forehead...and that is not so perioral . Then I went to see one of the best docs around here, and he said it's rosacea and put me on Accutane. He also said that they sometimes consider P&P rosacea subtype as regular acne, both of them responding to Accutane. They also found demodex and aureus but most of the people have these. My toothpaste has SLS but I never thought about this. Hmmm, I will try to find a SLS free one.

    Sometimes I feel that these doctors don't know too much about rosacea. One of them even told me to use a strong antibacterial soap that made my skin very red and gave me a Rudolph nose (it turned back to normal after stopping the soap).
    The more I talk to people and read, the more I am convinced, the entire field of dermatology is one big guessing game. The derms have not a clue! Even IF they actually listened and gave intelligent treatment, they have not a clue. The only reason I go is to get refills on Oracea which I take from time to time. Apart from that, I consider their opinions and treatments irrelevant.

  6. #6
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    Default Re: Grumpy

    Quote Originally Posted by Yvette View Post
    Hey Grumpy,

    Thanks for sharing your pictures. Honest, the pustules look mild to me, not all over your face and such. I can understand how this bothers you, my breakouts affect me as well. But know, that other people don't even notice, they have there own issues/things going on.

    Being the pustules are near your mouth, have you investigated peri-oral dermatitis (POD)? Peri-oral dermatitis usually occurs outside the mouth or nose. Does your toothpaste have SLS (sodium laureth and sodium lauryl sulfate) in it, and any skin care? If so, these may be the culprit. SLS causes irritation in some folks and it is listed as a potential cause of POD. The other reason I suggest POD, is that you say that you don't really have flushing or issues elsewhere on your face. So, it could likely be POD or acne. What does your Derm. say?

    I know you mention staying off antibiotics, but what about low dose ones, like Oracea or Solodyn? You could do very well on these. You can take probiotics or supplements to help stave off candida or other issues you've experienced in the past. I've taken Accutane also so I can understand you not wanting to do another round at this time.

    Just some ideas. Obviously, I'm not a Derm. but wanted to put some thoughts out your way.

    Take care.

    Yvette
    I agree with Yvette and think you should try Oracea or another tetracycline antibiotic, if you can tolerate them. I know these will work for Type 2 Rosacea, they used to work for me but now I am allergic to ALL tetracyclines!

    If you can't do Accutane any more, you should try these!

    Take care,https://rosaceagroup.org/The_Rosacea.../001_smile.gif
    Jasmine

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    Default Absolutely.

    Quote Originally Posted by KRC View Post
    The more I talk to people and read, the more I am convinced, the entire field of dermatology is one big guessing game. The derms have not a clue! Even IF they actually listened and gave intelligent treatment, they have not a clue. The only reason I go is to get refills on Oracea which I take from time to time. Apart from that, I consider their opinions and treatments irrelevant.
    After 35 years of cystic acne? The Derms had no idea on how to help me. Thx for this! I have rosacea now, at almost 65. Good heavens. And I thought menopause would help. Nope.

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    Default

    Quote Originally Posted by Jane Smythe View Post
    After 35 years of cystic acne? The Derms had no idea on how to help me. Thx for this! I have rosacea now, at almost 65. Good heavens. And I thought menopause would help. Nope.

    any acne, ppr subtype rosacea (subtype 2), etc can be cured by traditional chinese medicine method. but there are couple caveats: (1) be able to find the authentic/real traditional chinese medicine doctors who, on top of the general tcm knowledge, also have specific more knowledge and experience in skin (2) after you get your tailored short-term prescriptions /recipes (doctor should re-adjust for you very often, eg biweekly...), you need to get the medicines (ingredients) from good source (i wont go into details here about this now)...

    but the bottom line is, tcm can cure those skin problems (the bumps). the very least, tcm will help put those into remission for a long time.

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