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Thread: led light therapy helps rosacea by respected dermatologist

  1. #11
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    Bailey--

    With some good medical care your situation should get better. I do not know the NY dr. that you are referring to but.....I have been to Mayo Clinic in Rochester 3 x and I have met my share of dr. demi gods. And, even though they may be deemed the greatest in their respective field, if they are supreme jerks, sometimes their great expertise is lost on you.

    I was treated like a lab rat...so I believe sometimes these so called great doctors think ..why talk to a lab rat. Also I think they feel the patient knows nothing and can know nothing. And they had an extreme air of impatience. Now there were a few docs ...that were genuinely wonderful . But percentage wise the number of jerks left a very poor impression of Mayo in my mind.

    You are going to need a derm that is a caring doctor AND one who knows their stuff. If they don't care...which I believe some do not...then they will not talk to you and find out about what is going on and how you are tolerating treatment and then determine how to change course if need be.

    FYI--I have had 5 V Beam treatments . I do not have much in the way of visible broken capillaries like I did before. I flush quite a bit though. I am on oracea taking it 2x a day for now. Also going to start rosanil after I heal from my last laser. And, I have just started using La Roche Posay Toleriane products-so far so good.

    Melissa---your new picture looks great but now you look like a rosacea fraud!!! I like both of your pictures...but I am a bit partial to the prior one with slightly rosy cheeks...
    Last edited by roz; 25th June 2009 at 10:36 PM.

  2. #12
    Moderator Melissa W's Avatar
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    I assure you Roz, I am no rosacea fraud


    just for you Roz





    and here's a big time flush going on including a nose flush with swelling...and all this years before I realized I had rosacea. Mainly because during that time I never experienced burning and my flushing only triggered by heat at that time went away very quickly.

  3. #13
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    Melissa-----

    OK OK I accept that you are a fellow (sister) Rosacean. Yes, you did have a flush going at the party...wedding???? Cute guy...is that your dear hubbie?

    I am going to stand by my comment though that I am still partial to the earlier photo... You looked just lightly flushed ..as though you just came in from a walk in Central Park on a cool October evening. A young lass with a healthy glow. The other (current) photo looks like you are a movie star with photo finish skin.....gosh that dermablend is effective!

    I just know that I could not use dermablend on my face...it is a cream formula right?

    Bailey---the other poster had a great idea about asking around and checking on the drs. reputation with patients!

    Roz

  4. #14
    Moderator Melissa W's Avatar
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    Hi sister Roz,
    Yes, that is my darling husband
    at our wedding



    Dermablend cover creme
    http://www.dermablend.com/foundation...over-creme.htm

    Very easy to use. Just use as little as you need.


    Bailey, nothing substitutes meeting with the doctor in person and deciding for yourself. Though it is very helpful to hear from other rosaceans about their experiences with specific doctors.

    Best wishes,
    Melissa

  5. #15
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    Melissa....


    Hmmmmmm....I am still wondering though about your rosacea bona fides. Didn't you say in the new photo that you were laying by the pool?

    Now I suppose you will say that you had your vanicream 60 spf on head to toe plus your swim suit of course...but further doubts have been raised about your continuing status as a rosacean! Next thing we will see photos of you drinking beer at a Thai restaurant and then you will have to be banned from the board.

    At this time though I will take you at your word.

    Roz

  6. #16
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    Talking



    I prefer tanqueray 10 and tonic or a pomegranate martini

    http://video.about.com/cocktails/Pom...te-Martini.htm


    sorry guys
    back to the topic now...

  7. #17
    Moderator Melissa W's Avatar
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    Here is some info that was posted before but is relevant to this thread so I thought it may be helpful for those who may not be aware of it.

    http://www.modernmedicine.com/modern....jsp?id=361119


    http://rosacea-support.org/led-post-...m-redness.html


    http://rosacea-support.org/led-helps...s-redness.html

  8. #18
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    Default Dr. G

    Melissa he is cute and you look great too.
    Sorry I have a bug up my----- about these guys. They really don't give a ---about the average patient with an actual dermatology problem. They only cater to their celebrity clients and like to see their names quoted in magazines.They publish only to get more cosmetic clients. He charged me 400 dollars for a consult- this is 3 years ago which consisted of him telling me he couldn't do anything. He leaves the dirty work (actually talking to the patient) to his residents. He charged 600 for the teatment. His staff refused to give me a coded bill for insurance for the consult (which insurance would have paid for) because they said everything was cosmetic. When I objected, the woman at the front desk said that the doctor would not "commit fraud "for me. By the way, I am a retired government worker who at the time was managing an office of fraud investigators whose work included medicaid fraud by doctors! This statement enraged me so much that I took out a small clamis suit against the doctor. Shortly after, I got a call from the office manager who said that they had fired the women that I had spoken to and would refund all my money including the treatment just to keep from going to court.
    I am a native New Yorker, with a thick skin and found his behavior rose above even my tolerance of inappropriate. He has absolutely no empathy at all. My currrent doctor said he tried to ask him a question at a conference and he just brushed him off to an underling that he brought with him. There are doctors that are just as good as him without the attitude, and Rosacea is bad enough without having to be abused as well.
    But there are a lot of people out there who like him so- go figure.
    Arlene

  9. #19
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    Hi Arlene

    Yes there are lots of people like that unfortunately. Dr Arielle Kauvar (laser derm)is one who is just like that! What you posted mirrored my experience with her over 2 years ago. It was awful. It cost over $800 if I am remembering correctly and she wouldn't give me a coded bill for insurance either saying she couldn't risk it since she gets all the lasers from the companies to test and evaluate and write about etc. BFD. She also said it was unethical...huh
    What is unethical about treating someone whose face feels like it is on fire and then coding for said procedure and trying to get reimbursed by insurance??

    Anyway it upsets me to even think about that. But while I do agree with you regarding this issue if I had to choose between a physician who is experienced and skilled regarding rosacea and poor bedside manner vs great bedside manner but no clue regarding rosacea I would choose the former. Of course Dr Kauvar had the worst bedside manner I have had the displeasure of encountering and I was very unimpressed with her skill regarding rosacea. She was not good in any way IMO.

    Optimally having a physician who is skilled and experienced regarding rosacea and a great bedside manner who really cares about his patients (Dr Crouch IMO) would be the ideal situation. Sadly, I haven't found any laser doctor in NYC who fits all the criteria yet...

    I hope your treatments are going well. I have been meaning to email you to see how you are doing!

    Melissa

  10. #20
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    Default treatments

    Hi Melissa
    I'm doing just ok. The Sciton BBL is great for clearing up redness but it has not done much for my flushing- even combined with the yag so far. I like Dr. Epstein- Cherry Hill Laser & Skin, he's open to suggestion re: trying new things, different settings etc.We have tried the protocols of the "big guys". Not as warm and fuzzy as Dr. Johnson, but not arrogant. In addition he doesn't overbook and I don't have to wait for hours just to see him. He will instantly e-mail me back if I have any questions or concerns and he trys hard. Also his prices are reasonable and he discounts 50% after first package of 6. Best of all I don't have to spend hours and money on flying for treatment.I'm due for another treatment next Tuesday. I felt that I was just going in a circle- getting rid of redness only to have it come back from flushing so I started taking Remeron along with clonidine. Being very careful of what I eat and also taking an appetite suppressant- under a doctors (internist) supervision - because although Remeron works well you can gain a ton of weight with it. Trying also with the same doctor to get my hormones in order because part of my problem is low estrogen. I feel much better and when I'm not flushing my skin looks great, but right now still need to be in a cool room with a fan on my face. Hoping that by breaking the cycle of flushing betweeen treatments I may achieve remission. Fingers crossed. I wish we had a Rosacea specialist on the East Coast, but we don't. Here its mostly about getting rid of a few veins by using vbeam and thats about it with few exceptions. Actually there is a doctor here - Goldberg who publishes as much as Dr. G. Fortunately I looked him up on ratemd and saw that he has the same ego issues along with outrageous prices. Then I found out he spends part of his practice time in the same clinic as Dr. G.
    Thinking about you too, but you look great- Unfortunately here comes those summer New York dog days we love so much! Thank God I'm not on the subway.
    Arlene

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