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Thread: Personal success stories

  1. #231
    Senior Member queta's Avatar
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    Quote Originally Posted by NK1990 View Post
    Hi i have had rosacea for 15 years and it is FINALLY clearing up! I have tried literally everything and found 2 major cures!

    1. Earthbound Organics skincare based in UK has no chemicals in their products, after trying La Roche Posay, Avene, Dermalex etc you name it ive tried it!

    2. Medical Medium doctor Anthony Williams books Life Changing Foods and his instagram page called MedicalMedium he recommends drinking 16oz celery juice in the mornings and describes the link between your gut and skin - amazing! His tips have literally cleared up my rosacea and i havent even changed my diet completely yet to a clean one as i cant resist choccies and pizza lol!
    I haven't been on the forum for a really long time but I did stop here for a few minutes to share my success with probiotics. It seems that eating raw garlic a few times a week plus having coconut milk yogurt, sauerkraut, and/or kombucha tea each day is helping the swelling in my face to go down. So I think that Dr. Williams' idea about the link between the gut and rosacea makes sense. at least for me. Glad to hear that things are going better for you!
    Queta
    "Do not go where the path may lead, go instead where there is no path and leave a trail."
    Ralph Waldo Emerson

  2. #232
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    Default How I cured my Rosacea

    Hey everyone,

    I have been struggling with Rosacea for many years now, but have finally found relief. After buying countless products and loading up my face with oils and moisturizers, I realized this was just a band-aid on top of the underlying problem. Since learning about how important the gut is in our skins appearance, I have made some changes to my diet and lifestyle. After changing what I eat on a daily basis and applying less product to my face, my skin conditions have completely gone away. A book that I think everyone needs to read is written by a doctor who has been studying the role of bacteria in our stomachs his whole life. He talks about how to kill off the bad bacteria in our stomachs and allow the good strains to flourish. It also addresses exactly what to eat and when to eat it. A product that I use alongside the books knowledge is a type of water called "Rose Water". This is the only thing I put on my face now and it is completely natural. Most importantly, it has one ingredient. It allows your face to breathe and remain cool when you would usually get hot. Also, it is a great value, as it will last you for a year. Instead of spending your hard earned money on various products that promise to treat your Rosacea, I urge you to educate yourself from this book and try out the Rose Water. The links to the products are linked below. It'll be the best, and hopefully last, investment you have to make.

    https://amzn.to/2O6R6yW
    https://amzn.to/2OauygI

  3. #233
    Senior Member Brady Barrows's Avatar
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    Quote Originally Posted by Duff Man View Post
    I tried every cream imaginable; the list of creams I didn't try is shorter. I went for 13 years without a full remission; started getting the rash really bad when I was a handsome young man, and it really was tough on my self esteem. It did a number on my face, and began to cover my scalp too.

    The only thing that finally worked for me with long lasting, real remission, is plaquenil. My only regret is that I didn't try it sooner. Much, much sooner.

    In hindsight, I think it was likely lupus all along, and my experience really has me questioning how many other people with "rosaceae" are just lupus sufferers.

    I would encourage folks here to do an honest self audit to reconcile any symptoms that may be similar to lupus and connect the dots. And whatever you do, whatever your gut tells you, please don't give up on finding a lasting resolution.

    Even if I don't have lupus, the treatment for it resolved my horrible, red, burning, painful, embarrassing rash. I don't really care what we call it because I'm able to look in the mirror again. And Im feeling​ my age again.

    I hope everyone here finds a lasting remission. Don't stop until you do.
    A recent paper has confirmed what Duff Man explains above three years ago that works for rosacea. We will without a doubt hear more about this from others. Plaquenil (Hydroxychloroquine) is available in a generic prescription and available worldwide.
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  4. #234
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    Quote Originally Posted by Brady Barrows View Post
    A recent paper has confirmed what Duff Man explains above three years ago that works for rosacea. We will without a doubt hear more about this from others. Plaquenil (Hydroxychloroquine) is available in a generic prescription and available worldwide.
    Is it an antibiotic? And what’s the side effects ? Have you tried it ?

  5. #235
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    People taking 400 mg of hydroxychloroquine or less per day generally have a negligible risk of macular toxicity, according to Wikipedia

    how much do Rosacea patients take?

  6. #236
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    Quote Originally Posted by Brady Barrows View Post
    A recent paper has confirmed what Duff Man explains above three years ago that works for rosacea. We will without a doubt hear more about this from others. Plaquenil (Hydroxychloroquine) is available in a generic prescription and available worldwide.
    This is exciting! It's great that it's an already widely available medication and we won't have to wait years to hear some anecdotal evidence.

  7. #237
    Senior Member Brady Barrows's Avatar
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    Quote Originally Posted by Rubydo1 View Post
    Is it an antibiotic? And what’s the side effects ? Have you tried it ?
    The links explain Hydroxychloroquine is a malaria treatment that has been used to also treat lupus. It was shown effective in an "8-week HCQ treatment [that] exerted satisfactory therapeutic effects on erythema and inflammatory lesions of rosacea patients, indicating that it is a promising drug for rosacea in clinical treatment." This is so new we have few anecdotal reports other than the one in this thread by Duff Man. Maybe if you dig around we might find some other anecdotal reports of using Plaquenil for rosacea. I am sure we will be hearing more reports as rosaceans cite this paper to their dermatologist and ask for a prescription. I found this thread started by wendykay but no one reports using it. It takes a lot of investigation and lots of searching to weed through posts mentioning Plaquenil. If there were a number of positive reports like Duff Man's we would know about it. And Duff Man only posted this one post and we never hear from him again. This is typical and not unusual. The rosaceans come and go posting their rosacea woes, sometimes their remission, and after their posts they have finished their mission.
    Last edited by Brady Barrows; 12th January 2020 at 03:55 AM.
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  8. #238
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    Quote Originally Posted by Brady Barrows View Post
    This is so new we have few anecdotal reports other than the one in this thread by Duff Man. Maybe if you dig around we might find some other anecdotal reports of using Plaquenil for rosacea. I am sure we will be hearing more reports as rosaceans.
    Found this thread here, where three users discuss their experiences with plaquenil. It seemed to help their symptoms. I'm sure there are others threads floating around too.

  9. #239
    Senior Member Brady Barrows's Avatar
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    Quote Originally Posted by Dutch1 View Post
    Found this thread here, where three users discuss their experiences with plaquenil. It seemed to help their symptoms. I'm sure there are others threads floating around too.
    Thanks. There are few like you left among rosaceans here at RF with the chutzpah to take the time to investigate and find such threads. Obviously trying plaquenil died off around 2011 but I think it wil be revived in 2020 and we shall see if it has the Duff Man success rate.
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  10. #240
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    Quote Originally Posted by Brady Barrows View Post
    The links explain Hydroxychloroquine is a malaria treatment that has been used to also treat lupus. It was shown effective in an "8-week HCQ treatment [that] exerted satisfactory therapeutic effects on erythema and inflammatory lesions of rosacea patients, indicating that it is a promising drug for rosacea in clinical treatment." This is so new we have few anecdotal reports other than the one in this thread by Duff Man. Maybe if you dig around we might find some other anecdotal reports of using Plaquenil for rosacea. I am sure we will be hearing more reports as rosaceans cite this paper to their dermatologist and ask for a prescription. I found this thread started by wendykay but no one reports using it. It takes a lot of investigation and lots of searching to weed through posts mentioning Plaquenil. If there were a number of positive reports like Duff Man's we would know about it. And Duff Man only posted this one post and we never hear from him again. This is typical and not unusual. The rosaceans come and go posting their rosacea woes, sometimes their remission, and after their posts they have finished their mission.
    I can remember a number of positive posts when I first took hydroxychloroquine in 2011. It is used more regularly to treat lupus of the skin (which can have a similar butterfly rash to rosacea). I actually approached a dermatologist who specialised in lupus to try it as I assumed she'd be familiar with how it worked and would be willing to try it perhaps - Dr Justine Hextall. I had tried mepacrine first, another anti-malarial which was recorded in a 1950s British Journal of Dermatology article as being used for rosacea. The combination of hydroxychloroquine and mepacrine can be quite powerful (it is a combination used in difficult cases of lupus skin rashes), but mepacrine has regular gastro issues, which is one of the reasons it's not used very much anymore (very hard to get in the US I think).

    https://www.lupus.org.uk/how-is-lupus-treated (nb: towards the bottom the information on the combination therapy of mepacrine and hydroxychloroquine - I have used this combination in the past and I think it is quite powerful)

    The licence for the brand, Plaquenil, has ended in the UK, so it is now referred to as hydroxychloroquine alone, though I think it's still sold as Plaquenil in some countries. Nevertheless the formulations of different generic brands are quite different, and I only like the Zentiva brand of hydroxychloroquine (which is an exact copy of the original Plaquenil). There are a lot of complaints about intolerance to the coatings of some of the generic versions.
    Last edited by antwantsclear; 12th January 2020 at 04:11 PM.

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