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Thread: Who has had Vitamin D Levels Checked?

  1. #1331
    Senior Member nat007's Avatar
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    Hi all,

    I have recently checked my vit. D levels and they were extremely low, seriously deficient.
    So I started to sunbathe every day between 12.00 and 13.30 for some proper uv-B radiation.
    Well, I am very tanned already over my body (keep my face in the shade), but I am always
    very red as well afterwards. I use a small fan to cool my face (it's a weird sight, but well,
    all for a proper scientific experiment of course).

    I did a google search on vit. D and flushing, and excuse me if it has been already mentioned
    here but I found testimonials of non-rosaceans who flushed from vit. D3:

    http://www.easy-immune-health.com/ca...vitamin-d.html

    So I wonder if this causes us to flush even more?
    I do want the D levels to go up, as I also have auto-immune issues, so I will continue with
    doing this daily, but there might be a relationship between taking vit. D3 and getting flushed perhaps?

    Best wishes Natalja
    Uses: 22,5 mg mirtazapine, clonidine and propranolol, Xyzal at times.
    Diet: trying low sugar, no gluten and dairy, high protein diet.
    Link to my rosacea blog:http://scarletnat.blogspot.com

  2. #1332
    Senior Member findingaway's Avatar
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    Your right, it's been discussed before

    Some flush, some don't (as usual with rosacea :/). Take it very slow. Low dose to start. Some are better with non oil based vit d3, but make sure it's d3 not d2.

    Sunbathing will give you about 10,000 Iu in 20 mins, but then your skin stops producing vit d so longer is pointless and will only damage your skin.

    Hope this helps

  3. #1333
    Senior Member nat007's Avatar
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    oh, thanks findaways, and apologies for the repeating
    well, I am about 1,5 hour a day in the sun, so that is needlessly long then I suppose,
    thanks for that info. I don't take the vit D3, just try to have some sun exposure daily
    if possible..
    Do you perhaps know if the levels keep building up, on a daily or weekly basis? Is too
    much not good perhaps, as high levels of D3 in the body might add long term to the
    flushing and inflammation?

    good luck to everybody!

    Natalja
    Uses: 22,5 mg mirtazapine, clonidine and propranolol, Xyzal at times.
    Diet: trying low sugar, no gluten and dairy, high protein diet.
    Link to my rosacea blog:http://scarletnat.blogspot.com

  4. #1334
    Senior Member findingaway's Avatar
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    Happy to help where I can!

    A recent study found women needed roughly 7,500 IU daily to increase their levels by about 1-4 ng/ml weekly (or something like that). Depends on how good your body absorbs the pills.

    I take vit d3 with with k2 as apparently k2 prevents calcification - a risk of too high levels of d3.

    A note tho, women in study increased at a slower rate as their levels of d3 increased. So basically the more deficient, the more your levels rise with the same levels of supplementation.

    Easy way to check is get your d3 levels checked periodically.

  5. #1335
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    Quote Originally Posted by nataljaoo View Post
    Hi all,

    I have recently checked my vit. D levels and they were extremely low, seriously deficient.
    So I started to sunbathe every day between 12.00 and 13.30 for some proper uv-B radiation.
    Well, I am very tanned already over my body (keep my face in the shade), but I am always
    very red as well afterwards. I use a small fan to cool my face (it's a weird sight, but well,
    all for a proper scientific experiment of course).

    I did a google search on vit. D and flushing, and excuse me if it has been already mentioned
    here but I found testimonials of non-rosaceans who flushed from vit. D3:

    http://www.easy-immune-health.com/ca...vitamin-d.html

    So I wonder if this causes us to flush even more?
    I do want the D levels to go up, as I also have auto-immune issues, so I will continue with
    doing this daily, but there might be a relationship between taking vit. D3 and getting flushed perhaps?

    Best wishes Natalja
    Hello Nat,

    Have just come back from having my thyroid bloods done & also asked for Vit D level

    test again.

    I started on a low supplement of Vit D3 1000 iu per day (the recommended dose) & have

    slowly increased to what will be 2000 iu's by May, so it has taken a year!

    I do believe that this has really helped me, my level was only 40.4 after I had started to

    take the supplements, so goodness knows what they were before!

    I did have a blip, when I tried to increase the dose too soon & had a HUGE flush!

    I obviously absorb things well and feel that this supplement has really helped.

    Weather here in the Uk is fab at the moment, so like you I am going to let my body get

    some 'natural rays' too................I actually don't think the sun is a trigger for me

    anyway!

    Good luck!

    Judyx
    SUFFER FROM NEUROPATHIC ROSACEA & OCULAR ROSACEA.


    *Vit D3,Theratears Omega 3.



    *LDN since October 2018.

    *REN skincare range. TARTE cosmetics.

    *Tried Clonidine, Moxonidine & Atenolol (None being taken at present ).

    *Yearly IPL treatments until 2009.

    * RLT Journey!" (Sept 09) **Using Britebox Revive..(Stopped ).

    * Use Optimel & Ilast cream for MGD Ocular rosacea.

    History of Hyperthyroidism (Graves) Lichen Planus (oral)
    PROUD TO BE DIFFERENT






    .

  6. #1336
    Senior Member Mistica's Avatar
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    Were you talking k2 with the vit d - this stops calcification apparently.
    I believe it was me who told you that.

    I have always taken D3. To recap, I had increased my dose to 11,000IU per day as my combined antibiotic regime reduced my 25(OH)D level ( Stores).

    A few months later my serum stores reached 108ng/mL and my first 1,25 D ( active) test showed the elevated levels.
    One question is though, is the ref range for active up to date? The store level Ref. Range has only recently been increased and it isn't as high as some scientists believe it should be.
    Dr Vieth didn't mention to me that it should be higher though.

    My GP has sent me a lab request in the mail. I should receive it today or tomorrow and will get those calcium tests done.

    I am trying to take K2 once or twice a week as a starting point.

    I looked at the vitamin D combo you take. Thanks for posting it. I recall, I looked some time ago as I was interested in the dry form of K2. Upon seeing it again, I remembered, I can't take the product due to the 100mg of Mag.
    I used to take 300mg with no problem, but these days I can't tolerate it.
    I do need to watch my mineral levels though, as I am currently taking Interfase Plus, which contains EDTA. ( binds with minerals). Interfase Plus supposedly helps destabilise gut biofilms.

    I am taking a multi at this stage. I need to discuss all this at my next GP review.
    Previous Numerous IPL.
    Supplements: Niacinamide, Vit K2, low D3, Moderate Dose Vit C, Iodine, Taurine, Magnesium. Very low dose B's. Low dose zinc (to correct deficiency).
    Skin Care: No Cleanser, ZZ cream mixed with Niacinamide gel 4% and LMW HA.

    Treating for gut dysbiosis under specialist care. (This is helping).
    Previous GAPS diet. Testing tolerance of resistant starch.
    Fermented Foods. 2 to 3 days per week, Intermittent fasting -16-18 hours.

  7. #1337
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    Quote Originally Posted by iDan View Post
    Hi all,

    The odd hacking asthma-like cough that I've had for years (and which didn't clear up completely after antibiotic or high-dose Vit D3 treatment) seems to have decreased again greatly. I may be noticing some decreased food allergies already too. I still have a lot of sinus drainage, etc - which has been the hallmark of antimicrobial treatments for me
    Hi Dan,
    I'm new and seeing gp next week about visible veins on my face and mild flushing.

    I do have other chronic disorders tho and your comment about asthma-like cough interested me as i also have dust-mite allergy and thats what I had for 2 years before they told me i had allergic asthma as well. Have you seen doc about it as i also read it can do damage if left untreated. I use an inhaler everyday now (altho that worries me too). Hope your cough improved anyway!

    Are you the original OP? I joined half way thro.. I am also taking high dose vit d as was deficient but i only take 5000IU a day and dropped to 2000IU now after 1 year as my levels are in the sufficient range now (84 nmol) I haven't noticed much difference to my conditions, rosecea started after i started vit d but it's only mild.

    I did notice an increase in energy but my fatigue got worse again lately and my CRP levels are 8-9 at the moment which is an increase.

    I dont think anyone should take 10 000 IU for more than a year, unless have an autoimmune disorder which could increase your need for it. My mum has MS and she said she feels better on it after i nagged her to take it.

  8. #1338
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    I am also taking VSL#3 probiotics just now for suspected SIBO (i suspect). So that could be linked to roseacea..

  9. #1339
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    Quote Originally Posted by Mistica View Post
    I believe it was me who told you that.


    A few months later my serum stores reached 108ng/mL and my first 1,25 D ( active) test showed the elevated levels.
    One question is though, is the ref range for active up to date? The store level Ref. Range has only recently been increased and it isn't as high as some scientists believe it should be.
    Dr Vieth didn't mention to me that it should be higher though.
    The Vitamin D Council site tells you reference ranges for what they think is acceptable. NHS range said above 500 (can't remember the scale tho, nmol?) is toxic so anything below that is probably fine. Mine is currently 94 (nmol?), i'll be happy if get above 100 as less chance of developing autoimmune disease. There are other hormones made by sunlight tho including serotonin so i need to get outside more at wknds too..

  10. #1340
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    Default My test results were slightly low - but taking it made no difference

    Ive been taking 10,000 IU a day lately (last 5 weeks or so) because I use a sunblock every day & havent sunbathed for years, & Id read it could help my rosacea. I was also taking other supplements including CoQ10, fish oils, turmeric, acetyl n-cysteine, ADP (oregano for parasites), & carotenoids. Id also taken oral Ivermectin for demodex a couple of weeks earlier, & until I went away been taking apple cider vinegar (Braggs, several times a day).

    While I was on holiday, about 2 weeks after starting all of these I noticed my flushing was GONE, & realised it had actually been gone for quite a few days before I left. This was a HUGE deal as theres always flushing when I shower, get nervous, etc etc. Even though it was really hot & I was in the sun I had the normal redness of that, not the roseacea redness. It was a miracle! It wasnt the water as I was in Ibiza & the tap water is dreadful (& undrinkable). I wasnt in the sea much & was drinking every night. My diet isnt fantastic, & I ate a LOT more salad on holiday (plus less carbs/sugar) but I was drinking 'pina coladas' & 'strawberry daiquiris' so I think apart from the extra veges we can rule out healthy lifestyle as the cure.

    Then I got back & for one reason or another had a few days off the supplements..& the redness returned with a vengence. So I started them up again, this time one by one to try & find my miracle cure...& I can tell you its not the Vitamin D3. Ive been taking that religiously for two weeks & last night & have been flushing a lot with alcohol, central heating, etc etc. Likewise turmeric, & in fact all of the supplements (which I introduced one by one but Im still red).

    What I think it might be is the apple cider vinegar I took pre holiday for weight loss..I noticed towards the end of the holiday it felt like I was starting to feel a little hotter on my face. Ive taken it a little bit since I got back, & I had days where it slightly improved..but I stopped. Theres an ACV thread - I signed up here just to answer it - & the person that started it said his has gone since starting it. Having looked at the different things that contributed to my remission ACV is the only one I havent re started properly & didnt take on holiday.

    I was also taking Biostrath (a vitamin B yeasty drink thing) pre holiday so it might be that too. Or the oral Ivermectin. But Ill just take the ACV & if it works will let you know.

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