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Thread: Not again sigh...

  1. #1
    Moderator Melissa W's Avatar
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    Unhappy Not again sigh...

    Just venting.

    Over the last week or so I have been getting these little (what I thought was) paper cuts on my fingertips that are swelling and very tender and surface bloody (sorry a bit too graphic perhaps). Anyway, how dumb am I because I just showed them to my husband complaining these paper cuts seem to be getting worse and he looks at them and tell me honey, that's the chilblains that you had last winter. Looks just like them. Bullseye appearance and all. I cannot believe I am so stupid that once again I thought they were cuts.

    Anyway I cannot believe it. It is 45 degrees Farenheit and not very cold at all. It never ends.

    Thanks for listening.
    Melissa

  2. #2
    Senior Member moka's Avatar
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    Hi Melissa,

    I really feel for you!
    I get the exact same thing (in 18 degrees Celsius which isn't even considered "cold"...).
    Unfortunately I have absolutely no idea how to prevent the chilblains and blisters. I'm applying hand cream ALL the time and even before going to sleep, and wear gloves whenever I go outside and while driving. I really recommend to do both, and as much as possible. it's the only thing helping me so far.
    Did you discuss this with your GP or dermatologist?
    Last year, when things got really bad (my index finger was so swollen that I could hardly move it) my dermatologist recommended seeing an angiologist. she told me that for some reason the blood isn't reaching my hands properly and suggested that maybe a blood-vessel specialist can give me some advice. the problem was that since there are very few angiologists here, I had to wait 7 months (!) for the appointment. of course, by then it was summer and my hand was back to normal, so I ended up not going.
    The most important thing (according to my GP and dermatologist) is to keep your hands warm and moisturized. I try to expose my hands to cold air as little as possible. When I was in Canada last month and my hands started showing of chilblains, I bought a pair of fleece gloves and now I use them all the time. (If it hadn't looked so weird, I'd wear them in the office too... ).
    Although my dermatologist said that once you develop this problem it will never go away, I have a friend who claims that she had this problem as a child and after a few years it stopped happening.
    So I hope it will be the same for us too.

    Hugs,
    Yael.

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    Moderator Melissa W's Avatar
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    Thanks Yael
    2 of my fingers are so ulcerated I had to just put bandaids on them. Gross.
    And we are expecting company any minute. They will love me serving food to them like this LOL.

    When I first developed it 2 winters ago my doctor was insistent on wanting me to go on calcium channel blockers but I refused as that would flare the rosacea since it is a vasodilator. However if my fingers ulcerate even more I am not sure what I can do


    I will do as you recommend and keep them warm and as moisturized as possible Thanks for the advice and I hope you remain chilblain free!!

    hugs,
    Melissa

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    Are chillblains when your fingers split from cold, dry weather and do they have to have the bullseye appearance? Mine get that way every single winter, without the bullseye. They get sore and red too before cracking but I never heard of chillblains and am not sure if that's what it is or not. It's happening early this year because I think it's been colder than usual. I wear gloves all the time but fingers get white anyway. One thing that helps is a bandaid with polysporin on it. I know, bandaids are scary when you're serving food! For me anyway, hand cream brand makes a difference. I have to use it constantly, every time after washing hands. The one that works best for me so far is Eucerin 's PLUS Intensive Repair Body Creme. Don't know if that will help your condition or not, but maybe it will help.

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    Moderator phlika29's Avatar
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    Hey Missy

    I find the best way to reduce the risk of getting them is by trying to keep everything at an even temperature. I get them on my toes rather than my fingers. You can get cream but I worry that I will somehow get it on my face and so have not really dared us it.

    Last winter I rememeber getting worried about it affecting my nose as it was always very cold. But this can't happen, right.

    My propanolol makes it a lot worse by the way.

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    Senior Member Mistica's Avatar
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    Melissa,

    Did you try RLT on your hands? For some reason I seem to recall you or someone already mentioning that.

    I have been crossing my hands over my chest, so that they are under the Red Light when I have treatment in the doc's office. It seems to help.
    Previous Numerous IPL.
    Supplements: Niacinamide, Vit K2, low D3, Moderate Dose Vit C, Iodine, Taurine, Magnesium. Very low dose B's. Low dose zinc (to correct deficiency).
    Skin Care: No Cleanser, ZZ cream mixed with Niacinamide gel 4% and LMW HA.

    Treating for gut dysbiosis under specialist care. (This is helping).
    Previous GAPS diet. Testing tolerance of resistant starch.
    Fermented Foods. 2 to 3 days per week, Intermittent fasting -16-18 hours.

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    "Cold hands, warm heart" as my old nan used to say.

    As Mistica says, LLLT might be worth a try. Perhaps in the near- infrared range?

    How about a mildly potent vasodilator like ginkgo? A spasmodic circulation - now sluggish, now explosive - is the enemy, not a healthy, vibrant one. Experiment with dose and times (and give the body time to adjust). You may find it helps more than it harms.

    Frankly, we need to get this sorted. With sore hands, your bag carrying powers are much diminshed. In these bleak times (and in the run-up to Christmas!), retailers across NY will be praying for your swift recovery!

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    Member mattamx's Avatar
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    Default Chillblains

    Never heard of 'em before your post, Melissa. I grew up in Iowa, where the winters are truly blistering (and oh, so horrible for a Rosacean's skin) Maybe we called them something else. In any case, they sound painfull! Sorry!

    I wonder if Rosaceans are predisposed to these Chillblains?

    Mitch

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    Moderator Melissa W's Avatar
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    Hi

    Bealjanier, I think that if you have poor circulation it can lead to chilblains.
    I have Raynauds in my hands so I think that causes the chilblains for me.
    Mine do have the bullseye appearance but I do not think that is necessary for the diagnosis.

    http://www.mayoclinic.com/health/chi.../DS01091/rss=1
    Definition

    Chilblains is a painful inflammation of small blood vessels in your skin responding to sudden warming from cold temperatures. Also known as pernio, chilblains can cause itching, red patches, swelling and blistering on extremities, such as on your toes, fingers, ears and nose.
    Thanks for the recommendation of using the Eucerin Plus intensive repair cream. I will try that. I also am using an antibiotic cream with the bandaids
    My brother in law gave me a sample of Kerol topical suspension which is supposed to be helpful. It says on the tube 50% urea in a lactic acid and salicylic acid vehicle. I have no clue what it is but I will look it up and let you know if it is of any help.


    Sorry Sarah, it looks like we can get it on our noses That would suck
    Suddenly having it on the fingers/toes doesn't look so bad

    That is why I couldn't take the clonidine btw because it put my Raynaud's into overdrive. I have propranolol but never really used it. Guess it's not a good idea in the cold weather for us.

    Jenny,
    thanks for the suggestion of the RLT. I'll try that. I wish I had more patience to sit still and do it for longer.

    Best wishes,
    Melissa

  10. #10
    Moderator Melissa W's Avatar
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    GJ,
    So you think ginkgo might help and not put my rosacea into overdrive?
    I will go and buy some ginkgo after I have VBeam on Monday. I will wait a week or so because I stop all supplements a week before and after Vbeam. Thanks for the suggestion

    LOL about the christmas shopping. I am doing it all online this year. Easier to protect myself from the elements and frankly, the stores are very depressing right now. No one is in them. We were window shopping at Harry Winstons a few weeks ago and went in and I tried a few pairs of earrings on for fun. Just for fun mind you because their prices are abit steep ! Anyway, I felt so self conscious because Greg and I were the only customers in the store. All eyes were on us In any case we are not doing any big shopping this year because of the uncertainty of the economy. Sorry to disappoint you GJ I will try and make up for it next year (And I know just which pair of earrings I want!!)

    Mitch,
    Interestingly it seems that it is not very uncommon for rosaceans to have the coexisting condition of Raynauds which can lead to Chilblains. Lucky you not having heard of it before especially with those cold winters in Iowa. I used to love the cold weather but now I really prefer the moderate temps. Lots easier on my face and hands

    Thanks for the suggestions!

    Best wishes,
    Melissa

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