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Thread: Positive results from Ivermectin Trial

  1. #11
    Moderator Melissa W's Avatar
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    Jenny,

    It was this year and I didn't notice any changes in my rosacea for better or worse but it was only 2 doses over a 2 week period.

    Melissa

  2. #12
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    I know this sounds very vain but I can not stop looking at my skin in the mirror. If my skin could stay this fabulous I will be eternally ecstatic.
    It is smooth, even the pores seem to be smaller. I'm not at all red. I had a stressful shift at work the other day, I felt myself flush but it seemed to settle very quickly. There are still a couple of papules on my neck but my face is completely clear.
    I will stand by the Megan Gales Invisible Zinc and say it is the best product EVER and that in combination with the Ivermectin cream is for me an absolute Godsend. I stopped my Doxy and Rosex (had not done a thing in 2 months) 2 weeks ago and my face has stopped flaking.
    I hope that this cream is on the market soon as I will hate to have to stop it after the trial.
    I have also started using an Avene moisturiser in the morning before the Invisible Zinc which is really soothing. It seems like a really nice product.

  3. #13
    Moderator Melissa W's Avatar
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    Thumbs up

    That is great
    Let us know when you find out if and when the Ivermectin cream might become available.

    Best wishes,
    Melissa

  4. #14
    Senior Member Mistica's Avatar
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    Hi Rachel,

    That is indeed great news! And I totally understand about wanting to check your face in the mirror

    Just to clarify about the redness. Are you talking about permanent background redness you had, or the inflamed areas caused by the outbreaks?
    The former is so hard to treat.

    Sorry if you have already spoken about this elsewhere, but can you please tell us whether you had any burning sensations prior to the trial?

    Thanks!
    Previous Numerous IPL.
    Supplements: Niacinamide, Vit K2, low D3, Moderate Dose Vit C, Iodine, Taurine, Magnesium. Very low dose B's. Low dose zinc (to correct deficiency).
    Skin Care: No Cleanser, ZZ cream mixed with Niacinamide gel 4% and LMW HA.

    Treating for gut dysbiosis under specialist care. (This is helping).
    Previous GAPS diet. Testing tolerance of resistant starch.
    Fermented Foods. 2 to 3 days per week, Intermittent fasting -16-18 hours.

  5. #15
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    Mistica,
    I think I am lucky and at this point don't seem to have permanent redness. It was always hard to tell as the same spots seem to have been constantly inflammed. But now as my face is completely clear I couldn't have had any permanently red spots.
    I still have a few broken capillaries around my nose but I'm sure laser is the only way to get red of them. And I plan to put off that path as long as I possibly can.

    Face is getting better every day. My husband can't believe the difference, he has never seen my skin like this (wish I had this on my wedding day). So for those of us with papules and pustules caused by mites it looks like there may be a solution. I just hope that my skin continues to stay this good and doesn't relapse for any reason. Will let you all know if it does.

    I wonder from reading NWC's posts if it was Ivermectin that they were using?

  6. #16
    Senior Member Mistica's Avatar
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    Quote Originally Posted by rachzon View Post

    I wonder from reading NWC's posts if it was Ivermectin that they were using?
    Yes, I wondered that too.

    As for your case, it is really good news
    Previous Numerous IPL.
    Supplements: Niacinamide, Vit K2, low D3, Moderate Dose Vit C, Iodine, Taurine, Magnesium. Very low dose B's. Low dose zinc (to correct deficiency).
    Skin Care: No Cleanser, ZZ cream mixed with Niacinamide gel 4% and LMW HA.

    Treating for gut dysbiosis under specialist care. (This is helping).
    Previous GAPS diet. Testing tolerance of resistant starch.
    Fermented Foods. 2 to 3 days per week, Intermittent fasting -16-18 hours.

  7. #17
    Senior Member Mistica's Avatar
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    Rachel, I don't suppose you have had any contact with other people doing the trial?
    I wonder what their experiences are so far?

    Also, I wonder if things are still sailing along nicely for you?
    Previous Numerous IPL.
    Supplements: Niacinamide, Vit K2, low D3, Moderate Dose Vit C, Iodine, Taurine, Magnesium. Very low dose B's. Low dose zinc (to correct deficiency).
    Skin Care: No Cleanser, ZZ cream mixed with Niacinamide gel 4% and LMW HA.

    Treating for gut dysbiosis under specialist care. (This is helping).
    Previous GAPS diet. Testing tolerance of resistant starch.
    Fermented Foods. 2 to 3 days per week, Intermittent fasting -16-18 hours.

  8. #18
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    Hi Mistica, funny that you should post your question today. This morning I went for my 1 month follow up with the Derm and the Registered Nurse conducting the trial. They were thrilled with the results (as am I). I have 1 spot on my chin which has been there for 2 days and is diminishing fast. I am not experiencing any other Rosacea symptoms at all. Not even prolonged flushing. I blush, but it is gone as soon as it comes.
    I asked about other peoples experiences, they have about 10 on the trial at the Coast and all but one have had results similar to mine.
    The Derm mentioned that up to this point it has been very hard to treat Papular Pustule Rosacea so is very pleased with these results. I haven't taken any Doxy, Propanolol or used any Rosex now for 3 weeks. The only think I'm taking is mutivitamins, flaxseed, fishoils, grapeseed and probiotics.
    Supose it is hard to know intil more studies are done what comes first. Do the mites in the case of papular Rosacea cause or mimic the rosacea or do they just make the symptoms of Rosacea worse. I think this is a Brady Burrows area. Actually I'm curious is Brady a Doctor? or someone that has taken a keen interest through self experience of Rosacea?
    They talked about taking me off it now that I have such clear skin to see what happens next but thankful they decided on 6 more weeks. That takes me through to after Xmas, it will be nice to have clear skin (hopefully if the bubble doesn't burst). I might even treat myself to a glass of bubbly - I haven't had anything to drink for months.
    Looks like for some of the lucky ones there is a topical treatment that works for Rosacea.

  9. #19
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    Rachel, any updates on your treatment? I think a lot of people are interested in your results considering mites seem to be a popular theory around here.

  10. #20
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    Sorry Brighteyes my face is looking sooooo good that I haven't been on here for a while.

    10 weeks I have been on the trial now and my face continues to be fantastic. I get the very occasional bump but it is gone within a few days. The bumps aren't red, itchy or scaly either. I have no flushing, burning or stinging. We are in the height of summer here with 32 degree days and I look just like anyone else. I have been spending a lot of time with the kids in the pool as well (the sun was my worst enemy).

    I really could not be happier. I am very thankful for the day I spent on Google looking for a "Cure" and came up with this trial.

    The trial seems to be working for everyone that is involved. The Derm and his Nurse can not believe the results.

    The real test will be when I go off the cream. I really wanted to be on it over Christmas so for the first time in a long time I wouldn't have to dread Christmas parties or run away from the camera. They plan to have me off it in January and see how it goes, they want to treat my husband for the mites so he potentially doesn't give them straight back to me if he has them. They seem to be working on the theory that a lot of people have these mites but some are allergic to them and when they react they develop Rosacea symptoms and P & P's.

    I would have to say I have had no symptoms of Rosacea since 1 week after starting the trial. I am taking nothing else, not even vitamins. I have even been indulging in chocolate and the occasional glass of wine. The only things I do is continue to wash with Cetaphil and use Invisable Zinc during the day. I don't even have to use another miosturiser.

    These results were almost immediate and with no obvious side effects (I have had some blood tests for the trial, so I hope not) so I feel that there is a lot of hope out there especially for those who experience the P & P's associated with Rosacea. Hopefully we don't have to wait too long before it becomes available to the general public.

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