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Thread: Treatment Reports from Rosacea Treatment Institute of Texas

  1. #61
    Moderator phlika29's Avatar
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    Hi justsomegal

    I am sorry to hear that you are struggling since your treatment at the centre. It does appear that having condensed treatments can really do more harm than good.

    If you are hoping to stop others from making the same mistake as you then it might be worthwhile putting a review of the centre on this website. I for one have spent time reading the various reviews of treatments and centres and I'm sure others do aswell.

    IMHO having the condensed treatments is too much for most rosaceans. The majority of us having laser/IPL would probably have maybe up to six treatments a year, with a couple of months in between for the skin to recover and settle. Having 7-8 so quickly does not allow for this recovery.

    As to what to do next I would suggest that it would be worth while going back to your doctor or preferably a dermatologist. I think it is important to find out just what is currently happening with your rosacea/skin. It could be the treatment has caused a seb derm flare and it is this that is causing the increase in your symptoms. In addition the derm may be able to provide you with some medication that will reduce the flushing.

    If you havenít already I would recommend that you have a look at this link as it nicely rounds up the type of treatment that is worth trying.

    Best wishes

    Sarah

  2. #62
    Senior Member Peter's Avatar
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    Hello Justin

    I am very sorry to hear that your problems resulting from the after effects of Nase / Nielsonís RTIT treatments are still causing you concerns. If you are seeing a competent dermatologist then I would follow their advice and if I was you I would keep well away from any form of laser treatment for the time being. Some antibiotics are renowned for have an anti-inflammatory effect on rosacea, so it could be that your dermatologist feels that Oracea can help calm your skin down. There is no quick fix with this and as you have only just started taking it, you will need to give the treatment several months to see if there is any improvement. If that one doesnít work then there are other drugs you can try e.g. Clonidine which can help calm things down.

    My worries are that the serious adverse reports back from yourself and JustSomeGal are just the tip of the iceberg reflecting people being badly damaged by Naseís treatment advice and the people actually performing them. Unfortunately as has been proved many people are not aware of the Forum before contacting Nase and therefore will be completely oblivious to this manís history.

    The authorities are aware of Naseís and the RTITís activities but people need to understand that unless they are prepared to file an official complaint, then Nase will continue his evil work, possibly via other clinics or even attempting to perform the laser surgery himself. This could easily happen and go on for a long time so if he is not reported then goodness knows how many patients will suffer needlessly. Nase still believes he is a real expert on rosacea and that he is untouchable when his advice goes wrong and people are damaged. That unfortunately is the same as all the famous quacks in history and then people look back years later and think ďhow the hell were they allowed to get away with it for so longĒ.

    Nase has got where he is not just because he is a fraud but also because many people were aware of this fact but chose to turn a blind eye and ignore it. He is not just a conman - he is also a serious danger to the health and safety of the public and he just wonít go away of his own accord. What else can I say to make people believe me?

    Here is that on-line complaint form again:

    http://atgindsha01.atg.in.gov/cpd/co...complaint.html


    Thanks

    Peter

  3. #63
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    Quote Originally Posted by Peter View Post
    Hello Justin



    [FONT=Comic Sans MS]Nase has got where he is not just because he is a fraud but also because many people were aware of this fact but chose to turn a blind eye and ignore it.
    Peter
    Aint that the truth...I got banned from this forum two times for arguing with Nase and trying to show people his history by referring to the debunking-nase site...uhumm guess it just takes longer for certain people to see things clearly!!!

  4. #64
    Senior Member Peter's Avatar
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    Hello Sweden

    Well we certainly can't change the past but we can sure influence the future. You are a medical man yourself and you know how dangerous it is to have a quack out there who is capable of tricking people into thinking he is qualified or an expert in his field. Nase isn't really a doctor anyway in the medical sense is he.

    If you wasn't already aware there was a debunking site update two days ago headed:

    www.debunkingnase.org/index.php?title=Yet_Another_Collaboration_Fails:_N ase_Bites_Texas_Dust

    Must admit I hadn't realised he was still claiming on his site as they point out:

    ďHe performs biomedical and clinical research at a major Medical University in the United States. He is funded by the American Heart Association and National Institutes of Health to study blood vessel pathology in human disease.Ē

    "Prospective clients reading his site have no idea that Nase has been gone from Indiana University for nearly four years, or that they are making major health decisions based on completely false information."

    At the end of the day it just depends how much this all this bothers you? The horror stories like JustSomeGal's and Justin's really bother me because unless this man is stopped there will be others who will fall into the same trap as they unfortunately did and have their rosacea made much worse by following his advice. Despite apparently being kicked out from the RTIT he will now be looking for somewhere else or someone to latch onto in another an attempt to earn more money by FRAUD.

    I have already lodged my complaints about him so if you feel the same way, there is nothing to stop you doing the same. As well as this one again:

    http://atgindsha01.atg.in.gov/cpd/co...complaint.html

    There is also another link to an organisation (National Consumers League's Fraud Center) who also have a online form where you can report suspected Internet Fraud. As they say on their home page - HELP US FIGHT CON ARTISTS BY REPORTING SUSPICIOUS ACTIVITY ON OUR ON OUR ONLINE COMPLAINT FORM.

    http://www.fraud.org/

    Are you prepared to help them and stop others getting conned?

    Thanks

    Peter

  5. #65
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    Default Erika, treating with Botox, laser

    Hi Erika:
    I don't post much, catching up tonight. I now have Botox injections in my facial skin flush zone and ears every 3 months with Dr Soldo (3 or 4 times now). It has helped quite a bit with the flushing. Although if I am having an allergic reaction to something, I will still get blushy on my cheeks, but it's a different problem in that case. The Lumenis One IPL is very effective because of how it is engineered at targeting blood vessels at all levels of the skin (the way it pulses makes it suitable for careful use on even darker skintones, which cannot be said for other types of machines). It is not brand new, but it works the best in Soldo's opinion and he's tried virtually everything. I've had LaserGenesis, V Beam, IPL by several other mfr's, Smoothbeam and the Lumenis One IPL. It is the one machine that has really helped me (14 sessions now). Except for treating discrete blood vessels, I no longer think V Beam is a very good choice for rosacea. I sometimes need to take Clonidine, but it's rare, and most of the time now you would never know I have rosacea and I was truly a mess after one disastrous IPL with radiofrequency treatment (ELOS) when I went to see Dr. Soldo at first. I would be careful with the "institute" in Texas. Nase is not a doctor and does not see "patients." He lives in Indianapolis as far as I know and does not actually work at the clinic. I believe the doctor at the clinic specializes mostly in ETS surgery, although now is obviously doing laser work. I have used sea cucumber for about a year now and I don't use Angiostop. It's a marine animal sea cucumber, with known anti-inflammatory properties, and it works wonders for my inflammatory tendon conditions which are chronic, but has done nothing for my skin. I know the CEO of the company which has done a lot of the research into medical uses for sea cucumber, and he and I have corresponded for about a year now about any progress with my rosacea from sea cucumber. It really does not seem to affect my skin, although I take it every day for other reasons. SeaCuMax is the brand name, it costs $27 for 180 capsules, and it contains proprietary fractions of the animal which contribute to its inflammatory activity (other brands are simply dehydrated sea cucumber and from a different species from a different part of the world). HTH

    ;o) Bridget
    Quote Originally Posted by erikahoff View Post
    Hello,

    Wow, there does not seem to be much hope for successful treatment at the Institute! I do realize how difficult rosacea is to treat, and that every person will respond differently. Not everone will have positive results, but I am excited about what the Institute has to offer. Rosacea truly is a vascular disease, and I believe that the Institute understands this. I will be heading there next month, and will be conservative in my treatments. I am a bit concerned about the brown spots created when the feeder veins are destroyed. During my consult I was told these spots, which you can see on the Institute's website, fade quickly, but I would hate to have to return to work with them.

    According to the Institute, they use a new Genesis laser, combined with other techniques, which are able to treat all 4 layers. According to their website, they are currently the only providers able to treat all layers. I am hoping that my previous treatments were too superficial to destroy the deep "feeder veins", and will have more success with this new system. I am also very interested in the use of Botox to help treat flushing rosacea. Has anyone here sought this treatment?

    Thanks for all of the wonderful support! I hope everyone has a happy Monday!

  6. #66
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    Hi Bridget,

    Wow! Thanks so much for all of the info! I am super excited to read Dr. Soldo's Q and A, and will most likely see him later this summer. It's wonderful to hear from someone who has had positive results with Botox. I am an RN and have seen it used many times for a multitude of different conditions, but never rosacea. Flushing is my main concern, and I have not had any success w/ Genesis treatments or oral meds. I don't know any derms in my area who use Botox for rosacea and am very pleased to hear that Dr. soldo does.

    Thanks again,
    Erika

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    Default Talking to RTIT again

    I have contacted the RTIT to voice my concerns about the complications that I am having. They responded very quickly and have asked that I send them some photos and then I will be able to talk to Dr. Neilson and so that we can get to the bottom of this. I need to know what is going on with my face and hopefully going back to the source of the problem I can get some sort of resolution. Just some gal if you are out there please get back to me because I would really like to point out that I am not the only one who has had severe complications from this condensed treatment, without being informed of all the risks associated with it. I want to keep you posted on what they are going to advise and maybe it will help the both of us.

  8. #68
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    Default Malpractice Reports in Texas

    I looked at the Texas Medical Board's website and they're tough on misleading medical claims made by, or on behalf of,registered physicians and their clinics.

    http://www.tmb.state.tx.us/

    When it comes to disciplinary actions, look at these phrases:

    - Violation of the standard of care which resulted in significant harm to patients

    - Failure to examine whether treatment followed was effective and if there were any alternatives to that treatment

    - Failure to adequately supervise those working under his direction

    - False or misleading statements in advertisements

    - Advertising in a manner that would tend to mislead the public

    - Advertising oneself as a "specialist" in areas that the American Board of Medical Specialties does not recognize any certifications or specializations. (That sure applies to "Rosacea Specialist"!)

    --------------------------------

    ANYONE may register a complaint against a practitioner licensed by the Board.

    If you wish to complain to the Board, please do so in writing. Provide full name and practice address of practitioner. Also, provide dates and details of any incident, being as specific as possible. The Board will
    acknowledge receipt of your complaint. If your complaint is within the Board's jurisdiction, it will be assigned for proper study. Complainants are advised of an investigation status approximately every 90 days until final action is taken.

    A complaint form may be requested by calling the Complaint Hotline at 1-800-201-9353, by printing the web version, the PDF version, the MS Word version or by submitting the form electronically via e-mail. Although it is not necessary to use our form to make a written complaint, we encourage you to.

    Mail - Send your complaint in writing to:

    Texas Medical Board
    Investigations Department, MC-263
    P.O. Box 2018
    Austin, TX 78768-2018

  9. #69
    Senior Member Peter's Avatar
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    Quote Originally Posted by jpappliance View Post
    I have contacted the RTIT to voice my concerns about the complications that I am having. They responded very quickly and have asked that I send them some photos and then I will be able to talk to Dr. Neilson and so that we can get to the bottom of this. I need to know what is going on with my face and hopefully going back to the source of the problem I can get some sort of resolution. Just some gal if you are out there please get back to me because I would really like to point out that I am not the only one who has had severe complications from this condensed treatment, without being informed of all the risks associated with it. I want to keep you posted on what they are going to advise and maybe it will help the both of us.
    Hello Justin

    Well I really hope that you do manage to get everything back under control. Obviously you have to do what you feel is best but I think you should remember Nielson is not a laser rosacea expert or specialist, or whatever else he calls himself these days. From what we understand Nase probably convinced him there was some easy money to be made using lasers to treat rosacea and Nase conveniently set himself up as his rosacea consultant working from home. Again remember Nase also called himself a rosacea expert / specialist but again no such title exists and was invented just to hype his image up together with all the other lies that he told about the RTIT.

    Ask yourself why Nielson suddenly dumped Nase at short notice and then sent out communications to his patients stating that Nase was no longer associated with his clinic. Monte received one of these e mails and wrote about it on here:

    http://www.rosaceagroup.org/The_Rosa...son#post184926

    I am not sure what your opinion of the RTIT was when you went there but reading JustSomeGalís posts they did not come across as very professional and thatís being polite. I appreciate you are probably very different to me but in your shoes I would have lodged a complaint against the RTIT and demanded a full refund of the money I had spent with them. I know money isnít everything but at least it would enable me to pay for the services of a dermatologist or genuine laser expert experienced in treating people with rosacea who have had problems resulting from laser use. For some with rosacea then lasers can work incredibly well but for others, especially when they are given these condensed protocol treatments that Nase and the RTIT promoted, then it can be enough to tip them over the edge and worsen their condition as appears to have happened with you.

    Good luck, be careful and keep us updated with your progress.

    Peter

  10. #70
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    I have been away for 5 weeks, and have just seen these posts, I would like to add my vote of sympathy with JustSomeGal, we always knew there would be a post like this some day, but it is still shocking when it comes!!
    I hope you have some improvement, and I am happy that I have IPL and laser with a caring and very effective Dr. who charges treatment by treatment, and a reasonable amount, and does the treatment himself, he would refuse to do a condensed protocol as he wants to see the results fully before treating again, and it works!!
    Non of us liked the Institutes charges and method of doing business, but we could have lived with its existence if patients were treated properly and the results were acceptable, now we know this thing must cease to exist as soon as possible!!

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