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  1. Thread: Lotemax advice

    by alyfpet
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    Lotemax advice

    Hi. I am looking for feedback from anyone who has used Lotemax to treat ocular rosacea flare ups. Since I began on my rosacea journey, about 12 years ago, I have heard that steroids are very bad for...
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    never recovered

    Hi. I had a negative effect after 3 days of Mirvaso once daily and have never recovered fully. My skin is more red at baseline, more burny and itchy in general (the burns now travel down my chin to...
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    No better after 6 weeks

    I thought I was getting a bit better, but that was during a weekend where I did nothing but rest and try to keep my face cool. Back to regular life, and this is a nightmare. My face and neck is hot...
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    Thanks Birdie. I am taking Oracea. I have bad...

    Thanks Birdie. I am taking Oracea. I have bad side effects with antibiotics when I take a higher dose.

    So far I'm having a better day, thank goodness, but my face is still quite red and hot. Just...
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    5 weeks and 2 days. I tend to think that my...

    5 weeks and 2 days. I tend to think that my rebound has resolved and that this situation indicates a permanent worsening of the rosacea. I must have had a strong enough and long enough rebound to...
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    I had a really bad day today. This afternoon, my...

    I had a really bad day today. This afternoon, my face started flushing horribly and lasted into the evening. It was more red than it has ever been. And stinging and burning like never before. I just...
  7. After posting my last post, I realized that you...

    After posting my last post, I realized that you are in Germany, so visiting a NY doctor is not possible. I really think that talking to your doctor about low-dose doxycycline could help. Until you...
  8. Hi M. We sound very similar in our conditions. I...

    Hi M. We sound very similar in our conditions. I also have permanent redness with flushing, accompanied by ocular rosacea. When I flush, my eyes flush, ie, get red and more bloodshot. I have a few...
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    Hi. I posted this elsewhere but will add here so...

    Hi. I posted this elsewhere but will add here so it can help someone looking for this thread:

    I had rebound flushing from Mirvaso, which left me much worse off. The worst of it lasted around 9...
  10. I really loved that. Thanks.

    I really loved that. Thanks.
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    Yes, I am taking Claritin daily. I just started...

    Yes, I am taking Claritin daily. I just started Friday (3 days ago). Hopefully that is helping. I've tried antihistamines for my rosacea in general in the past, but have never really felt it helped,...
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    fda report and update

    I filed with the FDA on their MedWatch website at: https://www.accessdata.fda.gov/scripts/medwatch/

    I received an e-mail confirming their receipt of my report: "Thank you for submitting your...
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    Thanks Birdie and Starlite for your good wishes....

    Thanks Birdie and Starlite for your good wishes. Hopefully my next post will be some good news.

    I agree that the deep breathing instructions would be helpful. I must admit, though, I'm finding it...
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    update

    I figured I would follow through on my previous posts with an update. I won't go into how I have progressed over the past month, since I've already posted about that, but just say where I am now.
    ...
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    I posted on that 54-page thread, because of a...

    I posted on that 54-page thread, because of a seriously bad response to the drug, which has not resolved after a month---confirmed by my dermatologist and reported to the FDA. Your comment is pretty...
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    Yay! I'm so happy for you! That is wonderful...

    Yay! I'm so happy for you! That is wonderful news. I will be wishing you all the good thoughts that I can for a stress-free pregnancy! I truly think you will be just fine with your rosacea, maybe a...
  17. That's how I got here

    I was going to a very reputable cosmetic dermatologist office in Hartsdale, NY, for laser hair removal (Skin Centre). The hair removal was going well. I was also beginning to have symptoms of...
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    Will report, absolutely

    I will absolutely be reporting this to the FDA. I am waiting to see my dermatologist a week from today to see whether it would be more appropriate (or hold more weight) for him to report it. There is...
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    permanent damage

    Isn't the fact that people are using it and posting their results giving it a chance? What benefit would anyone have to have good results and then post bad results? I don't understand the logic. We...
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    Hi, Gizzy. First, let me say that I am sorry...

    Hi, Gizzy.

    First, let me say that I am sorry to hear about your miscarriage. That must have been an awful experience, and just heartbreaking. I wish you much luck in your efforts to get pregnant...
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    I'm sorry too. I should have read through your...

    I'm sorry too. I should have read through your posts and realized your "lol" was not making fun but rather an effort to bring some levity to a bad situation. I actually admire your ability to have...
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    Not sure what the "lol" is about. I can tell you...

    Not sure what the "lol" is about. I can tell you without a doubt that my 3 days of Mirvaso use progressed my condition. I am 3 weeks since last use and my rebound is through, but my condition is...
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    12 days off and worse off

    Thanks Nat007 for your thoughtful response to the poster who suggest that negative reactions may be in our heads. Honestly, I rarely visit the forum and haven't posted for years, because I want to...
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    regretting my mirvosa trial big time

    I'm 9 days since my last Mirvosa application, and I am still feeling the bad effects from use. I used a very small amount for three days, on my nose mostly, spreading it out to my cheeks, but the...
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    worsened condition

    So, my 3-day Mirvaso use has left me worse off than before I started. It has been a week, and now that my face has settled, it is clear that my baseline condition has been kicked up a notch.

    This...
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