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CBD topical decreased my flushing threshold dramatically (bad). Oral CBD i think did the same, but at least it didn't burn my sensitive skin. Lots of CBD topicals come with other stuff like menthol,...

That's great. I hope it continues to work for you . And even better at the higher dose.

I got a blister from laser years ago and it is otherwise a very sensitive spot on my face. I feel like the...

brain zaps happen with any SNRI or SSRI as you taper off (can happen). Not a side effect as you go up or are on them. FOr me only an issue a month while I was down to 0 mg. It's like when you read...

How are you doing with the ketotifen Boris?

My doc just called in an rx to a compounding pharm nearby.

Thanks.

I like it. It helps me so much and I'll happily be on it for life. Just start slow. I've weaned off a couple times and it went ok as long as it was a slow taper - especially when you get near 0. I...

I agree it is best to talk to a doc about accutane for rhynophyma. I THINK: It can reverse some of it if not too severe and possibly limit progression. I asked my doc about limiting progression of my...

Not to hijack this thread when I'm not the OP -

quick update -

I cannot tolerate any accutane without other anti-inflammatories like flagyl in the background. I've been on/off flagyl enough...

That's interesting. I definitely dont have mites as my issue, as i did ivermectin (oral) course. Glad i did it tho as it is low hanging fruit.
I actually was specifically not rx'ed Minocycline since...

I'm so sorry. I wish the impact of rosacea, flushing, and similar were more well known by doctors

CTD = connective tissue disease, like lupus or dermatomyositis. There are others. Best to see a...

So sorry for your mother <3 Sending thoughts for peace and comfort your way.

I am glad it helped you so far. keep up the updates ... but take care of yourself first xx

I'm on the fence about...

Well, i would think you'd have to fly out every month :p I think you could find a local doc if you look enough. Youve tried large teaching hospitals? My impression is maintenance doses are not...

Thanks for understanding! I'm sorry about you being housebound. Similar boat for me. Very very debilitating over here.

Also, we are smart cookies lol who know our condition - wish docs would...

Ugh just read something from my local doc - she thinks 5 mg / day of accutane won't do anything - that I need 40 mg / day for my weight of 45 kg (huh?). It's frustrating how I'm not listened to out...

Thanks for explaining all that. Sorry you've been dealing with skin issues for so long. I'm glad accutane helped you for as long as it did.

My docs in CA have realized I'm a very difficult case...

I just cut 10 mg capsules with scissors, save the other half in the fridge or throw it away. Hopefully that doesn' alter the efficacy of anything. Getting them out of the over-the-top packaging is...

My derm also rx'es accutane for lupus - starts at 10 mg / wk or so for that and goes up. Just an fyi! Glad you are finding it ok so far! I still have to find my dose, or combination with antibiotic /...

I did a small trial of accutane in Dec and am currently 3 wks into my "real"? trial.

First trial: a few weeks of 500 mg BID of flagyl and then started accutane (a few days of 5 mg / day, a few at...

Yikes!!

At my worst i felt like i had a lymph? inflammation bubble? lodged INSIDE my nose bridge (you couldn't see it), like i just drank water and laughed, sort of. It was uncomfortable and i was worried it...

I agree with edema / lymph building up. At the worst for me it was like hardened wax getting wedged between sides of nose / eyes. It's not getting worse for me anymore but it is still there and a...

How did you get it? Are you in US? That's great so far.

Sort of, maybe. I had intense pressure / pain on the bridge of my nose - almost like the bones were changing the force was so much. This was decided by doctors to be unrelated to rosacea / rosacea...

That's too bad about the ketotifen. Unfortunately it seems like anything even presumably helpful things can be unhelpful for some of us. ketotifen seems to be used in solid edema sometimes when...

I take high dose probiotic 50-100 billion CFU.
If you have gut issues like diarrhea I would get a stool test which can measure yeast and other things

I'm in an erythromelalgia group and occasionally someone notices an ear flare that is temporary but most do good/have no symptoms with the vaccine. That said, that's not the same as neurogenic...