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    Just a quick update. I've been taking...

    Just a quick update.

    I've been taking accutane for a few months now. I'm still taking 5mg twice a week. It's working great for my skin texture, the swelling on my cheekbones and the general...
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    Thanks, that's really interesting that it's...

    Thanks, that's really interesting that it's helping normalise parts of your skin.

    Unfortunately some of the flushing has crept back for me, I knew it was too good to be true! But it is not as bad...
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    Don't be scared about the horror stories. I think...

    Don't be scared about the horror stories. I think if you look up any drug online you'll find negative reviews. People just don't post positive experiences as much.

    I think you have to weigh up...
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    Hey seb91, that's a good idea to see another...

    Hey seb91, that's a good idea to see another dermatologist. I've seen so many I've lost count but it always helps to get another opinion on board.

    I can't tolerate the azelaic acid on my cheeks....
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    Yeah mine's always so much worse in Winter. I...

    Yeah mine's always so much worse in Winter.

    I didn't think I could tolerate azelaic acid either but it really helps my nose. I tried the one from The Ordinary but found that one didn't work so...
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    I get similar redness on my nose. It comes and...

    I get similar redness on my nose. It comes and goes according to the season. So worse in winter and way better in summer.

    The redness hasn't been permanent for me so far luckily. I use finacea...
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    I'm sorry it didn't work out for you without the...

    I'm sorry it didn't work out for you without the anti-inflammatories. Perhaps you can revisit it once you're stable on flagyl. Interesting that it works synergistically and you can almost by-pass the...
  8. Totally fine to store it in the fridge. That's...

    Totally fine to store it in the fridge. That's where I store mine.

    As long as you're taking a dosage lower than what your docs have prescribed you could always experiment at first on a lower dose,...
  9. That's so frustrating! Doctors can be a real...

    That's so frustrating! Doctors can be a real pain. Some of them get stuck in this mindset when administering medications and can't budge. 40mg a day is more a dose for acne. I'm about 45kg too and...
  10. I've been cutting up the capsules with a knife...

    I've been cutting up the capsules with a knife and then putting the cut halves in a clear empty gel cap. I store it in the fridge so when it's cut the gel inside is more like a jelly than runny, if...
  11. Thanks laser cat. I know what you mean. Docs...

    Thanks laser cat. I know what you mean. Docs really seem to ignore the flushing side effect with Accutane.

    I've been on and off Accutane for a long time. I had very severe acne when I was a...
  12. Just wanted to join in and agree with laser cat....

    Just wanted to join in and agree with laser cat. Definitely go slow and titrate up.

    Some background info. I suffer from severe flushing which has been diagnosed as erythromelalgia but I consider...
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    Thanks for this! Hydroxychloroquine really helps...

    Thanks for this! Hydroxychloroquine really helps me the most. However I've found it's just not strong enough which is why I'm still looking for other options.

    You're right about clonidine- it...
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    That's amazing! I'm so pleased you're getting...

    That's amazing! I'm so pleased you're getting some relief. I've had some good days as well where my skin just feels like it used to be. And there's no tension or tightness in my cheeks and nose. Such...
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    I know it's all so annoying. The standing vs...

    I know it's all so annoying. The standing vs sitting is a really big thing for me, I wish there was a way of working out what is causing it. None of the docs I've seen mentioned much about it. It's...
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    This happens to me too. At my worst I can't sit...

    This happens to me too. At my worst I can't sit down for an extended period of time in the evening without flushing. Lying down is the worst, I have to sleep on a wedge pillow which helps.

    Once I...
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