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  1. Replies
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    I noticed anxiety + depression for me with LDN....

    I noticed anxiety + depression for me with LDN. It actually made my face worse (low dose, higher dose). There is a really active LDN facebook group that's into dosing optimally.
    In general (not...
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    I am so glad it's helping you. great news.

    I am so glad it's helping you. great news.
  3. I recommend Tim Berger at UCSF derm. He is...

    I recommend Tim Berger at UCSF derm. He is referral only. He has the most experience with neurogenic rosacea that I've found in US, and also with related conditions like neuropathic itch and feet...
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    I have not tried periactin - one derm brought it...

    I have not tried periactin - one derm brought it up but we put a pin in it for some reason. I'll bring it up next time. I don't hear of it much in EM communities but every now and then I hear it...
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    Just want to update this - Saw my derm who said...

    Just want to update this - Saw my derm who said accutane probably could not help with neurally-mediated processes. It is great for swelling on the face if it presents by itself, but it likely won't...
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    Thanks, and thanks for the dosage references...

    Thanks, and thanks for the dosage references (will see my derm soon). It's interesting that plaquenil (anti-inflammatory - but don't know precise MOA) can correct this ... at least partially.
    ...
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    Yikes, I was contemplating low dose accutane (eg...

    Yikes, I was contemplating low dose accutane (eg 10 mg / wk for flushing/burning) and although I knew it would be a wild card, I haven't heard of anyone getting symptoms after low dose before. I'm...
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    I hope it is of some benefit for you - even just...

    I hope it is of some benefit for you - even just the depression part.

    yeah, i don't really like the mirtaz. either, but in my experience things get unpredictable if I try to taper (antidepressants...
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    one idea is low dose accutane. You mention...

    one idea is

    low dose accutane. You mention you had bumps (?) and sometimes low dose helps flushing/burning - though I've only found testimonials from people who have bumps
    ...
  10. Replies
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    2 different reds, yellow, infra .. it's all bad...

    2 different reds, yellow, infra .. it's all bad for me unfortunately. Increases burning big time
  11. Replies
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    I actually think the OP is authentic although she...

    I actually think the OP is authentic although she isn't around anymore. Although it's good to take anything with a grain of salt - post content, pics, even papers.

    I have some pics of my own...
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    Since this seemed to happen after you got off...

    Since this seemed to happen after you got off mirtaz., I would consider adding another antidepressant to help reinforce whatever pathway your face liked and was taken away. I like the SNRI's better...
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    I take 80 mg cymbalta right now. 80 mg wasn't any...

    I take 80 mg cymbalta right now. 80 mg wasn't any better than 60 mg though. For neuropathic pain I'm told cymbalta / SNRI's are similar to amitriptyline, except they have less side effects. Though...
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    Chai - one time when i tapered off cymbalta, I...

    Chai - one time when i tapered off cymbalta, I did not notice any worsening until about 1 month later.

    I'm guessing possibly downstream effects from the cymbalta might have taken some time to...
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    Not social anxiety but general depression. I have...

    Not social anxiety but general depression. I have a severe case of rosacea. I take antidepressants which help mental health for me a lot. I've also tried ketamine which for was the best out of...
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    How is the taper going? Mirtazapine for me...

    How is the taper going?

    Mirtazapine for me offers some vasoconstriction (mild) proportional to dose. It is subtle but if I forget a pill at night (I take 22.5 mg) then I will have rebound...
  17. Are you on pills? I did a very slow taper where I...

    Are you on pills? I did a very slow taper where I was shaving off a little bit each decrement. Took maybe 2 months? I rebounded a little with some decrements and didn't move down until i was sure the...
  18. I might have had a similar experience with...

    I might have had a similar experience with clonidine.. I did get rebound coming off of it, but I'm better off without it in regards to my flushing.

    I think sometimes people can't handle...
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    [quote=Ange4;350719] Hi Angela - Sorry about...

    Hi Angela - Sorry about that!

    The PEA helps me with baseline burning only like 10%. Certainly within 2 wks.

    I did 3 SG blocks, and none of them were helpful beyond maybe 8 hrs (and they only do...
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    I hope it goes well with the gabapentin, + that's...

    I hope it goes well with the gabapentin, + that's great you were able to find a good dose again with the LDN.

    Everyone is a little different I think but for me + I think others, we've learned...
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    That's great - I'm glad the LDN and amit. and...

    That's great - I'm glad the LDN and amit. and clonidine are helping you.

    FWIW I was on plaquenil for 1-2 yrs and had no side effects (if anything, it helped with occasional joint pain and...
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    I flare (a pulsing style flushing, swelling,...

    I flare (a pulsing style flushing, swelling, burning) or if I'm already flaring have increased flaring. I think my sensory nerves are overly activated (heat, "time of day" flaring) as well as...
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    Hey Angela, I'm not taking THC currently (when...

    Hey Angela,

    I'm not taking THC currently (when I did, it actually wasn't synthetic .. but I don't think that matters.) I am not taking it because of cognitive side effects.

    When I took it, I do...
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    That's great you find gabapentin helpful. I might...

    That's great you find gabapentin helpful. I might retry it. I have tried it in the past and it caused increased blood pooling for me. But possibly I could handle it better now. Even though I didn't...
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    I'm so sorry you are struggling, Angela. I don't...

    I'm so sorry you are struggling, Angela. I don't think the PEA supp will make or break anything for you unfortunately if the CBD did not help at all. They are comparable in mechanism. The PEA helps...
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