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  1. How much of a mega-dose did you take?

    How much of a mega-dose did you take?
  2. No I have not. I went to another derm last week...

    No I have not. I went to another derm last week who would not prescribe me low dose accutane. Tried to convince me that the edema is just the fat in my face migrating south with age. Derms are a...
  3. Wow, that doctor sounds amazing. I tried...

    Wow, that doctor sounds amazing.
    I tried protopic for my swelling. I kept it in the fridge so it didn?t burn on application but my skin was so sore the next day. It felt like I had irritated my...
  4. Thread: Pain in face

    by Momof
    Replies
    5
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    386

    30 mg daily. Any regular medical practitioner can...

    30 mg daily. Any regular medical practitioner can prescribe it. It?s used for nerve pain in general.
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    Sticky: Just contributed. Thank you. Btw I have the same...

    Just contributed. Thank you.
    Btw I have the same issue with apostrophes.
  6. Thread: Pain in face

    by Momof
    Replies
    5
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    386

    Duloxetine has worked great for me

    Duloxetine has worked great for me
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    Sticky: I will be happy to contribute via paypal

    I will be happy to contribute via paypal
  8. Thread: Nose pain?

    by Momof
    Replies
    51
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    6,709

    Than you so much for all that info. I think I...

    Than you so much for all that info. I think I need to start very low and very slowly. Flushing was a problem for me but it?s ok now...I have taken Clonidine in the past but Duloxetine 30mg keeps the...
  9. Thread: Nose pain?

    by Momof
    Replies
    51
    Views
    6,709

    No I haven?t. That?s next on my list. Did you...

    No I haven?t. That?s next on my list. Did you start on a different dose or has it always been 5mg 3 times a week? How long did it take for the edema to go? Is it completely gone? Does accutane...
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    Not sure if you were doing it today? Best of luck...

    Not sure if you were doing it today? Best of luck with it.
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    974

    Hi Sineadrosy, Where are you getting the micro...

    Hi Sineadrosy,
    Where are you getting the micro botox done? I would like to try it too
  12. Thread: Nose pain?

    by Momof
    Replies
    51
    Views
    6,709

    You?re taking 120 mg? Do you get side effects...

    You?re taking 120 mg? Do you get side effects with that? I take 30mg. It seems to work as well as higher doses for me.
    I have tried doxycycline 40mg on several occasions but I get really bad...
  13. Thread: Nose pain?

    by Momof
    Replies
    51
    Views
    6,709

    The duloxetine seems to be stopping any new edema...

    The duloxetine seems to be stopping any new edema from forming ( my edema is from neurological inflammation) but I still have residual edema that I can?t clear. It is like my lymph system has become...
  14. Thread: Nose pain?

    by Momof
    Replies
    51
    Views
    6,709

    I can relate to the pressure either side of the...

    I can relate to the pressure either side of the nose too, that dripping water feeling, as well as my residual edema and tingling. I have them all going on.
    Duloxetine helps me the best with the...
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    Hi Sineadrosy, Thank you for the welcome!...

    Hi Sineadrosy,
    Thank you for the welcome! Duloxetine works far better for me than amitriptyline. I?m going back to Duloxetine tomorrow. My face has been sore since I switched to amitriptyline. I?ll...
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    Don?t be afraid. It works great. I took 30 mg...

    Don?t be afraid. It works great. I took 30 mg daily for over a year. I decided to come off recently as I felt my tummy was getting a bit sore so I decided to take a break from it ( switched back to...
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    Would ZZ do anything for my neurogenic rosacea? I...

    Would ZZ do anything for my neurogenic rosacea? I have zero spots, just nerve pain and oedema.
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    You?re so good Judy! I?ll contact them tomorrow....

    You?re so good Judy! I?ll contact them tomorrow. Thank you so much.
    Molly
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    I?m in Ireland and the pharmacy that supplies my...

    I?m in Ireland and the pharmacy that supplies my LDN said they could not get it. I phoned several other pharmacies and they all said the same.
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    1,884

    I?m so delighted for you Judy. It shows that...

    I?m so delighted for you Judy. It shows that there is a suitable treatment for everybody out there!
    I could not get the drops unfortunately but I continue to look!
  21. Thread: Nose pain?

    by Momof
    Replies
    51
    Views
    6,709

    Yes I have developed this exact problem in the...

    Yes I have developed this exact problem in the last few months. It?s an intense pain either side of my nose in my sinus area. I am sneezing a lot more than usual and my nose usually needs a good blow...
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    That is amazing. Your benadryl experience ties in...

    That is amazing. Your benadryl experience ties in with what an intelligent GP said to me a few weeks ago-the edema is from an immune system reaction. I am on a trial of Montelukast and if that...
  23. Thread: forehead redness

    by Momof
    Replies
    2
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    540

    I wonder is it an immune reaction?

    I wonder is it an immune reaction?
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    The GPs look at the individual symptoms and treat...

    The GPs look at the individual symptoms and treat those rather than focusing on the diagnosis of rosacea. Dermatologists here only know how to treat type 2 and don?t know how to treat or ignore the...
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    The ?expert? dermatologists in this country know...

    The ?expert? dermatologists in this country know absolutely nothing about neurogenic rosacea. I have visited 4 ?experts?, to no avail. The GP has been far more helpful and intelligent in figuring...
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