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Type: Posts; User: EllyS

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  1. Replies
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    Tom, this post of yours really resonated. Thank...

    Tom, this post of yours really resonated. Thank you.

    I am trying to come to terms with what has happened to my face, after months of hoping for a miracle (OK, I still hope for that miracle more...
  2. Tom, you seem like a veteran on this forum. Can...

    Tom, you seem like a veteran on this forum. Can you ask the administrator to post a 'sticky' warning on this cream? The reason is that there is an understandable and common mistake Mirvaso victims...
  3. Dear TinyDancer, you are dealing with this very...

    Dear TinyDancer, you are dealing with this very courageously. On the one hand you are seeking to hold Galderma to account for the facial injury they have caused us - and doing research to uncover how...
  4. Let's try to stay positive for TinyDancer - and...

    Let's try to stay positive for TinyDancer - and even for ourselves who have been enduring this for longer. She used it very infrequently and spaced out over two weeks, and has no permanent redness. I...
  5. I agree that one of the hardest things is that we...

    I agree that one of the hardest things is that we 'had no idea'. I also was given no warning of possible severe side effects, so when I first got rebound flushing I didn't recognise it for what it...
  6. Dave, I want to find the best way to ensure there...

    Dave, I want to find the best way to ensure there are no more Mirvaso victims: I had visited this site before I used it in March, and the warnings were not prominent enough. Can someone create a...
  7. It would be helpful if the forum administrators...

    It would be helpful if the forum administrators put a warning up about Mirvaso: it has devastated my life, and the lives of many, and it is time to get the word out that it is dangerous.
  8. Replies
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    Thanks a lot Birdie. I will give antihistamines...

    Thanks a lot Birdie. I will give antihistamines another go, though have not had success with them previously. Which one do you use? Yes, the challenge is to get the inflammation down. Presumably, I...
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    Treatment of vasomotor rhinitis?

    I have figured out this is what is causing my nose to drip almost constantly, but particularly during and after eating. My nose also flushes from slightest touch, and most evenings, regardless of...
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    Collecting Mirvaso victims' testimonials

    **** Please can someone make this a sticky thread? ****

    Hi all, I am hoping to collect testimonials from Mirvaso users who have suffered permanent damage after using this gel for sometimes only a...
  11. Replies
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    I think we need to start a new thread for Mirvaso...

    I think we need to start a new thread for Mirvaso victims' testimonials
  12. He wouldn't even do a patch test because he...

    He wouldn't even do a patch test because he feared that could cause irreparable damage. Am devastated he wouldn't try, when I know others with the same sensitivities have had success with laser/IPL,...
  13. Photosensitivity and laser

    Hi all, I was told by a top practitioner that I am too sensitive to heat and light to have laser/IPL. Surely light and heat are triggers for many subtype 1 sufferers who don't have their flushing...
  14. The question for me is which one? There are so...

    The question for me is which one? There are so many on the market!
  15. Replies
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    Thanks for listing all these products. Acure...

    Thanks for listing all these products. Acure looks good, though am wary of the long list of ingredients - however beneficial they may be. You say you didn't have redness if you avoided dietary...
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    Forgot to add that I started taking Lyrica...

    Forgot to add that I started taking Lyrica (pregabalin) once a day yesterday, and this morning I had much less burning and heat when I ate. Face still pink, but can't feel it. It is very early days,...
  17. Replies
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    Helpful - and hopeful, thanks lwemm. In fact, I...

    Helpful - and hopeful, thanks lwemm. In fact, I have a tube of Neosporin and started patch testing it yesterday. I also have Kalme day cream with Zinc Oxide that I have been testing on part of my...
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    No need to apologise! I wish it were a gut flora...

    No need to apologise! I wish it were a gut flora thing.

    It's a curious thing about skin barrier: when I use a mild cream like Cetaphil lotion, my skin doesn't react badly to it, but I feel it is...
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    Hi lwemm, thanks for the suggestions. I really...

    Hi lwemm, thanks for the suggestions. I really wish I had your faith in the role of the gut flora, etc, but after lots of urine and stool and blood tests, and seeing Ayuverdic and Chinese...
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    The smoothies are a good idea - I'll try. My...

    The smoothies are a good idea - I'll try.

    My initial consultation is on 18th, and will just do a patch test (tho feel desperate enough to want to do full IPL). Am hoping/praying my skin will...
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    I'm not sure about when I talk: I don't do much...

    I'm not sure about when I talk: I don't do much of that these days as the disease has so isolated me.

    I haven't tried IPL or laser before.
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    Hi Wendy, thank you for sharing that. It is very...

    Hi Wendy, thank you for sharing that. It is very sad to hear it made things worse for you. I am seeing Dr Crouch, and will do a patch test first. I am just at my wits end - I have tried everything:...
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    Hi hg24, thanks so much for getting back to me. ...

    Hi hg24, thanks so much for getting back to me.

    I am pretty certain that this is not a gastric issue: it happens immediately upon eating, and with all foods. I have a bad burning flush in the...
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    Oh, and would IPL help with this kind of...

    Oh, and would IPL help with this kind of flushing? (I have first IPL consultation next week)
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    Flushing when eating... anything

    It has got to the stage that I cannot eat anything without having a massive facial flush. I also frequently get a runny nose. I do not believe that I have allergies to certain foods, but is my body...
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