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  1. Replies
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    Hi Rubydo, I use La Roche Posay Toleraine Ultra...

    Hi Rubydo,
    I use La Roche Posay Toleraine Ultra Nuit in the morning and at night and my skin loves it. The skin on my face had become so dry and this has restored its moisture. No fragrance,...
  2. Thread: Oracea

    by Momof
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    I started at .5 ml LDN and increased by .2ml...

    I started at .5 ml LDN and increased by .2ml every 3 days up to 4.5ml. The doc said I could go as far as 10ml and I did increase up to about 6.5ml but I didnít think it helped so Iím back to 4.5ml at...
  3. Thread: Oracea

    by Momof
    Replies
    12
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    273

    Sensitive to the sun? Apparently it does, but I...

    Sensitive to the sun? Apparently it does, but I didnít notice it. I certainly didnít get sunburned while I was on it. Obviously, my skin has been highly sensitive to everything over the last couple...
  4. Thread: Oracea

    by Momof
    Replies
    12
    Views
    273

    I tried Oracea for 6 months but it was utterly...

    I tried Oracea for 6 months but it was utterly useless. All it did was kill my appetite- I had a very sick stomach for a couple of weeks but my system adjusted to it after that. It seems to work...
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    Hi antswantclear, where do you get your botox...

    Hi antswantclear, where do you get your botox done?
  6. Replies
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    That is really interesting about amitriptyline...

    That is really interesting about amitriptyline and vasoldilation. Maybe the amitriptyline has actually made me more swollen! Even more of a reason to switch to cymbalta.
    I took 1x 25mg of...
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    Hi all, Just checking back in with you! Last...

    Hi all,
    Just checking back in with you!
    Last while has been a mixed bag... more bad days than I had over the summer. I donít know if tiredness is making things worse. I was up to 6ml of LDN but...
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    Amitriptyline and LDN

    Hi all,
    Just to come in on the amitriptyline conversation. I am still taking 10mg amitriptyline and am up to 5ml of LDN. The amitriptyline has, I think, helped with calming down the excited nerves...
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    Hi Angela, I got a few spots when I started...

    Hi Angela,
    I got a few spots when I started using the Finca sunscreen first but that stopped soon enough. My face used to be very itchy (presumably from dryness) but after a few weeks of using LRP...
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    Hi all, back after a very busy period at work. ...

    Hi all, back after a very busy period at work.
    Iím currently on 4.3 ml of LDN and will increase to 4.5 tonight. I will stay at 4.5 for a few weeks to see how I go. My face is much cooler overall. I...
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    Just wanted to tell you that I am on Day 2 of...

    Just wanted to tell you that I am on Day 2 of 10mg amitriptyline along with my LDN ( at 2.9mg now) and I think it is fast tracking my pain recovery. I know I shouldnít be mixing meds because then I...
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    Hi Angela, I use it instead of foundation as all...

    Hi Angela,
    I use it instead of foundation as all foundation ( even the supposedly ďcleanĒ ones) irritate my skin. Because the sunscreen is so natural, it doesnít contain any silicones, so it doesnít...
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    For cleanser I just use pure Safflower oil as...

    For cleanser I just use pure Safflower oil as itís high in linoleic acid which is apparently good for the skin barrier.
    I then wipe this off with a dampened ( by plain water) cotton wool pad.
    I...
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    Hi Opare, This fabulous natural spf30 tinted...

    Hi Opare,
    This fabulous natural spf30 tinted sunscreen ( link below) is the only sunscreen my face will tolerate.
    Itís totally natural and has a super yellow tint to it which diffuses redness....
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    Opare, To answer your other question, I think the...

    Opare, To answer your other question, I think the flushing is being triggered by the overactive facial nerves... nerves trigger vascular system, vascular system causes flushing.
    My facial nerves...
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    Opare, at the beginning I was recommended...

    Opare, at the beginning I was recommended Soolantra, Rosex and Doxycycline 40mg..... all totally useless for this type of rosacea. The first just saw redness and irritation ( absolutely no spots)...
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    Opare, I donít want to contradict the excellent...

    Opare, I donít want to contradict the excellent advice you have already received but just to let you know....
    Before I started the LDN, my GP had prescribed Clonidine 25 micrograms x3 daily for my...
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    Hi Angela, I was diagnosed with neurovascular...

    Hi Angela,
    I was diagnosed with neurovascular rosacea / vascular instability which is basically the dysfunctional nerves triggering the burning and flushing which is causing the edema ( swelling). ...
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    Update

    Just checking in again! On 2.5 now ( increasing very slowly). No side effects at all.
    LDN is reducing the burning nerve pain slowly but surely. What Iím finding is that I will have 2/3 really good...
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    Quick update

    Hi all, just wanted to give some positive news. Iím now on day 25 and will be moving to 2.1 ml tonight.
    I have definitely noticed an improvement in the last 3 days. I still have slight pain but I...
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    Hi Lena

    Hi Lena. It was a V Beam treatment. I think it was too severe for me. I will never touch a machine again
  22. Replies
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    graphic suggesting potential benefit of immunomodulation

    5567

    Zoom in - this is an interesting graphic showing all the potential processes in neurogenic rosacea and potential immunomodulation treatment
  23. Replies
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    I canít copy and past that image on mu phone... I...

    I canít copy and past that image on mu phone... I will try later from a PC
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    Thank you Judy. I truly believe that if I sort...

    Thank you Judy. I truly believe that if I sort out the nerve pain, everything else ( flushing and swelling) will stop. It all started after laser with intermittent nerve pain, stinging and burning a...
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    Thank you so much

    I just want to sincerely thank everybody who has contributed to this discussion. I have learned more from you than the 3 ďprofessionalsĒ (i.e. consultant dermatologists) who were all a waste of time....
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