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  1. You are welcome. May I suggest you take a look...

    You are welcome. May I suggest you take a look the the EM site - www.erythromelalgia.org and if you want to discuss with others who have the same symptoms, join the following support group -...
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    Same with me - I have been completely and legally...

    Same with me - I have been completely and legally disabled for 15 years now after taking accutane. My face still has severe and painful flushing at some point every single day, often multiple times...
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    I totally agree with you. All known side effects...

    I totally agree with you. All known side effects should be clearly stated up front. When I took it, I don't think this effect was widely known, but I did report it. The more people to report it,...
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    I totally know what you mean about wanting to...

    I totally know what you mean about wanting to warn people about accutane and the negative side effects. However, the truth of the matter is that this medication helps some people in positive ways. ...
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    Hi Chris, I don't post on here too often, but I...

    Hi Chris,
    I don't post on here too often, but I am one who took Accutane for about 8 months and was left disabled by severe and painful flushing that started from taking Ac****ane. Similar to you,...
  6. Thread: anti flushing meds

    by meg
    Replies
    3
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    1,842

    Hi Melissa, Try a pain management doctor,...

    Hi Melissa,
    Try a pain management doctor, preferably one who is an anesthesiologist or a neurologist, preferably an autonomic neurologist. Both of those types of drs should understand the flushing...
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    Well, I don't want to depress you, but I am one...

    Well, I don't want to depress you, but I am one of those people who took accutane and have never been well since. In fact, my situation only worsened after tapering off, to the point of severe...
  8. You're welcome. If your dr thinks you have...

    You're welcome. If your dr thinks you have Raynaud's then he should give you a referral to a rheumatologist as there are some things that can be done to improve your symptoms. I get cold hands and...
  9. Just read your post and the description you gave...

    Just read your post and the description you gave of your hands and feet sounds a lot like Raynauds. Lots of people with Raynauds also have rosacea. May I suggest you take photos and bring them with...
  10. I became legally disabled as a result of taking...

    I became legally disabled as a result of taking Accutane. It gave me severe and painful flushing that can not be cured, so I caution anyone from taking this medication. I have found a few meds that...
  11. Hi Erik, All I can say is be careful because...

    Hi Erik,
    All I can say is be careful because accutane caused me to become disabled by severe and extremely painful facial flushing at the age of 38. Over time, I have gotten some relief, but not...
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    Laser dr in San Francisco

    I can recommend a dr who has helped me with Perfecta Laser txs, but she's in San Francisco, CA. Her name is Dr. Kathleen Welsh. I'm not sure she is a rosacea expert, but she is smart, caring and...
  13. I have had my entire face injected with...

    I have had my entire face injected with subcutaneous botox and it did nothing for my severe and painful facial flushing. I can't remember if my pain mgt dr did my ears or not, but my ears do flush...
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    My dr started me at 20 mgs, but then increased it...

    My dr started me at 20 mgs, but then increased it to 40 mgs. After the first month, I started to get these small burning spots on my cheeks, which progressed to large burning spots, and eventually...
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    My situation is the opposite - Accutane caused my...

    My situation is the opposite - Accutane caused my severe and painful flushing and the effects never went away, even after I stopped. In fact, I got worse and worse and have become completely...
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    Hi jlb2010, I just want you to know that I...

    Hi jlb2010, I just want you to know that I completely understand where you are coming from. I suffer from severe flushing with burning pain and am completely disabled by it. With that said, I...
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    Neurogenic Rosacea Published Article attached

    Earlier this week I went to see Dr. Timothy Berger, who is the head of the dermatology department at, to discuss some issues I am having regarding my facial EM. He immediately told me about Dr....
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    That's interesting about the Raynauds in your...

    That's interesting about the Raynauds in your family. Many people with Erythromelalgia (EM) also have Raynauds and they go back and forth between the two. Take a look at www.erythromelalgia.org. ...
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    Sorry to hear you are having flushing with pain. ...

    Sorry to hear you are having flushing with pain. I know exactly what you are dealing with as I suffer from severe flushing with pain for many, many years now. Your GP should be able to help you...
  20. Thread: anti-flushing meds

    by meg
    Replies
    12
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    6,495

    Hi Jem, Yes, I take roxicodone for the flushing...

    Hi Jem,
    Yes, I take roxicodone for the flushing and the associated pain I have from the flushing. But, what I noticed is, that for me, when I take it for the pain, it shuts off the flushing and for...
  21. My doctor will treat eyelids. Her name is Dr....

    My doctor will treat eyelids. Her name is Dr. Kathleen Welsh in San Francisco, CA. She has the Perfecta vbeam laser. She uses eye shields to protect your eyes. I've had her do mine that way once...
  22. Thread: anti-flushing meds

    by meg
    Replies
    12
    Views
    6,495

    Add migraine meds like Maxalt or Treximet and...

    Add migraine meds like Maxalt or Treximet and narcotics like roxicodone. These can settle flushing for me. Others feel anti-convulsant drugs like lyrica or gabapentin work and work even better when...
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    It's normal to get worse before you get better. ...

    It's normal to get worse before you get better. You may find yourself flushing more for 2 to 6 weeks after each treatment, but then when your face settles down, you should see some improvements. ...
  24. Sticky: EM is not as rare as once thought, although it is...

    EM is not as rare as once thought, although it is considered a rare disease according to NORD. With that said, I have never heard of hands or feet involvement when it comes to Lupus, although I may...
  25. Sticky: That may be Erythromelalgia (EM) - look at...

    That may be Erythromelalgia (EM) - look at www.erythromelalgia.org. It's usually hands and feet, but faces can be involved too.

    Meg
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