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    yes:yes:

    yes:yes:
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    Sadly, that has been my experience also. My GP...

    Sadly, that has been my experience also. My GP (although she didn't know much) was prepared to at least work with me.
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    Fingers crossed!

    Fingers crossed!
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    100% ! I was taking liquid form anyway, but Fiona...

    100% ! I was taking liquid form anyway, but Fiona on here mentioned sublingual drops and what a difference!

    As for my post. I hear you all, your pain, your hopelessness, just want the same fab...
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    Give it time, nothing with LDN is instant, you...

    Give it time, nothing with LDN is instant, you may want to look into those drops.
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    An update from me!

    I just wanted to take a moment to give hope to others with this awful disease.

    Having been diagnosed with rosacea and then ocular rosacea in 2002, I spent day after day, month after month and year...
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    I am taking sublingual drops, LDN without the...

    I am taking sublingual drops, LDN without the fillers (tastes awful) but a real game-changer for me!
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    In the beginning, I did try LDN in the morning,...

    In the beginning, I did try LDN in the morning, however nowhere near the good results that I obtained in the evening.

    I cannot recall, are you on tablets or drops?

    Don't apologise for updating...
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    View Post

    LDN dose: 4ml

    What is there to tell. I'm currently sitting here with the right side of my face bright red, purple, swollen boring. When I breath the warm air burns my top lip. Back to square one....
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    Aww! Bless you! Yes. over 2 yrs and no more...

    Aww! Bless you!

    Yes. over 2 yrs and no more nerve pain. The odd rosy-cheek if I have a glass of wine, but no more pain. Taking 2mg at present.
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    I differ there, my nerve pain and swelling was so...

    I differ there, my nerve pain and swelling was so bad that I was going out of my mind!

    Sorry that the reduction of nerve pain did not reduce your redness & flushing though.
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    Well that is terrific news! Getting rid of nerve...

    Well that is terrific news! Getting rid of nerve pain must be such a relief!
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    I would increase your does VERY slowly, IMHO two...

    I would increase your does VERY slowly, IMHO two months is not enough time to assess LDN properly, I would hate you to 'give up' too soon.

    Good luck!

    J
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    100% agree! J

    100% agree!

    J
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    I found that the less facial pain I got, the less...

    I found that the less facial pain I got, the less I flushed (eventually reduced redness); fingers crossed for you.

    J
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    Within the first couple of weeks, particularly in...

    Within the first couple of weeks, particularly in the reduction of facial nerve pain.

    J
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    In the early days, it's so hard not to attribute...

    In the early days, it's so hard not to attribute everything to LDN, btw I saw good results quite early on!

    Hope it's the same for you!!

    J
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    Don't identify with sub-types. I have neurogenic...

    Don't identify with sub-types. I have neurogenic rosacea (intense burning & nerve pain

    when face is hot or cold); triggers emotions (happy or sad) alcohol, stress, wind.
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    Yes! very much so, the less I flushed the better...

    Yes! very much so, the less I flushed the better my skin looks!

    I still have the battle scars (thread veins) however cover with good makeup!

    J
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    Hello! I started on 0.5 mg (I have an...

    Hello!

    I started on 0.5 mg (I have an overactive thyroid, so as LDN can stimulate this I had to take care) VERY gradually increased by 0.5 mg every 2 or so weeks until I was at 2.5 mg (if I tried...
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    Good luck!

    I am 2 yrs into my LDN journey, it has been a life-saver and a game-changer for me!

    J
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    Glad to hear that you've got some relief. J

    Glad to hear that you've got some relief.

    J
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    You remembered! wow! My dry/burning mouth has...

    You remembered! wow! My dry/burning mouth has gone!

    J
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    Sounds like a good plan! I have graves disease...

    Sounds like a good plan!

    I have graves disease too, and since rosacea eczema. (oh joy!), I wish you well.

    J
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    So sorry to hear this. J

    So sorry to hear this.

    J
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