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Type: Posts; User: owldog

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  1. Replies
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    Laser_cat really appreciate the update. That's...

    Laser_cat really appreciate the update.

    That's great that you've been making progress with immunosuppressives. Are these improvements just for the nose flushing? Or do they also help for the...
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    Thanks antwantsclear. Just replied to your PM....

    Thanks antwantsclear. Just replied to your PM. Not sure if it went through as it's not showing up in my sent items. Let me know if you haven't received it.
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    Thanks laser cat! 70-80% success rate is amazing!...

    Thanks laser cat! 70-80% success rate is amazing! I will be so happy with that. That's definitely making me feel hopeful.

    The neurologist is now trialling me on Cymbalta/ duloxetine. If this...
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    Good luck with the Imuran laser cat. I really...

    Good luck with the Imuran laser cat. I really hope you get positive results from it.

    I've finally been seen by a rheumatologist who thinks the flaring/ EM may be secondary to an underling...
  5. Thread: Antibiotics

    by owldog
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    I agree with antwantsclear. I think you really...

    I agree with antwantsclear. I think you really need to see a specialist. I'm sorry to hear that you're not getting the help you should be getting from the right places.

    I also don't think a...
  6. Thread: Vegan Diet?

    by owldog
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    I'm so happy your symptoms have gone due to the...

    I'm so happy your symptoms have gone due to the ZZ cream. I've actually placed an order and hopefully going to try it out soon. Did you your skin get worse before it got better? I'm scared about the...
  7. From my experience I would probably not recommend...

    From my experience I would probably not recommend low dose accutane if you want to improve the nerve pain.

    I actually got all the nerve pain and severe flushing while on low dose accutane for...
  8. Thread: Vegan Diet?

    by owldog
    Replies
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    928

    I actually developed rosacea suddenly after being...

    I actually developed rosacea suddenly after being on a strict vegan diet for a year. I was very ill and bloated all the time. I have been tested for SIBO and I also have ibs. I don't think the high...
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    That's great! Yes please update with feedback. Is...

    That's great! Yes please update with feedback. Is she at 22 Harley Street? I'll try calling next week to book an appointment

    I've been really anxious since Prof Chu has left too as he was the...
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    Thanks laser cat. Yes for me the days of placebo...

    Thanks laser cat. Yes for me the days of placebo are the worst too.

    The best time in terms of flares for me is the first 10 days of my pill pack once my period has ended. I've mentioned this to...
  11. Yes you're right. I just never put two and two...

    Yes you're right. I just never put two and two together as I've had increased flushing recently.

    Got 3 boxes of this stuff as well that I'll probably have to throw out and see if I can get another...
  12. For what I've researched it does seem that very...

    For what I've researched it does seem that very similar medications are prescribed for both. Unfortunately here in the UK neurogenic rosacea is not really recognised. So most of the derms I saw...
  13. Just noticed this post, the pharmacy changed my...

    Just noticed this post, the pharmacy changed my mirtazapine to the nomad brand as well and I've also noticed an increase in flushing. Really weird I thought most generics should be the same.

    Did...
  14. Hey, I have something very similar. I was on...

    Hey, I have something very similar. I was on accutane too and it's been a year since I stopped. Mine looks very similar to your photos. I get the flaring/ flushes on my ears and really bad on my...
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    Thanks so much for your reply laser cat. I will...

    Thanks so much for your reply laser cat. I will definitely try some propranolol.

    Opare, did the MSM worsen your symptoms at all at any point? I had headaches as well as insomnia from it even...
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    That makes total sense! My skin is like leather...

    That makes total sense! My skin is like leather too since I've been on clonidine. It's also got a really weird waxy texture in the areas that I flush. My wound healing is really delayed as well.
    ...
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    This is what I've been thinking. That possibly...

    This is what I've been thinking. That possibly clonidine is somehow over constricting the blood vessels and the cold is continuing to damage the nerves by starving them off oxygen and nutrients...
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    Thanks for your reply! It's such a minefield...

    Thanks for your reply! It's such a minefield trying to find a treatment that will work without progressing this beast and making things worse. And if I didn't risk anything and tried nothing I'll...
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    That's exactly the same as me. I get blood spots...

    That's exactly the same as me. I get blood spots from aspirin all over my arms and face so I avoid taking it. MSM has done the same along with some broken capillaries.

    Annoyingly it has also woken...
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    Thanks for the recommendation. I'm considering...

    Thanks for the recommendation.

    I'm considering seeing Dr Sheth possibly sometime this year but I'm worried as I have a lot of pain in the areas which I've flushed.

    The pain is there when I'm...
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    MSM worsening of redness and pain

    I've been adding MSM into my routine (750mg a day) for the last week. It seemed to be helping the flushing initially and even the redness. However I woke up the other day with a really painful patch...
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    No I haven't tried Moxonidine. Perhaps I'll give...

    No I haven't tried Moxonidine. Perhaps I'll give it try instead of the Clonidine. Hope it works for you!

    Unfortunately the montelukast did not work for me, made me quite agitated as well. Oh well...
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    I'm sorry to hear that. The clonidine helps with...

    I'm sorry to hear that. The clonidine helps with the swelling in my cheeks but not so much my nose. To be honest I actually think it may be exacerbating the flushing in my nose as it makes my...
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    I'm sorry to hear that. It's horrible when...

    I'm sorry to hear that. It's horrible when doctors don't listen. I've been through a few in the past year which were so dismissive that I wish I could've thrown my chair at them in the appointment.
    ...
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    She works at 10 Harley Street on Thursdays and...

    She works at 10 Harley Street on Thursdays and Saturdays. Professor Chu gave me the email address of her secretary. I can pm it to you if you like.
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