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  1. I would say she would be more inclined to...

    I would say she would be more inclined to prescribe amitriptyline or duloxetine for nerve pain than hydroxych. but it depends on what she has experience with.
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    I really think you should give the LDN more time,...

    I really think you should give the LDN more time, especially if the dermatologist is insisting on making you wait for nerve pain meds.
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    I?m going to see can I source the drops.

    I?m going to see can I source the drops.
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    No I haven?t tried accutane but I think I will...

    No I haven?t tried accutane but I think I will try a low dose. I am determined to get rid of the edema and I know it?s just a case of hitting on the right drug. I?m hoping to see a neurologist soon...
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    Fingers crossed for you!

    Fingers crossed for you!
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    Judy, It is so kind of you to take the time to...

    Judy,
    It is so kind of you to take the time to write. I am thrilled that you are so busy living your life again. That is what everybody on this forum wants. Do you think the sublingual drops are...
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    If you?re still here, how are you now?

    If you?re still here, how are you now?
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    Yes apparently it works much better at night

    Yes apparently it works much better at night
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    Should you drop your dose?

    Should you drop your dose?
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    Thank you so much for that lasercat. Maybe I...

    Thank you so much for that lasercat. Maybe I should continue with NSAIDs and see how it goes. I tried 100mg doxy 2 years ago and I don?t think it helped but maybe swelling wasn?t as big an issue for...
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    Just looking for advice on the best way to treat...

    Just looking for advice on the best way to treat edema ( fluid build up). Pure neurogenic rosacea-absolutely no p&ps, no real flushing any more and nerve pain under control most of the time.
    The...
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    Could you go your gp? They really are better than...

    Could you go your gp? They really are better than the dermatologists- they look at the whole picture and think outside the box much more than the dermatologists.
    Propropnalol ( as well as...
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    You need to start 75 micrograms of Clonidine...

    You need to start 75 micrograms of Clonidine daily (3 x 25 micrograms) plus amitriptyline or duloxetine
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    I really hope you see improvement soon. If not,...

    I really hope you see improvement soon. If not, switch medication
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    View Post

    1 month on LDN

    Dose: 2ml

    Side effects: none

    Effects: None.

    I'm sorrt ro say that while I initially though LDN was reducing my flushing, this doesn't seem to be the case. LDN has had no...
  16. Thread: Rosacea Podcast

    by Momof
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    Thank you. I will definitely listen to it

    Thank you. I will definitely listen to it
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    [QUOTE=Sineadrosy;354791]Institute of...

    [QUOTE=Sineadrosy;354791]Institute of dermatologists! That's provided we don't go back into lockdown :([/QUOTE

    Let me know how it goes. Fingers crossed for staying open!
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    Where are you getting the PRP done?

    Where are you getting the PRP done?
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    How are you getting on now Sineadrosy?

    How are you getting on now Sineadrosy?
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    Hope you get sorted. I have found La Roche Posay...

    Hope you get sorted. I have found La Roche Posay Toleraine moisturisers great-no irritation at all
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    I've had my 2nd vbeam about 4 weeks ago. My first Vbeam was 5 weeks before. I feel like im still under the healing process but the last few weeks I seem to have been breaking out with pustules. I...
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    Go back to .7 if you think that worked well.

    Go back to .7 if you think that worked well.
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    Go back down if you think it was better. Less is...

    Go back down if you think it was better. Less is more with LDN
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    Delighted you have started LDN! It?s such an...

    Delighted you have started LDN!
    It?s such an effective drug for so many people and the side effects ( if any) are only good- nice dreams and in my case, all stiffness in my body gone
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    You?re not a lost cause Sineadrosy. If it?s not...

    You?re not a lost cause Sineadrosy. If it?s not working, it?s because you don?t have flushing per se, it?s because you have a burning nerve pain. It needs nerve pain relief. Get to your gp asap.
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